another part of fibro or something else? - Fibromyalgia Acti...

Fibromyalgia Action UK

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another part of fibro or something else?


i went thro town today with my partner and as usal my knees and legs hurt and was tired. so we got on with what we did and got into a taxi. i tried to menover my feet and legs over the middle part to get over to let my partner in and my legs just felt like a heavy weight was hanging on them and it just took all my stregnth to move them. after we got home. i was wiped out from it and took my tablets then slept for a long period of time. my question is this something i should be worried about or is it another part of having fibro?

10 Replies

I find when I’m out n about my legs become like a dead weight , really heavy n painful this is every single day more or less , also fatigue is really bad getting , I was out last night for a family birthday dinner , had to leave my family to continue celebrating went to bed at 11 pm slept all night woke up at 10 am this morning had breakfast then slept again till 4-30 , still in bed at moment watching tv , so I think it’s all part n parcel of fibro x

thank you for your reply. i hope the fatigue and pain become more comfortable for you soon. Hope you family understood as most families dont and just think we are lazy and just moaning about nothing. i do hope it is just a part of fibro and nothing else. just dont want to be in a electric wheelchair yet

Hidden in reply to sarahannsmith_1984

Yeah I followed my daughter over to charity shop window and she was looking at chairs for me lol I thought she seen nice dress or handbag,she said it'd do for when I start to get sore&there after while out.

I experience the same thing often. Left exusted after a short trip struggling to manouver. Just try to keep active controlled breathing may help you,wish you well.x

Hidden in reply to SweetChillipepper

Manovering is big thing for me to


The fibromyalgia unfortunately

Well I believe it's another part of fibro. My legs& feet have felt like I have 50 pound weights holding me down. In the beginning 15 yrs ago after chemo,I thought it would go away. It didn't. 6 neurologists later I found one the did a nerve conductor test on me & called it "Peripheral Neuropathy . See if you can get those stationary bike pedals& do it while sitting on chair or sofa. Start magnesium spray ( online) .Stop or slow down on sugar. Bless you & hope this helps.

excersise even a little tends to leave me in pain. i have tried the spray and it dosent seem to do anything. i am on slimming world but any tips on reducing sugar or stopping it would be helpful.

Dear Sarah, I know nothing much helps but when I control my sugar intake it works. See if you can get on a site in U.S. called " Fed Up With Fatique ". I know that DRibose powder 1000 × 3 a day helps with the heavy burning & energy level.,I get mine on Amazon or E-bay. Look on Pinterest for healthy options to sugar & cut. out alcohol .Pinterest has lots of recipes with special diets for Fibromyalgia/ neuropathy. Do you take the supplement Alpha Lipotic Acid? I know it's a lot to do but try it . Also therapeutic yoga has helped me enormously. Don't give up! 💖

never heard heard of it but will take a look

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