How do you explain: Presently being... - Fibromyalgia Acti...

Fibromyalgia Action UK

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How do you explain

12 Replies

Presently being treated for fibromyalgia as well as seropsitive rheumatoid arthritis and Hodgkin’s lymphoma thrown in. Consultants are panicking a little and trying to treat everything at once.

My daughter is a smart cookie has clearly been reading hospital letters.

Her school phones me asking me to see them, one there they present me with a note from the school wish bin where kids can leave a note if being bullied or have a problem.

It reads. 7 year old needs a mummy and daddy or someone to fix daddy as the doctors cannot. Please help.

Dreading going to see anyone as last time I did this the psychologist burst into tears.

12 Replies
sylvi profile image
sylvi

WOW darling it is not getting any easier is it.xxx

in reply to sylvi

It never does with Zina as she is worried

sylvi profile image
sylvi in reply to

Bless her heart she shouldn't be worrying about these things at her age. Xxx

in reply to sylvi

Hey sylvi I thought that you might be here too

sylvi profile image
sylvi in reply to

Yes darling I am though not very active. I am so sad you have this as well as everything else your going through. Xxxx

in reply to sylvi

I am sure that there are people in worse situations. Shame I arrived at the cottage and it is so peaceful here

bobbybobb profile image
bobbybobb

That's a lot to be taking on board.It must be very upsetting for you also with regards to your daughter writing this letter. Kids sense if a parent is unwell or under going treatments. The psychologist bursting into tears, I don't think that will do you any good when you need to find strength, meaning and purpose at the moment. Maybe another psychologist may be more helpful for your situation. I wish you all the best of luck with your treatment and take care. x

bobbybobb profile image
bobbybobb

Minty1972, I just looked at the heading of your post again. Some teachers have qualifications in counselling. They can sometimes chat to a child and explain to them in a non stressful way, why mum or dad is unwell. You could ask at the school. x

in reply to bobbybobb

I do t do schools as they try to give too much advice sometimes and have already had a runin with one teacher who tried to lecture me in the past until she knew the full situation

bobbybobb profile image
bobbybobb in reply to

With young children you think they are oblivious to what's going on around them but they really do pick up on everything. It's only natural to shield our children but by her letter things must be playing on her mind. It's about picking your words carefully so you can explain things on a level you think she will be able to understand.x

MissMinto profile image
MissMinto

Do you have something called Young Carers in your area?

It’s like a kind of youth club for children of a sick parent run by trained youth workers. They pick the child up from home in a minibus and drop them off later - it gives the child a chance to mix with other children in the same boat so they don’t feel so ‘different’ and isolated from their peers. They get a chance to get things off their chest and talk about their worries in a way they can’t with ‘normal’ friends.

They also do fun activities and trips. My son found it really helpful between the ages of 9-12 and only stopped going when it was deemed “not cool” but it filled a gap when he needed it.

in reply to MissMinto

Thanks I will have a look

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