Doctors who dont recognize fibromyalgia - Fibromyalgia Acti...

Fibromyalgia Action UK

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Doctors who dont recognize fibromyalgia

zenriley23 profile image
9 Replies

Good morning. On 3/4/17 I was taken to the ER via ambulance for an asthma attack. I was attacked earlier that day which caused the attack. While getting checked out, I told the nurse to stop touching my left arm with the bp cuff because my arms were cramping and it was hurting. At this time my fingers were oddly pointed due to the cramping. She then put it on my right arm same thing. As I am yelling quit touching me you are hurting me, the nurse continued getting my bp. At this point I am in agony and unable to move either arm. Long story short. Doctor comes in said he was cutting me loose because nothing is wrong with me. He doesntbelieve in the fibromyalgia hype. I asked for a patient advocate. They sent me another nurse. At this point my jaw, chest, and neck area were cramping and tingling . They closed the door and pulled the curtains. I had no call bell no thing. When the original nuts came back in I said all y'all had to do was call my doctor to verify my illness and help me. I asked for something to relax my muscles she said they didnt have anything to give me. I had to beg her to look in my nag to give me one of my muscle relaxer. This is when she realized I wasnt lying and she was so sorry. We checked out arms still unable to move. My cousin drove me to MUSC hospital. They checked me out did what they needed to do with no problems. Fibromyalgia is real. I am going to the local news stations because the law firms said malpractice is hard to prove and very expensive unless you lose a limb or die.

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zenriley23 profile image
zenriley23
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9 Replies
Robbie138 profile image
Robbie138

My Goodness sounds like my hospital, I had a sore shoulder for a few weeks, drs weren't listening so went to hospital. told me I had tennis elbow and this isn't the place I come for something like that. Went home and put up with pain for few more days, had to get locum in she sent me straight to hospital and I ended up fighting for my life in ICU. I got all my records when I recovered a year later and no-one would look at the case.

zenriley23 profile image
zenriley23 in reply to Robbie138

What is the use of getting a diagnosis if other physicians won't recognize it? Sometimes life just sucks

Hi hun, can I ask whereabouts you live?> there is a system in place to complain about doctors and staff who dont obey the"NO" word, yes hun you are right fibro IS real you probably went to a very primitive hospital ;they do still exists, but write in to the chief and make serious complaint, ask your g.p if they can inject your shoulder a.s.a.p. and don't take no from Cruella de Ville at your reception insist you are in bad pain..

zenriley23 profile image
zenriley23 in reply to

South Carolina roper hospital

Janet28 profile image
Janet28

Good Morning zenriley23 wow that's horrendous my friend & I'm sorry you were treated in this way. You must surely complain, make sure you have date and times of everything so they know the staff that were on duty and everything that was said. Most hospitals have a pain management team that work with people in chronic pain, one of those conditions being Fibromyalgia, so how on earth they can have this attitude about Fibro is beyond me, I bet the Rhuematology department would be shocked at your treatment. I wish you well in exploiting your situation and the treatment you received & do let us know how it all goes,

Peace, luv n light

Jan xx

Sheila-Squirrel profile image
Sheila-Squirrel

Make a formal complaint to your local CCG and the GMC. There are protocols that haven't been followed. The doctor involved has obviously ignored his hypocratic oath. I'm glad to hear you finally got the treatment you needed but it should never have happened. I'm saddened as a former nurse to hear of such poor patient care.

BlueMermaid3 profile image
BlueMermaid3

Hi there

I agree that you have been treated appallingly. I had a feeling you were in the United States.

Unfortunately we wouldn't know what the reporting procedures are, as being in the US it would be completely different.

I hope you are able to find out who to register a complaint with.

Wishing you much peace

Lu xx

Sewnsew profile image
Sewnsew

When I started nursing 40 years ago MS patients were not believed, they were thought to be putting it on! Now it can be the same for us Fibros! Let's hope it doesn't take 40 years for us to be believed, I'll be long gone!

TheAuthor profile image
TheAuthor

Hi zenriley23

I really am so gneuinely sorry to read this my friend, and I am flabbergasted that there are still doctors and hospital that operate in the Victorian era of mentality! I want to sincerely wish you all the best of luck and please take care of yourself my friend.

All my hopes and dreams for you

Ken

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