Taking part in fibro congress - will ... - Fibromyalgia Acti...

Fibromyalgia Action UK

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Taking part in fibro congress - will be sharing some items on twitter

desquinn profile image
desquinnPartnerVolunteerFMAUK Trustee
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short post as in the middle of the below conference. Some interesting material has come up already but if you keep an eye on twitter then will share some more there during the day. One thing of interest is that there is some research that shows glutomate may be a predictor of how well pregabalin works. My takeway from this is it reinforces that some drugs will work better for some people and if we find out why then drugs will be targeted better and outcomes will be better and quicker.

The 2nd International

Virtual Congress on Controversies in Fibromyalgia

fibromyalgia2020.com/congre...

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desquinn
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But, Des not everyone's on twitter or other social media, will you keep us informed on here? Or updated at some stage? xx

desquinn profile image
desquinnPartnerVolunteerFMAUK Trustee in reply to

Hidden - That was the reason for posting here to give the option. At the moment I do not know how many tweets I will make as my brain is already melting. But I have to decide where to message with my time and twitter was the choice but hopefully will bring something together for sharing on other platforms. But it is 2 days of clinical content so stretching my ability to relate effectively but will try.

Panel of 5 professors talking about drugs efficacy and now onto a Q on CSS and the brain changing i.e. Neuroplasticity and could in the future could be change it back the way it was. But it is just directions of thought/research and not anything tangible.

in reply to desquinn

Thank you xx

Dizzytwo profile image
DizzytwoModerator

Thanks Des, look forward to hearing more.

desquinn profile image
desquinnPartnerVolunteerFMAUK Trustee

Just to add that even without twitter app or account our posts can be seen like this one - twitter.com/fmauk/status/13...

"Was interesting to hear again that diet and fibro do not seem to be related but microbiome *may* be. Possible that adding fibre and resistant starch may be good as could reducing sugar. As FMA UK says eating a healthy diet is good for you :)

#Fibromyalgia2020

@BiomedSharing

Des"

Lilishead profile image
Lilishead

Hi desquinn, thanks for sharing this link, it was interesting for me to be able to read through all of the summaries for day 1. I will look forward to reading today's summary tomorrow I guess! 😊

Midori profile image
Midori

Very Useful, thank you.

desquinn profile image
desquinnPartnerVolunteerFMAUK Trustee

Interesting and challenging talk on "Fibromyalgia Personality: What is it?" Our community is not all the same but some analysis has shown some of the traits below. Looking forward to rest of the analysis and conclusion

#Fibromyalgia2020

@BiomedSharing

Des

twitter.com/fmauk/status/13...

desquinn profile image
desquinnPartnerVolunteerFMAUK Trustee

"Plenary Lecture: Fibromyalgia in COVID-19 Time: Just Another Post-Viral Syndrome?" very interesting to see Daniel Clauw's talk on this.

#Fibromyalgia2020

@BiomedSharing

Des

twitter.com/fmauk/status/13...

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