Hi guys do u get a fear of the unknown pain everyday and live on eggs shells for new pains mines mains chest and lower back ?

Sharp chest pains and lower back dull ache every day pain movers round I hate the pains deep in shoulders xxx hope you ok u lovely lot just need some advice on the chest pain all results normal but I get stabbing pains xxx

[Hidden]

Thanks mr z I'm learning to train my brain in being as strong as a lion even if my brains burning with pain I will learn to be an overcommer xx

[Edenstar]

Everyday!! I swear I wake up in the morning (if I’ve even slept) and I can’t move at all for about 45 min xx

My three youngest children, bless them have begun to try and talk softly until I am more me again xx I’m always worried if the pain will be worse the following day, but it’s like a vicious circle........

You are in pain , so you worry about more pain but worrying flares the pain again and so on.

I can completely sympathise with you xx

Sending big gentle hugs

Edenstar xx

[Hidden in reply to Edenstar]

Lots of love to u hunny I also have 3 small children it's so hard I wake up anxious like I've been in car crash it sucks also covered in sweat as I have night sweats xx

[Hidden in reply to Edenstar]

It's just concerning because i honestly feel like i have a deadly disease of some sort eatting away at me the night sweats the pain the stomach issues the foggy head and no one medical has said this is because of fibromyalgia my doc told me to google as he doesn't no much and I've been waitting a year its tortuous lol x

[Edenstar in reply to Hidden]

I understand babes xx it is hard, scary and lonely even when you have your family there.

The night sweats are generally because of your body not being able to control your body temperature 😔 I’m the same ...... I have fans throughout the house for when I’m sweating badly xx

My partner hates it hahaha but it’s the only thing I’ve found to help xx but my body gets confused because I seem to sweat from the neck up and waist down but my torso gets so cold!!! So I’m sat there in front of a fan with a cardigan on 😂😂😂

[ShelWhitt in reply to Hidden]

Total nightmare. Doc telling you to Google. Fibro friends telling you to keep off. If only we had answers. Had it possibly 40 years Spent years going to physio, taking painkillers, acupuncture, hypnotherapy, all for back, neck and head pain. Nothing helped. Eventually paid , 10 years ago, and after 2 years and a 12 months false start with being treated for polymyalgia, was told it was fibromyalgia and referred back to GP. Never in all that time was my thyroid ever questioned, even though there are lots of overlapping symptoms. Nor was my hysterectomy for endometriosis ever brought into the equation. Am now going down the checking the thyroid route as I feel worse now than I ever have and my thyroxine bloods have been all over the place for the last year, with dosage the lowest ever. Might be a total wrong road, but I feel I need to try something. No one listening or hearing to the pain I am in.My best friend is my hot water bottle, and pacing! when I get chance. Good luck and best wishes. xx

[Hidden in reply to ShelWhitt]

Hi shell I totally no the feeling I hope u will get awnswer a very soon cutting out sugar has helped me lots and diet changes if you haven't all ready and pain killers hot water bottles my friend to xx

[Badbessie]

Hi I suffer from chest and pain pain nearly continuously. The most important aspect is that other causes should be ruled out and fibromyalgia is to blame. I know that my pain is worse if I do not pace myself and if I do not keep moving. As Zoonie states distraction can mitigate some of the pain. Also learning what triggers flairs of the pain as pacing and realistic goal setting can help reduce pain levels. For example Tuesday is my front room cleaning day. Ten years ago it would have taken an hour now it takes me all day. I do it in little bits with plenty of rest in-between bits. In many ways living with chronic pain requires a change of mind set and learning not to be hard on yourself.

[Hidden in reply to Badbessie]

Very true I will have to change a lot of things I'm still waitting for diagnosis so every little pain I get I panic when I'm diagnosed I will feel much better x

[Hidden]

U legend x

[Midori in reply to Hidden]

I agree with Zoonie. I treat the disease as my enemy; I do not live in fear of it, I fight it every day.

[Hidden in reply to Midori]

Your a warrior I'm trying my very best xxx

[Patdoyle]

I understand how you feel. When I started with all the symptoms I would go into terror mode at each new symptom. That was 10 years ago. I now just say to myself “here we go again” and I consciously push the fear away. Doesn’t always work but it does more often than not. I have menieres as well as fibromyalgia and for 2 years stayed in because I was too scared to go out in case I had an attack. I sold my car got my groceries and shopping online and refused to leave the house unless for appointments. Before I got sick I used to live in the gym and was as fit as a flea. I really resented not being able to do very much. I was so angry. Eventually I realised I had to go out or I would go mad. I took baby steps and last year even bought another car. I don’t go far but I go for a walk on the beach most days and it lifts my mood. Still got the pain, still walking like a drunk but I feel so much better in myself. I think you have to adapt slowly to not being able to do what you used to. Bad Bessie is right saying you have to change your mindset. Not easy but necessary. Big gentle hugs.

[Hidden in reply to Patdoyle]

Thanks pat really means a lot got appointment in March so hopefully get diagnosed then been a year of terror but once I no il manage zxxx

[Hidden in reply to Patdoyle]

Hi pay as you may no I'm still waitting for diagnosis 3 doctors have said it's likely fibro and I tick every box hope u don't mind me asking ,will the fear eventually get better when I'm diagnosed I also have terrible night sweats xxx❤️

[Patdoyle]

Lauren I also have night sweats which wake me up. Even in winter I sleep with just a sheet! You will feel better with a diagnosis. The doctors rule out anything else before you get the fibromyalgia diagnosis. I went to see a neurologist privately because I was convinced I ticked all the boxes for MS. He did an MRI brain scan but before he ordered it he told me he was only doing it for my peace of mind because he thought I had chronic fatigue and possibly fibromyalgia. I’d never heard of either! Went to rheumatologist on the NHS and she said I had fibromyalgia. Try not to dwell on the scary stuff and feel free to message me anytime. Don’t google symptoms either just let the doctors diagnose you. I used to google and make myself go into panic mode.

[Hidden in reply to Patdoyle]

You are a god send thank you pat xxxx been so alone thank u x

[Patdoyle in reply to Hidden]

You are not alone private message me if you need to. I’ve felt so low at times. X

[Hidden]

Very true thank God for this forum I was calling Samaritans at first 😂😂😘one day I will laugh I hope x

[Hidden]

Amen to that 😉❤️

[Hidden]

I know what it's like, when one fearful or morbid thought comes to mind another follows then another and so on, it's very hard to change your mindset! I know though that taking part in the forum instead of just reading is helping me no end! People on here are lovely helpful truthful and kind☺️You'll soon get your diagnosis😁In the meantime stay happy healthy and safe x

[Hidden]

Well as healthy as you can be🙈

[Hidden in reply to Hidden]

Thanks for your response xxxxx so glad to have this forum x