New to this.: Hi i am 62 years old and... - Fibromyalgia Acti...

Fibromyalgia Action UK

59,987 members67,154 posts

New to this.

7 Replies

Hi i am 62 years old and for the last year have been experiencing aches and pains in my body, especially my back, hips and legs. Have been on various meds but doctor not diagnosed fibromalgia. Last weekend things were really severe, i had excruciating headaches and nausea and was admitted to hospital overnight but discharged eventually after mri as nothing found. All my symptoms seem to point to fibromalgia, the pain, headaches, hearing disturbance and absolute fatigue, no energy at all. I am so exhausted but as soon as i go to bed my whole body is restless and aching with cramp like pain. How were you able to get your doctor to diagnose your problem as fibromalgia and what did he prescribe.

Many thanks for listening

Carol

7 Replies
honeybug profile image
honeybug

🤗♥️😘🙏🌿🌸🦋🕊

Catsnoop profile image
Catsnoop

There is an 18 point trigger test that can be done to help diagnose fibromyalgia, but other than that your doctor has to rule out all other possibilities, so expect to go for a few tests. The first thing my doctor did was prescribe amitriptyline to help with sleep. With fibro, we don’t get into stage four sleep so our body doesn’t recover each night as it should. Amitriptyline helps our brain get into this stage of sleep. The doctor should also be able to prescribe some painkillers but be careful, they all come with side effects so it will be a lot of trial and error. I also have a magnesium spray for under my tongue which stops the feeling of cramps and restless legs at night. Just google restless leg spray and you should find something.

For me, someone had said in passing that what I had sounded like fibromyalgia and I had never heard of it before. I researched it and saw that I had just about every symptom so I went to the doctor with this information. He agreed but I had to go through the other tests to rule out other problems. Doctors just don’t have the time to know everything about everything and if you take your research to the doctor it may help x

Catsnoop profile image
Catsnoop

It is still used in NZ as a guide, and can help focus research on what is going on. I had it done again six months ago. I’m not saying it is the ultimate test but I think it still has some value.

sesorenotseht profile image
sesorenotseht

Catsnoop reply is spot on Carol. Fingers crossed its not early signs of fibromyalgia though but yes there are a number of similarity there :(

Julesubu profile image
Julesubu

Doctors need to rule out Rheumatoid arthritis, polymyalgia etc if all these prove negative then usually put down to FMS. Theres not much confirmed info on why get it or proven therapies but basically we get fed constant pain signals even when no injury present and at night we rarely reach the stages of sleep where body repairs itself so bit of viscous cycle.

thankyou everyone for your replies and info. I have an appointment for blood tests on thursday morning and a prescription for amitriptyline to help with my restless legs at night and maybe help me get some sleep. I will keep you updated and carry on reading everyones stories as it helps.

jumpingfrogs99 profile image
jumpingfrogs99

iv had fibro for 20 yrs , was diagnosed after 7 yrs , meds no good for me as i am to sensitive so i use topical pain lotions , and i take cbd oil its still tough but better than with out

Not what you're looking for?

You may also like...

New to this !!!!! And scared

I am scared to death with all this that's going on, my doctor has said he is sending me to see a...
XmarciaX profile image

New diagnosis

Hi everyone. I'm new here, and this is my first post. So I have just recently been diagnosed with...
Natj profile image

Symptoms of Fibromalgia

I have recently been told by my McTimoney Chiropractor That she thinks I have Fibromalgia. I felt...
debz0705 profile image

New at this

Ok so I only got diagnosed last week by a rhematologist, so far had two appointments at the...

New to all this - hello!

Hello I have literally just been told I have fibro as it is the only diagnosis left. I have had IBS...
hf1981 profile image

Moderation team

See all
Hazel_Angelstar profile image
Hazel_AngelstarAdministrator
Lynda_FMA_UK profile image
Lynda_FMA_UKModerator
Sarah_fmauk profile image
Sarah_fmaukModerator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.