At end of tether!: I have fibromyalgia... - Fibromyalgia Acti...

Fibromyalgia Action UK

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At end of tether!

Susies03 profile image
10 Replies

I have fibromyalgia. This last year I have had 1 flare up after another. If I have a good day I pay for it! Does anyone just fall for no reason. My leg goes without warning. Also if I eat or drink anything hot i have to run to loo. Does anyone else suffer with this. It is really getting me down.

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Susies03 profile image
Susies03
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10 Replies
hollykarma profile image
hollykarma

So sorry to hear that you are suffering so much. I know what it is like to suffer from this terrible condition. I had it for 11 years before being diagnosed. The trouble is that a lot of people just do not believe how painful it can be and how it affects your life. The only thing I can say is that you will have good days. I just hope we start having a proper summer as warm sunshine is the only thing that really helps me.

l3ahane profile image
l3ahane

HiJust can say, you are not alone 😔

Dizzytwo profile image
Dizzytwo

Hello and a very warm welcome to our group :)

I see you have a lot of other health issues going on too which can also effect how you may feel.

I too have severe OA and anxiety problems so can understand how you feel.

You may be going through a bad flare up of all your symptoms which would definitely have a knock on effect to dealing with other things like depression.

May I asked when was the last time you spoke with your GP? If its not been for a while. Maybe now would be a good time to update them on how your feeling.

Its hard when dealing with loads of things at once. I'm sure the majority of our members know how that feels.

But I have found the more I stress the more I hurt. I have my problens for 40 years and no it is not easy at times.

I just have to remind myself when times are bad to take a deep breath and take a step back from things going on around me. I find surrounding myself with peace and quite can really calm my mind which in turn helps with the anxiety and the pain.

The more I stress the more I feel the pain. Stress and anxiety has a lot to answer for including IBS which I've had all my life 🤗🤗

Momo

PS I see you have left your post unlocked to this community only for privacy reasons you may want to lock it.

Also locked posts tend to get more replies. The link below will show you how to lock your post if you wish to do so xx

healthunlocked.com/fibromya...

Makie-Uppie profile image
Makie-Uppie

Yup, got that, got everything and am being boiled alive at the moment, so there will be gravy later.

in reply toMakie-Uppie

Oh, boiled alive! Especially feet in summer.

Hi Susie03, sorry you suffer so. My right leg goes too. Especially if I run suddenly mostly to catch a bus. It just gives away under me. But I also get extremely dizzy when I get up and has fallen a few times. Drinking hot stuff has not sent me to the toilet yet. But I have found FIBROMYALGIA to be extremely creative and malicious.

SusieSquirrel profile image
SusieSquirrel

Hi, I too am having flare after flare. I find my fibro flares more during summer months. But my other health issues are playing up which makes fibro worse.I have irritable bladder as well as irritable bowel and they are both worse during flares.

I dont know about falling for no reason though, but I do fall if I bend over but thats related to hydrocephalus.

Maybe speak to a doc if you are worried about it

Bruton profile image
Bruton

fibromyalgiaresources.com/l...

Have look at this. There are 251 symptoms. I found it really helpful

Midori profile image
Midori

Go back to your doctor and tell him you are having falls. It isn't a usual part of Fibro.

deb26bie profile image
deb26bie

You are not alone....I have been signed off since end of January and due back to work in a week but there is absolutely no way I can. I am in pain every day. I have had acupuncture which was a waste of time. I applied for PIP a couple of weeks ago but am really worried I won't get it. I have a chair in the kitchen so I can sit down as my legs just give out and the pain in my back legs and feet is unbearable.....which you all now.....I crawl up the stairs ....it is a very debilitating condition and more people need to understand it....take care.

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