Hello, I notice that most people talk about their symptoms related to Fibromyalgia (which is the whole point of this site) but im wondering would anyone be kind enough to share with us any experiences of symptoms that have been investigated by a registered professional that were found NOT to have been Fibromyalgia related.
Thank you
HiMy shoulder pain was calcific tendinitis, face pain was shingles, ankle pain was torn ligament, neck pain was osteoarthritis, which is why I check out any new symptoms now. Not everything is fibro related and to put it down to fibro could be wasting valuable treatment time.
Hi Dinkie, It is interesting to hear about the symptoms people have suffered with and ones that may have been put down to Fibromyalgia which have possibly been misdiagnosed.
Sharing experiences can sometimes put a light on things. I do wonder how many sufferers already diagnosed with Fibromyalgia choose not to get checked by doctors for certain pains in fear of being told its another Fibromyalgia symptom.
Thank you
I was so guilty of putting it down to fibro. Delay cost me less than satisfactory surgery on ankle and extreme pain on the tendinitis which could have been helped. Taken a long time for the chiropractor to get back some of my shoulder movement. As for Shingles anti viral drugs were delayed☹️. Guess the moral of the storycheck it out as you would if you didn’t have fibro
Absolutely agree to get things checked! Thank you
Hello, Fibromyalgia as all those who have a diagnosis will appreciate the length of time to get the confirmation. You can confirm from your experience that certain pains and side effects for Fibromyalgia and associated medications are related to you personally. But as there are so many conditions, symptoms that are related or can cause Fibromyalgia that the GPS have great difficulty in coming to a accurate diagnosis and we you suffer on a hit or miss lottery of medications to try and ease, relieve the painful symptoms which work for some and not others. The process of getting confirmation of your condition we all wish was as straightforward as having an X-ray on your arm and the picture shows a broken limb. The health professionals know what to do and how to treat the broken limb. Until a simple easy way of getting a diagnosis for fibromyalgia the situation will remain as it is at present. We can only inform,share our symptoms, treatments, remedies exercise programs that help us through each day remembering it works for them but may or may not for me.
I know one sure way that I have fibromyalgia, because I have periods with no pain at all.
If it was something else it would be there permanently. I have flare ups and then it comes back and is very painful plus the terrible foggy brain.
Hi, not much has been mentioned about "Fibro Fog". Have you found ways to help? I try to do a few minutes brain training everyday. Crosswords, wordsearch, puzzles etc. I try to write things down immediately on a calender with alarm set on phone and I do tasks one at a time (or I'll end up putting butter in the cupboard again and missing appointments etc).
Yes I do crosswords, puzzles, trivia and since COVID have bought jigsaws and I also go on Twitter and Utube, which I had never bothered with before, I get opportunities to write back on comments, it’s quite fun.
The fog makes me forget things.
For me personally , lower back pain turned out I had a slight fracture, I didn’t know till showed up on an X-ray for something else, another X-ray shoed start of arthritis and worn away cartilage.
Hi Yassytina,
Sorry to hear this the good news is you know whats causing the issues. Were your symptoms put down to Fibromyalgia originally? How long did it take for diagnosis?
I wish you all the best
Hi again, no I had been diagnosed and you kinda get used to horrid aches /pains but was sent for a bone density scan which idenfied this fracture I had, all the lady said was don’t lift anything too heavy nothing else, I had been lifting my little grandsons without realising, it was my doctor who months down the road picked up on this whilst searching through my history, the knee I have had 2 xrays which showed up problems , like you say sharing experiences etc can be helpful as sometimes s we put aliments down to fibro and upon further investigation it’s something else, x
I was diagnosed very quickly, I had pain in ribs shoulders for about 6 months and my doctor squeezed my arm, asked if it hurt and said she thought it was Fibromyalgia. She has been very supportive, so I was lucky.
I think I have tried every pill etc., that there is. I now just take duloxetine and paracetamol.
I have had it for about 5yrs and the pain has traveled to more places. I have found the most important thing to do is rest as soon as you get a flare up.
There will be a large list of people and things most likely. Is there something specific your concerned about?
Hi Desquinn,
I agree! There is no specific concern. Sharing experiences and answering questions help.
Thank you
My joint pains were due to severe wear and tear of my ankles, knees and wrists. My severe back pain was due to a degenerating spine and a bulge on my spine. This was found out when they said I didn't have arthritis and scanned my body. The diagnosis of fibromyalgia, came a year after. This was when I was told that I'd had it for 35 years! This all happened 5 years ago after I moved out of London and my new doctors sent me to everything and everyone they could to help me with my severe body pain. I was eventually diagnosed by my physio after acupuncture, pain courses and exercises which all made me worse.
"after acupuncture, pain courses and exercises which all made me worse."That's how I started too. But: "diagnosed by my physio"? Unofficially, you mean??
When the physio realised that the exercised etc were making me worse. She asked me about my other ailments IBS etc and then asked me if I'd ever been told that I had fibromyalgia. A friend had mentioned it to me 20 years previously but I ignored her. The physio told me to go talk to my GP and when I did, he looked through my records and said, " yep you've got fibromyalgia. What are they going to do about it?". He then recommended that I go the fibromyalgia support group for help and advice as they'd know more than he did.
My fave one is my lower jaw starting left 2017 with stress, then right 2020, turning out to be 2 root inflammations by the total x-ray of a 2nd dentist.
Thankfully I have a very good doctor and she doesn't mind referring me for x-rays etc. to put my mind at ease. Pain in my ribs, knees and feet was fibro but pain in neck was diagnosed a weak before Christmas as osteoarthritis - great Christmas present. Last year back pain was uterine polyps. It's always worth having any new symptoms checked out.
Hi, It is good to hear your doctor is looking after you well. I think for many GPs its difficult for many reasons to diagnose. If only GPs could run like the good old days. The ones where you had one GP and that was it. Sure they may have still made mistakes but they would known you better to decide next steps. Definately get things checked. I would say if you don't agree with doctors opinion then get a second one.
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