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Fibromyalgia Action UK

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Fibromyalgia and anti-Sars-CoV-2 / COVID-19 vaccination

TabataRossa profile image
14 Replies

Good morning to the whole community. I would like to ask this: in view of the poor etiopathogenesis of fibromyalgia, do you have useful information in your country about the administration of the anti-Sars-CoV-2 / COVID-19 vaccination? In Italy there is some confusion on the part of our GPs and of the specialists we refer to for fibromyalgia, rheumatologists, algologists and neurologists, we do not have a certain answer on the administration of the anti-Sars-CoV-2 / COVID- vaccine. 19. How are you regulated in this sense? Thank you for your kindness.

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TabataRossa
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14 Replies
LisaSnow profile image
LisaSnowFMA UK Volunteer

In the USA, patients with rheumatoid diseases including fibromyalgia are strongly encouraged to take the COVID-19 vaccine. I had no flare or other issues with Pfizer shot.

TabataRossa profile image
TabataRossa in reply to LisaSnow

thank you very much

lovemissy profile image
lovemissy in reply to LisaSnow

Hi,I have fibromyalgia, osteo arthritis, underactive thyroid,

I had the Pfizer jab 4 weeks ago, and apart from a sore arm, like the flu jab.

I have had no side affects.

I hope this helps you x

TabataRossa profile image
TabataRossa in reply to lovemissy

thank you very much

Cat00 profile image
Cat00

I don't think the medical world has even considered many illnesses individually in the UK. Because fibromyalgia isn't considered to inhibit our immune systems we're supposed to ok for any vaccine. My mother has polymyalgia and is on immuno suppressants and was still given the vaccine. My oldest friend has ALS, lupus, stage four heart failure and fibro amongst other things, she got offered the vaccine but none of her doctors are prepared to say whether she should have it so she has decided to delay it for now.

TabataRossa profile image
TabataRossa in reply to Cat00

thank you very much

ChristineW18 profile image
ChristineW18

I have lupus, stage 4 renal failure and fibromyalgia. I am on immunosuppressants. I had had my first dose of the Pfizer covid vaccine in December with no adverse effects at all. I am expecting my second dose in March and have no hesitation in having it.

TabataRossa profile image
TabataRossa in reply to ChristineW18

thank you very much

Cat00 profile image
Cat00 in reply to ChristineW18

Your experience could be good news for my friend, she's only 32 and has 2 very young children and is desperate to have the vaccine.

desquinn profile image
desquinnPartnerVolunteerFMAUK Trustee

Throughout this pandemic and development of the vaccine there has been nothing to suggest that there was anything that would distinguish someone with fibro from someone who did not have it. All the evidence is pointing to the vaccine being safe for all with very few side effects.

TabataRossa profile image
TabataRossa

thank you very much

Char1-2 profile image
Char1-2

My muscles in my neck were worse after the jab, and didn’t feel better for a week. But there’s no way I’m not having it. I had covid last March and that was 1000% times worse and my fibro with covid was a lot worse than when i had jab done! Definitely have it done it’s worth it. X

Purplebluebell profile image
Purplebluebell

Hi, had the Pfizer vaccine, just a sore arm, felt ok.

paula9087 profile image
paula9087

I had the Oxford vaccine 6 days ago. The only thing happened to me was a headache from hell and my whole body was in agony for two days and nights. I don’t know if it was the vaccine or just very bad flare up. But will know when I have the follow up vaccine.

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