Does fibro effect your taste buds? - Fibromyalgia Acti...

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Does fibro effect your taste buds?

BrookeP23 profile image
9 Replies

I have had fibromyalgia for about 5 years now as well as RA. My RA doctor is the one who diagnosed me. I’m also 28 years old..

My question today is does fibro affect your taste buds? When I bite into food everything taste bland. Like I know what I’m eating but the flavor isn’t all there if that makes sense? Like for example if I’m eating salsa I know it from the texture but I don’t get the full flavor of it like I use to.

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BrookeP23 profile image
BrookeP23
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9 Replies
BrookeP23 profile image
BrookeP23

And no I don’t take any medication at the moment!

LoneEra profile image
LoneEra

I take it this is not a new symptom? If it is, get a Covid test!!

I’ve never personally found my taste impacted by fibro. But sorry you’re finding this as it must be boring.

So sorry that you acquired Fibro at such a young age...If not quite usual, your experience is quite possible with Fibro. People complain about loosing the senses of taste, of smell, loosing the voice (temporarily), having problems swallowing etc. For some time, I had a strange metal taste in my mouth, so believed that I am going nuts, lol. If you read the posts here, you will see that Fibro goes hand in hand with many other syndromes (dry eyes, restless legs etc.)

I am, actually, researching Fibro, and here something that has, at least I believe so, remained under the radar. Found an article where the influence of caffeine on Fibro was researched. The results were so positive, that it would be worth trying to consume say 3 coffees a day. I believe that the limit is somewhere at 7-8 coffees a day (my sister in law did it for years, lol), so 3 coffees would be a good amount for the start.

Wishing you all the best!

desquinn profile image
desquinnPartnerVolunteerFMAUK Trustee in reply to

Hidden - we have a lot of variance in people with fibro but would like the sources for the taste, voice and coffee. As we have a large and diverse population with fibro we overlap with a number of other conditions. So dry mouth etc could be Sjogren's instead of fibro. So its important that a GP looks at symptoms separately as there will be other treatments available if your symptom is part of another condition.

in reply to desquinn

Des, for Heaven's sake, how can I remember where and when have I read about the dry eyes or loosing voice for some time, when I have been reading this forum for maybe 8 years...? If I had written Sjogren's, syndrome, instead of dry eyes, the young lady probably would not know what it means...

As for the article, here the link:

practicalpainmanagement.com...

Who knows, maybe the coffee really can help, and costs nothing or very little. Personally, I did not drink the coffee during the first 68 years of my life, but now, I have started morning and evening coffee, and feel that it is good for my health problems. So, I suggested to others, why not?!

desquinn profile image
desquinnPartnerVolunteerFMAUK Trustee in reply to

First of all thanks for the caffeine link. This supports using caffeine as an adjuvant like it is used in paracetamol or codeine. One of the suggestions is that it can speed up the action of pain killers. But not seen anything of it being useful on its own and obviously other advice is to cut down on it.

Sorry but when someone asserts something I do tend to ask for more info so I can find out about it. I was not aware of the study you cited for example. And, I am very curious :)

It is easy for people to look things up which is why I was making a point of mentioning Sjogren's. Its important that we do not put symptoms against the wrong condition as Sjogren's for example does have more aspects to it and looking at the Sjogren's society rather than our website for example would be worthwhile.

Dizzytwo profile image
DizzytwoModerator

Hi there, ive had fibro for about 40yrs and never had any problems with taste. Do you suffer with your sinuses at all. Troublesome sinuses can alter your taste and smell.

Also loss of taste is one of the covid symptoms. I would call your GP and have a word if it continues. IMO I dont think its related to fibro.

Momo

desquinn profile image
desquinnPartnerVolunteerFMAUK Trustee

I would ask GP as I would not link this to your fibro without their say so. Maybe tablet/supplement side effects or something else e.g. covid as has been suggested.

Hazel_Angelstar profile image
Hazel_AngelstarAdministratorFMA UK Staff

I have reduced sense of taste/smell .... But I have non allergic rhinitis which is more likely to be the cause than my fibro

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