Pain clinic

[Fibrofog]

Got pain clinic tomorrow, I'm hoping they will put me on something that will help the fibro a little bit.

I am nervous as I've been to pain clinic before, but different hospital. And they were horrible. They basically told me to just get on with it!

[Yassytina FMA UK Volunteer]

Hello, sorry to read about your bad experience before, I hope this team are helpful and let us know how you get on as I’ve never been to a pain clinic before,xx

[Fibrofog in reply to Yassytina]

Yes I will be putting on here how it goes x

[Mowgli2121]

Hi sweetie,

So very sorry that they have treated you like this. I've just finished a new programme at Sunderland hospital pain clinic which includes counselling as well they can't give you medication but should give you strategies to help you in your daily living. I hope you get better help this time. To be honest you do need to be a bit assertive with them and don't let them push you aside. Good luck sweetie. Xxx

[Fibrofog in reply to Mowgli2121]

Oh I won't let them push me aside no more. X

[Busymumma22]

Good luck, I’m still waiting for a pain clinic appointment 😂 I’m nervous.

[Fibrofog in reply to Busymumma22]

Oh bless you. Hope you don't have to wait too long x

[Elaine200756]

Hi Honeydebra, sorry to hear of your bad experience. I was referred to the local pain clinic and they wrote to my doctor telling her to take me off all pain medication immediately, which she did.

I was panicking and in the end she agreed to prescribe targeted pain relief, only for when the pain was unbearable. I get 60 Tramadol per month, which is nothing 😒

[Fibrofog in reply to Elaine200756]

Oh no sorry to hear that. Ask for a second opinion xx

[Elaine200756 in reply to Fibrofog]

There's a pain clinic in Sheffield which I'm told is excellent and they have an anesthetist. It's a teaching hospital so they are on the cutting edge of pain relief. I recommend it to anyone in this area 💕

[Fibrofog in reply to Elaine200756]

Thats a bit to far for me as I live in Essex. Still I could always stay overnight.

[Elaine200756 in reply to Fibrofog]

Wow! It is a long way. Is there a teaching hospital nearer to you that you can ask your doctor to refer you to? 🙁

[Fibrofog in reply to Elaine200756]

Yes but it not a good hospital and it's where I had the bad experience. X

[Sammyd66]

Hi I went to pain clinic 6 weeks ago they said for me to try some new painkillers 6 weeks on and I’m still waiting for them to send letter to gp

[Fibrofog]

Thats bad. Sorry your having to wait xx

[dianebrown707]

I've got mine in July I'm worried they don't believe how much pain I'm in. Fingers crossed all goes well for you xx

[Iamthemedicalmystery]

Unfortunately due to new Nice (governing body)guidelines GPS are being discouraged from prescribing strong opiate pain relief such as morphine and above. 😪

[Fibrofog in reply to Iamthemedicalmystery]

Well that's not on. I know it's not good to use it long term, but if your in pain you need it. So are we just meant to suffer?

[Iamthemedicalmystery]

It's because it's been proven that they seldom are effective for fibromyalgia pain . I presume because although we feel that the pain is excruciating its our brains telling us there is pain but it's not caused by something like a broken bone. I'm prescribed oxycodone which is stronger than morphine but my gp wants me to stop it. I do get some relief but is it because of the tablets or is it that I have withdrawal when it isn't in my system

[Fibrofog]

I'm also on oxocodone both liquid and tablets. It does help my head a bit and its the only thing that does.