Hi everyone, I’m new here. Thank you in advance for reading this long post!
I have just been given a telephone diagnosis of fibromyalgia. This is following 3 months of pain, IBS and kidney pain for which they cannot find a cause.
I have been tested for RA, my ESR and CRP results are slightly raised. But all the GP’s have concluded without seeing me that it’s fibromyalgia, I guess because I have a history of anxiety and depression.
I have been shielding during lockdown and have been feeling pretty positive. I have been trying to use my time effectively and planning for a better post lockdown future.
However in the last 2 weeks my symptoms have become more intense. They include:
Tingling around my eyes,
Pressure sensation in both temples but worse on my right side,
Scalp tenderness on the upper right side of my head,
Bulging, pulsing sensation in temporal aorta along hairline on right side of face above right eye,
Chest pains (stabbing and dull ache but predominantly left side of chest)
High Blood Pressure,
Swollen legs and ankles with pitting.
In February I was being checked for a suspected arrhythmia caused by medication I was on which has now been stopped. I am only 44, but have a family history of fatal cerebral brain haemorrhages that may indicate a genetic predisposition to temporal arteritis.
I have not yet had the arrhythmia checked due to lockdown. This week alone I have had paramedics out and a further incident where I had to attend A&E following a call to 111 who advised me to go in because my BP was so high. I did not have a history of hypertension before this.
On Thursday afternoon I went for a walk, I was with my son and we were only out for 5 mins before I had to turn back due to worsening chest pains, racing heart, palpitations, dizziness, sweating. On Thursday night I took 1 300mg aspirin to see what would happen. I’m not allowed to take aspirin because I have gout. I was previously taking ibuprofen and paracetamol which did not help.
Since Thursday night 75% of my pain disappeared and my BP has started coming down from 183/114 to 150/100. The pulsing sensation in my temporal artery on the right side of my face has also stopped.
Am I going crazy? I’m being told by my GP’s that I must be anxious which I do not feel like I am. I also do not feel depressed. Could this be something else? The GPs no longer want to discuss this with me and feel that I just need to take the medication prescribed, but I’m flummoxed by the aspirin and how most of my pain has now gone.
Any insight would be greatly appreciated.