My anxiety is getting the better of m... - Fibromyalgia Acti...

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My anxiety is getting the better of me and my Drs need replacing

ducati76 profile image
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After yrs of messing around on lower rate DLA I have battled for home visits, I was made to go to Stoke for an assessment, my form wasn't even there, I had a bad time in the waiting Rm and the assessor said she'd recommend a home visit and it is finally happening next week on the 11th.to say I'm nervous is an understatement, any advice would be appreciated as I have fibromyalgia, hemiplegic migraines, and a host of other things.x

Meanwhile my Drs still won't take my call for home visits seriously and continue to bulky me into going into the surgery and have just cancelled an appointment as I asked if it could be changed to a phone consultation or home visit as I'm not upto going back in as I was treated in a rude manner when I last was forced to go in.

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ducati76 profile image
ducati76
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FRreedman profile image
FRreedman

Let's deal with the GP first. Write a letter of complaint to the Practice Manager, and cc it to your local CCG (Clinical Commissioning Group). You should state why you are unable to attend the surgery, in person, for your appointments.

Now with the home visit: Firstly, is there anyone (family, friend, neighbour etc.) who could be with you when they come, to open the door and let them in? If there is, great, if not then BEWARE!!!!

DO NOT make or offer them a cup of tea/coffee. DO NOT over dress yourself, or put make up on unless you normally do. You need to let them see you as you are normally and not as though you are going out on the town. They are not interested in what illnesses you have, or what medication you are taking, all they are interested in is how you look after yourself (shower/bath and dressing. How far you can walk, before you are in pain). As a rough guide, if it hurts = you can't do it, if it makes you too tired = you can't do it. That is what you have to emphasize, all the time, it is too painful to ….If I do that, I have to go to bed for the rest of the day, because I am exhausted. Good luck, and keep us posted

johnsmith profile image
johnsmith

I can be diplomatic or I can say how it is. Saying how it is is difficult to read but is useful in the long run.

You say you are on the lower rate DLA. This suggests that you are unlikely to meet the criteria for the PIP lowest level. The PIP now is harder to get compared to what it was a few years ago. Three years ago I got 9 points. Last assessment got zero. At tribunal got 4.

You need the help of a charity which specialises in benefit law.

GP home visits

GP's are overworked. You are going to need to develop a thick skin to handle the problems you present. You got to Stoke. You can make an appointment to visit the GP for an assessment. Demanding things from overworked staff will get you struck off from the GP surgery.

For your condition you will need to see the same GP each time. You need to be apologetic to the surgery rather than confrontational. The GP is the gateway to a lot of services that may be beneficial.

NHS England are the people to approach

england.nhs.uk/contact-us/c...

You need to contact the CAB about organisations who can provide help. Churches are good for this if you can find one which suits your beliefs. They can help you to help yourself. They will have access to local help groups that hopefully can help you with quality of life issues.

Rose54 profile image
Rose54

Hi

The General Medical Council have recently meet and it was voted that GPs no longer have to provide a home visit as part of thier contract .

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