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Karen54karma profile image
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Does anyone know if their are info sheets anywhere to give advice and tips on flare ups, pain, fatigue etc, something to aid in dietary, self help types of thing?

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Karen54karma profile image
Karen54karma
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Hazel_Angelstar profile image
Hazel_AngelstarAdministratorFMA UK Staff

Fma uk booklets are available at fmauk.org/publications

There is a help line there's al9t of information on the sight

Midori profile image
Midori

Hello and Welcome!

Apart from the regular leaflets and guide books, look up The Spoon Theory on the Net.

It will help explain to you how your energy gets depleted throughout the day, and will also help you to explain to friends and SO's why you may be too exhausted to go out on the town some nights.

It is possible to 'borrow' from tomorrows energy; but don't do it too often, as it is rather like an overdraft at your bank; it will need to be paid back and the interest rate is very high! Doing it too often can lead to flareups., especially if you are a bit under the weather.

Cheers, Midori

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