The lack of medics not recognising Fy... - Fibromyalgia Acti...

Fibromyalgia Action UK

59,451 members66,497 posts

The lack of medics not recognising Fybro!

Gwen888 profile image
13 Replies

I said to my Occupational Therapist, I have Fbromyalgia and she just laughed at me and said thats like M.E. Just another made up non proveable condition like back pain. I lost my rag with her and sent her packing with her OT student.

Written by
Gwen888 profile image
Gwen888
To view profiles and participate in discussions please or .
Read more about...
13 Replies

So very true. It's as though she just wasn't interested. I wonder how she'd feel in our shoes for a day!!!

bobbybobb profile image
bobbybobb

To laugh at disabling disorders is demoralizing and from a professional, really is a disgrace. Not a good role model for the student. xx

That's awful !

The worse thing is that she had a student with her, who now thinks the same about Fibro!

Glad you sent her packing.

Big hugs

Sue x

Evalee profile image
Evalee

You are so right; she is certainly uneducated and inept in what she thinks she is doing! She should put her tail between her legs and hit the road. Fibro means nerve pain...they are just beginning to find out more about this. She is an ignorant moron and we are sick to death and suffering...shame on that idiot! Report her!

Maximus_DC profile image
Maximus_DC

This is so infuriating to hear. I’m sorry that you had to deal with this but happy to hear you were strong enough to send her packing. The fact that she had a student with her makes her retort even worse. I agree that a complaint should be made so that she doesn't think that she can behave this way in the future. Really disgraceful and this is what we have to put up with on top of the condition. People’s ignorance x

Al10 profile image
Al10

At least she said what she was thinking. Many more keep it to themselves and we are left wondering why they fail to care or help us.

That's disgusting and disheartening how could she dismiss your condition in that way? If only she knew what we go through daily! Report her!!

Midori profile image
Midori

Ok; Is she a Council (social Services) OT, or an NHS one? In either case, complain. She has no right to make declarations like that as she is not a Doctor and is belittling the patient (you). Unprofessional behaviour and if she is also mentoring a student, she is also likely to be indoctrinating the student.

Cheers, Midori

This is disgusting and sadly quite common how patients are treated. I had a surgeon tell me a year ago, my inability to walk and my left arm not working was due to my mental health! He is head of the spinal association for the UK, which is very worrying. He was of course wrong and I now have a legal case ongoing for misdiagnosis. He was so horrible and used my difficult life against me to get me to cry and then referred me to their psychiatrist! Safe to say I didn’t go. And the hospital are backing him up of course 🙄

keep your head held high and don’t let them beat you down 😊😊xx

Gwen888 profile image
Gwen888 in reply to Cathjamesandmatt20

I have tried to the take the medical Mafia on a legal recourse, they used all sorts; they said first that they had lost my medical records. The last was even worse but I am not able to state that as I will upset the moderator/s so I am trying to keep it sanitised.

EBE123 profile image
EBE123

That is utterly disgusting. Did you put in a complaint? X

Gwen888 profile image
Gwen888

I did not complain as she is the one who is helping as Fybro is not the only conditions I have as I suffered disability and trauma in the forces for the DWP. She is an Nhs O.T. I was referred to her by my Pyschologist reffered to me. Not to say my Pyschologist or mental Health Team are any help. One actually worte a letter for the DWP and placed the wrong name and gave the care plan of another patient. Unfortuantely they are all Locums and it appears not intrested in the patient only the money!

Shazzzy profile image
Shazzzy

Good ! How dare she laugh at someone who comes to her in pain, what decent therapist would do that and her medical knowledge is seriously lacking.

You may also like...

Recognising fybro pain

am worried that the pain I've been suffering is something else. I've just come back from the...

Fybro :-(

I have now received this and wanted to ask can anyone advise - Checking PiP score - the back...

Feeling drunk and wobbly! Fybro

to fybro she has no advice she looks at me puzzled like she doesnt onow what to do! I have been...

Fybro and endo at 23, help?

dark. My symptoms have already left me bed bound most weeks,on morphine and having to wear...

Is this what fybro feels like?

and couldn't move with so much pain.. i cannot identify a trigger that made me feel better...or any...