Burning hot hands! : Hi, I've recently... - Fibromyalgia Acti...

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Burning hot hands!

Crochetmakes profile image
15 Replies

Hi, I've recently joined but wondered if the "hot hands (occasionally feet) are part of Fibro. It happens unpredictably, I get heat rushed to both hands, they go bright red, even the palms. It feels like they are swollen, tight, can't bend my fingers, cant hold anything. They aren't swollen visually, but the feeling is unbearable. Probably lasts 5-10 minutes, happens at least once daily. Any advise/similar experience would be lovely. Thanks.

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Crochetmakes profile image
Crochetmakes
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15 Replies
YASMINTINA profile image
YASMINTINAFMA UK Volunteer

Morning and welcome, there does seem to be so many symptoms that come with fibro, not experienced this myself but you could always speak to your doctors surgery for a piece of mind. Xx

Crochetmakes profile image
Crochetmakes in reply to YASMINTINA

Thank you, always useful to ask at least xx

ellj profile image
ellj

This is something that happens to me but I find my feet are worse than my hands.

Crochetmakes profile image
Crochetmakes in reply to ellj

I definitely experience both but for some reason the hands appear to suffer the most.

Hazel_Angelstar profile image
Hazel_AngelstarAdministratorFMA UK Staff

I get this but it's usually my feet. I was told by pain clinic it is a type of neuropathic pain, and likely related to fibro pain signals going wonky.

Crochetmakes profile image
Crochetmakes in reply to Hazel_Angelstar

Everything appears to be linked, especially the wonky!!

Oscarlola profile image
Oscarlola in reply to Crochetmakes

Hi I get the hot hands and feet it's horrible there are many symptoms of fibro they just seem to be adding on x

Crochetmakes profile image
Crochetmakes

Sleeping with feet out of the bed has become my new norm!

030973 profile image
030973

Good morning, l do get the same hot hands and feet and never knew the cause, and l am diagnosed with fibromyalgia, now you mentioned it l believe it is a likely link for some fibro sufferers

Patdoyle profile image
Patdoyle

Yes I get this too hands and feet red and burning and hands feel slightly swollen. Never got to the bottom of it.

Mollycooper11 profile image
Mollycooper11

I get this but it is my feet. At night I have to try to go to sleep with cold packs. Not pleasant especially as it's Winter here.

Crochetmakes profile image
Crochetmakes in reply to Mollycooper11

The feet! Standing on my cold kitchen floor tiles!

Chrissy08 profile image
Chrissy08

Hi Crotchetmakes I get very hot hands I swear I could cook an egg on them !!! The pain is so intense and I literally can not do anything to stop it . My muscles and bones ache like hell .I have tried cold packs , hot packs , ice cold water and ice cubes in a glass , even the glass on my patio door , wet tea towels wrapped up on my hands and many more

methods to no avail .

It usually starts around 12am and can last 8-10 hours and I am at the point that I could chop my hands of as so painful . My feet and legs do the same thing and I can’t rest , sleep , sit , stand it’s so unbearable for hours and hours . I am also diabetic so I do have neuropathies which just adds to a vicious circle .

My Osteoathritis in my hands is also bad and my fingers too so all combined makes it so hard to cope .

This all used to happen every couple of months then it started to come 3 to 4 weeks but more recently it’s every 10 days and I don’t know why the changes have occurred other than my morphine patches having had to be stopped because they were burning my skin badly , I had been on them for 12 years !!!

I feel sometimes I am going crazy .

I think you just have to try and find what works for you .

Crochetmakes profile image
Crochetmakes in reply to Chrissy08

Goodness that sounds awful, good luck with any remedies. I have hot hands almost daily, lasts for a while and can be hugely limiting. Comforting to know I'm not on my own. I'm sure they dont but sometimes cant help but think my family thinks I'm crazy!

cmarie profile image
cmarie

I too will get on occasion burning hot feet. Doesn't affect my hands much. Just another lovely symptom of FMS.

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