A long shot

[ShelWhitt]

Hello again to all my new fibro friends. I have really valued your support and advice over the last twelve months, your responses have helped to keep me afloat, and I hope I have managed to reciprocate occasionally. I have had so many problems to deal with on a daily basis over the last year, I was overwhelmed and at breaking point plus I had a couple of really bad flares/crises just before Xmas. Hopefully I am now coming out the other side. Obviously, still dealing with all the day to day stuff, but moving on, I am wondering whether anyone on here suffers with occipital neuralgia, spondylosis and degeneration of the spine, along with everything else fibro can bring. The head pain I have had for 35 years, has always been my worst problem as it effects my thinking, concentration, sight and memory, not forgetting my anxiety and moods, and no medication has helped, only produced more problems with the side effects. I just wondered whether anyone has had nerve blocks, or injections, bottox or anything else that has helped with the chronic pain. Doc won't send me for a scan as she thinks it is just wear and tear. Needless to say, she is not the one suffering. Best wishes to you all. x

[Hidden]

Hi

I'm so sorry you are struggling. I have spondylitis and degeneration of the facet joint. Last week I had a diagnostic nerve block with a bit of steroid , this was to see where my next more permanent (hopefully) procedure is going to be, I'm down for radio frequency ablation, whatever that is. My pain came back well before the 24 hours was up. I will keep you posted. I have many more conditions causing me pain.Please take care of yourself Lynne

[ShelWhitt in reply to Hidden]

Thank you Lynne for caring. I have read lots of your responses on here previously and know you too are suffering, but in spite of that you are always there to help. I hope things are not too bad for you at the moment and that you get some success with whatever new treatment they try for you. Where exactly are you based. I ask because you seem to be getting some action and not just the brick wall - 'its fibromyalgia, there is no cure, you will have to live with it'! that seems to be the mantra of our docs. I will wait to see if I get any other responses. Best wishes. x

[Hidden in reply to ShelWhitt]

Hi

I was diagnosed about 2,5 years ago but feel I've had it longer and it's only now where things seem to be moving!! I live in Castleton Rochdale not far from Manchester. Take care Lynne

[ShelWhitt in reply to Hidden]

OK. Thanks Lynne,

[Hidden in reply to ShelWhitt]

No probs

[Angiejnz]

Golly you must be a really special person to be able to open your eyelids in the morning and get up. I haven't got half the problems you have and still struggle with the eyelid opening. Kia kaha (Maori for be brave/strong, good luck, a fabulous Maori language phrase used by everyone in NZ as it's so powerful.)

[ShelWhitt in reply to Angiejnz]

Sorry Angiejnz, I am not special at all. I am not brave. I do what I do because I have no choice. I have no support so just have to get on with it. My OH is ill with dementia and mobility problems and is relying on me more and more, but he is in denial, and won't admit it, plus he is very stubborn, causing me extra stress I could do without. He knows I am ill, but basically lives in his own bubble, only thinking about his own problems and needs. Having said that he will do little jobs to help, when I ask, i.e. washing pots, peeling veg, etc . which does help a little. My daughters work; have full lives; problems of their own and seem to bury their heads in the sand as far as we are concerned. I think because we are basically still, on the surface at least, functioning, they don't want to acknowledge there is a problem and even if I try to talk to them, they change the subject or tell me to stop moaning there other people worse off than us, and it leads to rows and them storming out. So I don't do it any more. Plus we don't see them very often anyway. When they do visit I put a smile on my face and ask about them and their lives. That is what mothers do. So there you have it. If only I could resolve some of my health problems things would be ok. but that isn't going to happen is it, I am getting worse, hence the questions on here, still hoping for answers. Sorry for yet another outpouring. Now I am going to get a cup of tea and try to face the day with a smile. Best wishes to you all. x

[bobbybobb in reply to ShelWhitt]

I have spondylosis of the neck and it began in my 30's. So I've had it over 20 years. As you know it's a painful condition on top of Fibro as well. In the past I have had physio and try to keep my neck moving. Have you spoke to your doctor about having injection for you pain for the spondylosis. I am sorry to hear your family situation remains very much the same. I wish someone could suggest something to improve your situation so you felt you could talk to your family with more ease. Please take care of yourself. xx