Hi, fellow fibro warriors.
On top of the fibro, malignant hypertension and possibly PoTS, I've recently been diagnosed with erythromelalgia. I'd never even heard of it!
It's a horrible condition, I'm dreading the summer. A couple of hours in the March sun turned me into a beetroot. Hands and feet get really red and swollen too.
After a long journey I've found an excellent GP who really listens. Not sure all would spot it.
I'd be interested to hear how often it combines with fibro.
Id never heard of it. Not any connection to fibromyalgia that I'm aware of
Thank you. It's probably just an unpleasant coincidence. 🤕
I feel for you with this, the burning and pain and redness, do you get it in places other than your hands and feet, it’s pretty rare, but I do have a friend who is a carer and she says her patient can’t bare it. All she can do for her is cool the areas down. Take care of yourself hun, such a horrible thing to have on top of FM.
Thanks...mostly hands, feet, face.It started the same night I was taken into hospital with bonkers high blood pressure ....
Have to say it amuses the kids when my face goes purple for no obvious reason....always a silver lining somewhere!!
I have severe EM and am treated for it with IV lidocaine infusions by my pain consultant. I won't lie it's agony hence it's also known as suicide pain, but you can do things to manage it.
Thank you....I think. ..
Hello, I'm Paula I don't usually write anything on here but was very interested in your post as I have recently been diagnosed with the same thing. I was starting to think that the duloxatine had caused it but I'm not entirely sure as I've had burning feet for a few years. But never looked at the colour of them until recently,
I get red soles of feet occasionally and my face too gets very red, though was told this was rosacea and/or urticaria. My feet look like this when suffering. Can’t post the two feet but they’re similar. I mentioned the ‘e’ word to the diabetic nurse but there wasn’t any comment really. I’m sorry you’re suffering, I don’t think mine is at all the same and yours sounds very painful. I have painful feet but that’s due to a bit of neuropathy (have had chemo and of course diabetes and lot of arthritis in my feet bones).
Hope you get some medicinal relief
Kay
I have been looking into this as my hands will swell up and go red. Also the other night after being in my slippers all day my feet felt like id been on them all day and they were red all over by the time it got to bed time. I wear gel insoles as well to help with comfort. Thinking about it also went up my shins. Im 50/50 as to whether i have this condition but to be honest what ever it is it has not been that bad to me as of yet. Be blooming unlucky if i do as again reading up it effects more women than men.
Has anyone else tried massage?
Anyone else having problems with their ears? :s
anyone else have diverticulitis diesease?
Anyone else with Fibro have Raynaud's?
Does anyone else get blurred vision?
