1st post - Sick of all this! - Fibromyalgia Acti...

Fibromyalgia Action UK

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1st post - Sick of all this!

ian1974 profile image
14 Replies

Hey People,

I've was diagnosed with Fibro about 2 years ago and I feel like its getting worse! I've just had a phone consultation with the Dr and he has swapped my Citalopram to Duloxetine, hopefully this will help improve my situation.

Question - How do you start to do gentle exercise when its the last thing I feel like doing because of pain and mood?

Thanks all

Ian

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ian1974 profile image
ian1974
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14 Replies
Themanwithnoname profile image
Themanwithnoname

Start with gentle stretches . Also maybe try getting on to a pain management programme as they help build you up exercise wise. GL.

Makie-Uppie profile image
Makie-Uppie

I try, don't get very far as I'm a lazy git but the attempt makes me feel good. I will try again tomorrow might nag some kids too.I must have words with the local parking control people, someone has parked a tank on my head today and every so often they fire a shell at some enemy causing my scalp to rip off.

😀

LisaSnow profile image
LisaSnowFMA UK Volunteer

This is my buddy when I am too fatigue to seat so I lay on the couch while watching a movie. See the next reply for how I use it.

My tool on couch
LisaSnow profile image
LisaSnowFMA UK Volunteer

Let passive stretching while having your attention on the movie helps soften your hamstrings.

Passive stretching
LisaSnow profile image
LisaSnowFMA UK Volunteer

This is another exercise ready to go on the couch. Lift each leg as high as comfortably possible 10 times, change side, 10 times, then repeat as you feel like it.

Leg lift
LisaSnow profile image
LisaSnowFMA UK Volunteer

Each baby step adds up. Last night I was having trouble sleeping so I put on my sneakers and walked around my block for just 15-20 minutes. It was magical to walk under shimmering moonlight and twinkling stars while hearing a mocking bird sang his heart out. The crisp and refreshing night air made me feel so good. I got 1800 steps out of this "treat" and slept like a baby afterwards. I think we all need to make any form of exercise rewarding so it can become something to look forward to, instead of a task to be afraid of.

jimmyshoes profile image
jimmyshoes

Hi, just don't think about it too much and just move to your favourite music. A little dance no matter how small, even walking up n down you stairs is exercise . Moving more will really help. Ps I dance while I'm waiting for the kettle to boil as shout at alexa for whatever fun song I fancy. 😀

Midori profile image
Midori

It is a bit of a catch 22 situation. If you don't get some exercise you will become less fit, lose muscle tone and eventually lose calcium from your bones, which can lead to spontaneous breakages. The less you do, the less you can do, and the harder it becomes to get your fitness back. The idea is not to lose it in the first place.

Now I know Covid has done us no favours, keeping us indoors and sedentary. but now it is time to get moving again.

I once had to spend 3 Months in bed, and afterwards I was 3 weeks in a wheelchair, with totally jelly legs. I got myself out of it with determination and plenty of Won't Power!

To start with try stretches, possibly with a resistance band, you can get them in several strengths. Then how about Tai Chi. this is actually a Martial Art, but for fitness it is done very slowly, and in a controlled manner.

As you become fitter, get outside and walk to the shops and gradually increase the distance you walk, Don't rush at it, or you will get a flareup, just take it slow and steady, challenging yourself a little more each day.

What hobbies do you have? Time to get started on some more, your mind is a muscle too, and needs exercise, There are all sorts of puzzles you can do and a Brain Training programme.

Get out and try to meet people.. go to a coffee shop, try smiling at people. If you look approachable and friendly, folk will start to talk to you, especially if you say good morning to your neighbours..

Good luck!

Cheers, Midori

E3178 profile image
E3178

Hi, depending on my pain level I do tai chi, walking and yoga. Today ,All I could do was lay on the floor and stretch as much as the pain would allow. It is better than nothing though.

thespianglobe profile image
thespianglobe

Count yourself lucky that you have actually had a diagnosis. I am convinced that I have Fibro - at least I have had all of the symptoms for the last seven years or so but my GP has no interest and just tells me that the condition does not exist and is nothing but a list of symptoms - great help. I force myself to exercise which find does help but I tend to suffer more the next day.

Midori profile image
Midori in reply to thespianglobe

Can you see another doctor at your Surgery? There are still some (usually older GPs who don't recognise it).

The best bet is to ask for a referral to a Rheumatologist, they are usually the ones who will diagnose Fibro, after all the other tests to rule out any other condition.

Your GP doesn't sound like he has your best outcome in mind.

Cheers, Midori

thespianglobe profile image
thespianglobe in reply to Midori

Thanks for the reply, I am hoping as the pandemic eases I might be able to see another GP but my practice is run by a surgery in another town and largely staffed by locums. I will persist.

geekyfrancy profile image
geekyfrancy

I am super lazy, but I know exercise does help me and that generally gets me moving. On bad days, I either ask someone to push me to do more exercise, or I basically force myself by starting off with something very small and possibly something I like; it can be 10 minutes gentle yoga routines, a walk to the store to buy a treat. If after that I feel like doing a little more, I will push myself a little.

Pipcharlie profile image
Pipcharlie

I make sure I go out for a gentle walk each day. I always find that the change of scenery at least helps lift my mood if nothing else. Sometimes staying in seems the easiest thing to do but I push myself to do it as it does benefit me mentally. I go at my own pace and never to far from home incase the pain is too much

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