CBD oil : Hello guys Thoughts and... - Fibromyalgia Acti...

Fibromyalgia Action UK

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CBD oil

Becks2020 profile image
47 Replies

Hello guys

Thoughts and experiences on CBD oil please ?

Also best place to get it other than Holland and Barrett?

Thank you !!

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Becks2020 profile image
Becks2020
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47 Replies
Becks2020 profile image
Becks2020

Nothing there Zoonie? Oh sorry I didn’t realise my mistake

Becks2020 profile image
Becks2020

Yes thank you

Hazel_Angelstar profile image
Hazel_AngelstarAdministratorFMA UK Staff

I use CBD oil, took me well over a year of trial and error to find a brand/dosage that helped me . Do your research, and be careful that you do not end up paying over the top for a low quality product as a lot of the people selling it are just jumping on the bandwagon to make money x

Painny profile image
Painny in reply to Hazel_Angelstar

Shame it’s too late otherwise I could have got a PHD in cbd oil 🗣

blissann9 profile image
blissann9 in reply to Hazel_Angelstar

Never tried CBD personally, but having read about the benefits on vitalityhealthcbd.com/ , I know for sure that if faced with any chronic condition, I would be highly motivated to find any alternative, including diet & exercise, chiropractics and massage therapy, counseling and support groups, and alternative medicines like CBD, before going on a long term prescription drug.

Hazel_Angelstar profile image
Hazel_AngelstarAdministratorFMA UK Staff

Also, just to clarify guidelines on sharing info on products & services, you can mention the name but you cannot post any links etc. Also repeated comments promoting the one product may be seen as promoting it.

10. Promotion of commercial products & services is not allowed. You may refer to a product or commercial service by name as a useful resource but you must NOT post a link. You can invite people to use the message system to obtain the information from you if needed. Repeated posts about the same product may be considered promotion and could lead to posts being deleted or your account being restricted. Posting about helpful, supportive or informative resources that are freely available IS allowed and links can be given.

10a) This extends to posting pictures of your commercial products and/or services including company logos or any recognisable company image

Becks2020 profile image
Becks2020 in reply to Hazel_Angelstar

No has done this?

Hazel_Angelstar profile image
Hazel_AngelstarAdministratorFMA UK Staff in reply to Becks2020

Hi Beck's, I was just sharing the guidelines for information. No-one has broken the guidelines on this post. XXX

Becks2020 profile image
Becks2020 in reply to Hazel_Angelstar

I panicked for a moment xx

Hazel_Angelstar profile image
Hazel_AngelstarAdministratorFMA UK Staff in reply to Becks2020

Sorry - that wasn't my intention. Just wanted to highlight that mentioning a product by name is ok, but links etc should be provided by pm

Marty52 profile image
Marty52 in reply to Hazel_Angelstar

Hi. In that case, can you tell us the brand/strength and supplier of the CBD that you have found helpful, please?

It may help avoid some expensive mistakes! 🥀

Hazel_Angelstar profile image
Hazel_AngelstarAdministratorFMA UK Staff in reply to Marty52

I can share what I use .... But because it helps me does not necessarily mean that it will have same benefits for you. I'll pm you details.

Marty52 profile image
Marty52

Thank you, Zoonie. I'll do that! xx

Marty52 profile image
Marty52

Thank you, Zoonie. How long have you been using it and how much relief has it given you?

Marty52 profile image
Marty52

Thanks again, Zoonie. Here's to finding some relief! 🍷

CrystalGecko76 profile image
CrystalGecko76

I too use the brand mentioned the 5% one...but so far it hasn't helped my fibro but has helped with the over sensitivity in my toes and feet...they are still fairly painful but not as bad. I pop it in my coffee in the morning but also have the orange flavour spray I can use on the go which is much more pleasant on the go than the oil.

Badbessie profile image
Badbessie

From looking at comments on this and other groups if you are going to try it go for a high percentage good quality oil. People report that lower percentage oils are of no benefit at all. Sadly the higher percentage oils tend to be expensive.

Gingerapple profile image
Gingerapple

Hi 🍀☕

The best CBD Oil is from Grape Tree. 500mg 10ml bottle £35. Expensive but good and real and it helps whatever you have. Some people it doesn't help, but it helps me. Have a good Tuesday 🍀💐🙏

Boyboy15 profile image
Boyboy15 in reply to Gingerapple

Has this got THC in it? X

Gingerapple profile image
Gingerapple in reply to Boyboy15

No, sadly it's illegal here!☹

Gingerapple profile image
Gingerapple

You should never but anything from Holland & Barrett, it's still true today their stuff is not good!

CHutchinson0308 profile image
CHutchinson0308

I have found that vaping CBD has really helped me, not so much with the pain but with muscle fatigue.

I would definitely recommend it, but as others have said it is trial and error and I use a lot of drops in mine so u have to increase to a level that suits u

Good luck x

Gingerapple profile image
Gingerapple

Hi Zoonie, yes!! It's really a shame, a small 2-3% would really help us better!!👍😊

Usandthem profile image
Usandthem

Hi Zoonie could you share where you buy from and the %? Its a shame we cant get prescriptions like America 😔Thankyou I'm looking into buying it hopefully will help to cut the dosage of oxycodone I take currently. Thanks again love and peace 💕✌🌈

Pabba profile image
Pabba

Hi Becks.

Don’t bother, it’s all hype. For you to get any noticeable effect at all you would need to be able to buy the very very strongest strength made, which you can’t. If anyone tells you it actually really helps in any way is only experiencing the placebo effect. Of course, we all want so desperately to believe that there is something out there that will give us a little relief and unfortunately the entrepreneurs have latched on to this product. The things you read in the news where the likes of epilepsy sufferers are being helped with CBD , they are taking doses very much more potent than are commercially available. There is a wealth of information out there, type in ‘best CBD oil’ and choose the product that comes up number 1 and buy the strongest one available. It will cost you up to £300 for a tiny bottle that might last a few weeks , but buy it and try it. If it feels as if it’s helping then good, placebo effect or not! I’ve been there, done that and got the tee shirt.

in reply to Pabba

From others I have known who have tried CBD Oil for their pain and anxiety it has actually worked. Therefore it was not a placebo effect for them and they swear by it

Usandthem profile image
Usandthem

Thankyou Zoonie I'm on the case as we speak, hopefully get something that may help cut these oxycodone down! They can be brutal on your memory, aanility to write a coherent sentence (actually coherent words also🤣) ability to read without having to go back over the same line 4 or 5 times! At this point I will try anything, has taken me ages to write this reply had to go over every word, where is autocorrect when you actually need it🤪🙈I will let you know how I get on! Love and peace ✌💕🌈

Usandthem profile image
Usandthem in reply to Usandthem

I think I have broken the rules about swearing! Sorry I have removed the word, if it is something else could you be more specific? Love and peace 💕✌💕

Usandthem profile image
Usandthem in reply to Usandthem

Or should have made post more private perhaps???? 💕✌

TeoAde profile image
TeoAde

Try pinnacle hem cbd oil cold compressed, for me is working.

Take care.

TeoAde profile image
TeoAde

I do understand your point of view , I know our body react different to different treatments🙂.

I tell this oil works not only for me but for other with Fibromyalgia near my city . Person who was in wheelchair now is walking and working because of this oil. Others are much better with anxiety and pain as well.

I did try others cbd oils and for me did not work but I know for others works🙂.

Take care and have a nice day.

Julesubu profile image
Julesubu

Clever botanics.com can get 25% off using fibro25 code. Helps my myalgia but not arthritis pains.

Gooddaysagain profile image
Gooddaysagain

Believe it or not, Hemp Seed oil (rather than CBD oil) can help with FM too.

Firstly, it is high in Omega 3 Fatty Acids which research has shown to relieve (the symptoms of) inflammation in the joints that, although isn't always associated with FM, is one less (lower) pain to deal with.

Secondly, it increases the efficiency of CBD oil when you first start to take CBD. Amost like having the main meal to take you hunger away, followed by CBD as the treatful pud which you can take your time to enjoy!

I used to use CBD for pain relief/reduction, until I found other routes to that. Now, I mainly use CBD to reduce levels of anxiety and stress as I know these are a major link in my flare-up pain cycle.

I also tried out lots of CBD oils, looking for words such as 'broad spectrum' and 'terpenes'.... what seemed to coincide with the ones that worked best for me. Quality seemed to be a better indicator of effectiveness for me, than necessarily the claimed 'strength'.

I'm so pleased the misunderstanding about brand names has been clarified (Thank you, Admin!), so that Zoonie and others can share their findings with the group.

Good luck, Becks, along with warm and soothing hugs, dee x

P.S. You can get good quality Hemp Seed oil in capsules, the purer/darker green the better.

Personally, I prefer Biota organic hemp seed oil in a bottle, which I drizzle on salads, etc.

It's a bit of an acquired taste and NOT for cooking, but I've found it works really well alongside Turmeric with Black Pepper to reduce my aches.

PaintedMagnolia profile image
PaintedMagnolia in reply to Gooddaysagain

Your information being given is exactly correct. Hemp seed oil and even Black seed is often fantastic for FM. One thing to consider especially for putting in food is to use Black Seed which is yet another component of Cannabis. Combined with various essential oils or standing alone Hemp Seed or Black Seed Oils make excellent alternatives.

If you desire more information on any of those products please let me know. I am here to help. God bless you. Praying you find relief.

Gooddaysagain profile image
Gooddaysagain in reply to PaintedMagnolia

Is the 'black seed' oil the same as the nyger seed I feed to 'my' goldfinches.

I have read some good things about it, but have so many oils on the go at the moment that it'll need to hold loads of benefits to take up more room (only joking!)

What's the greatest benefit to your own health that you can attribute directly to the Black Seed oil?

Thank you for your blessings,

in respect and friendship, dee x

Gooddaysagain profile image
Gooddaysagain in reply to PaintedMagnolia

Thank you for the 'like'.... it reminded me that I have a small bottle of the Black Seed oil. It is expensive... so, what's the best way to use it, a little at a time?

Huge hugs and many thanks, dx

Emz86 profile image
Emz86

Local dealer 🤣🤣 only joking its a hard one because there is so many different brands. If you get the correct one it's perfect for pain, anxiety. It's great stuff if you get a decent one xxx

Mark8 profile image
Mark8

My local chemist sells it might be worth looking at yours see what thay advise and what has been working and what have not good luck hope you find something to help your self x

Bluenordic profile image
Bluenordic

Hi I use it. It doesnt take my pain away but when I do sleep I get a much more restful and longer sleep when I use it. I get mine from CBD brothers online.

PaintedMagnolia profile image
PaintedMagnolia in reply to Bluenordic

We are not allowed to make full medical claims though many of us through experience and research are very knowledgeable about the health benefits of CBD.

I can tell you that it is in print that you cannot over dose from CBD. It does not have the THC which is the component of cannabis which causes psychological changes and gets the "high" or altered effect.

Make sure no matter where you get your CBD thay it is Full Spectrum or it is not going to be working for you as well. Also check labels before buying to make sure there are no added products unless you're getting some that combined with various essential oils that gives best results for your illness and symptoms.

If you or anyone here would like to have more information and sometimes need to know how to get CBD or which products are going to greatly improve your situation or symptoms.

Manaus profile image
Manaus

Definitely do your research, look at the lab reports to make sure. There is lots of info on a Facebook Group called CBD Users UK. There is always someone who has similar problems. They are not allowed to advertise but still very informative.

You have to start low and build up to find the appropriate for you.

PaintedMagnolia profile image
PaintedMagnolia in reply to Manaus

If you would like to have specific information for exactly what your symptoms are and how useful CBD is, I will be more than happy to help you

I am in the USA however I also have numerous autoimmune disorders that are better with CBD.

And, we are allowed to advertise, however I do not want to violate any rules or standards here in our community though I am genuinely concerned and able to help with information and products. I look forward to hearing from you soon.

PaintedMagnolia profile image
PaintedMagnolia

Full Spectrum CBD should be much stronger than what you mention and if anyone isn't sure,it is 100% safe and you cannot overdose on CBD.

If you desire more information please let me know. They didnt call this a miracle working medicine for no reason. Pray you find what you're looking for.

AlfieG21 profile image
AlfieG21

didn't help me tried all sorts nothing helps 2😥

Gooddaysagain profile image
Gooddaysagain in reply to AlfieG21

Oh Alfie! I am SO sorry that you have found nothing that helps you.

I hope this doesn't sound as if I'm trying to teach you something you probably already know, but...as it helped me...... here goes:

There is research to show that -

- the more you find out about what causes your pain, the more in control of your pain you feel,

- the more in control you feel the less stressed you become about that pain

- the less stressed you become, the less your body sends the signals that tell your brain "you are about to do something that'll cause you more pain" (or exhaustion)

- in response to those neural messages, your brain tells your body to give you a taste of that potential pain in the hope it'll stop you, or slow you down. It IS real pain - you're feeling it - but it's not easily the sort of pain most painkillers can reach.

The research article I found most useful is at (sorry, I can't do links yet... )

archives-pmr.org/article/S0003-9993(11)00670-8/fulltext

(it's free, you don't have to sign up for anything and no-one tries to sell you anything..... simply information worth having).

No one has found the cause of FM yet, but there's a lot you can do to fight back against some of the 'nasties' it deals out to us; which may be due to your being:

- over-stressed (emotionally and/or physically),

- over-using bits of your body that are, or have been, hurt (now - i.e. acutely, or in the past - i.e. chronic/recurring),

- getting too cold or too tired

- driving for too long

- repeating small activities that require pressure

- taking on tasks that are too heavy or too big (for who we are now...)

- short of good, restful sleep

- short of necessary nutrients (either because you can't afford to eat them, or because your body can't digest or metabolise them through having a leaky gut, etc.)

Tick off from this list all those that apply to you, add your own if necessary, then have a go at shortening the list - one by one - enlisting all the help you can.

I'm assuming that, as well as trying pharma meds, CBD oil and other 'supplements', you haven't found your place of peace yet. I hope that, by taking back the bits of your life and your body that YOU CAN control, you will get nearer to it.

Hugs, dee x

Gooddaysagain profile image
Gooddaysagain in reply to AlfieG21

The research paper I was referring to is called "The effect of Neuroscience Education on pain.... " etc.

I found it by accident while Googling for research on the 'other' NE (i.e. Norepinephrine - noradrenalin) whilst coming off Duloxetine, a nociceptive pain inhibitor that works by allowing the body/brain improved access to Serotonin and Noradrenalin (old name, but habitual). I wanted to know how the med worked, so that I could watch out for the impact on my body and its FM symptoms once I'd withdrawn from it.

It's a bit of a slog to read, but worth it if it sparks your interest in finding out more about what's making you feel so carp and/or gives you any idea of what might help.

Good luck with that, (and please tell me to go away if this isn't helping!)

dx

AlfieG21 profile image
AlfieG21 in reply to Gooddaysagain

thank you so much for your reply still trying to find answers I have just joined a gym for the first time in my life trying yoga but there is a jacuzzi which is the best 🤗🤗🤗

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