Just a short introduction to you all ... - Fibromyalgia Acti...

Fibromyalgia Action UK

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Just a short introduction to you all as I'm a newbie to the group today - I have Severe Fibromyalgia and daren't tally all my symptoms !!

7 Replies

Hi I'm new to Health unlocked today........I've posted some replies already so technically I'm doing things backwards .........but part of having fibro means we get muddled !

Hi to everyone - hoping you're all as well as can be expected - I'm bed bound and have been for the last few days ........back pain which won't let me sit in a chair downstairs or up for that matter.

I've had time on my hands so ive been looking for tips for my extreme nausea and dame across this site - so here I am.

I'm retired from work early with I'll health, my hubby is retired and is my carer - we've two daughters in their 30's - one has Fibromyalgia and the other has had ME/CFS since she was 14.

We've got three granddaughters - grandad is outnumbered!!!!

7 Replies
Lucozade profile image
Lucozade

The extreme nausea you are experiencing is probably from the pain your body is going through with the back pain and Fybromyalgia.

englishkiwis profile image
englishkiwis

Hi and welcome,

if you name any symptom, then many of us will have it with differing combinations that fluctuate. Nausea is one that is hitting me also at the mo, coupled with vertigo, tinnitus, severe headaches and arthritic flare up. All not helped by constipation due to taking iron tablets for low iron levels. Where do you start?

Are the other symptoms an effect of constipation or fibromyalgia or arthritic pain etc? It is so hard to isolate a symptom with fibromyalgia and try to treat it alone? So with your nausea, could you have another symptom that might be causing it?

To overcome it alone, try keeping hydrated, drinking or eating anything with ginger in it, keep out of the sun and in the cool.

Last night I slept with a fan on low all night, which helped the tinnitus, sweats, insomnia (I forgot to mention them as they are of course usual to sufferers) and I have coincidentally woken up feeling less nauseous!!

I do hope you feel better soon and that you reach an even keel for a while. Then celebrate and enjoy life!

in reply toenglishkiwis

I do everything that you mentioned - been using a fan for years as forgot to turn off one night and realised my husband hadn't snored that night and I'd had a decent night's sleep.

I cant take iron in any form as i don't absorb iron and need iron infusions poss part of my coeliac disease.

I can not tolerate any thing that leaves a scent be it perfume scents, cooking smells etc because of my hypersensitivity to scents, noise, light etc etc - our home is a no go area for perfumes, soaps, and shampoos that have a scent to them!

I can have all of my symptoms flaring up,and still have nausea or very little in the way of symptoms and very bad nausea??????

I will try any of you're suggestions inhavent already tried.

Many thanks

Nan

Hello and welcome.

I felt constantly sick last week during the worst flare I’ve had for ages. I tried drinking lemon and ginger tea, it might have helped a little. Really it only subsided when the pain finally went.

Only things I can suggest are treating the individual symptoms, using heat, or cold ( my headache from hell subsided when I put a bag of frozen veg wrapped in a towel on my head) Epsom salts in a bath, gels or sprays, pain patches, tens machine.

It’s exhausting having the pain and going through the things to try to stop it but it will end.

Hazel_Angelstar profile image
Hazel_AngelstarAdministratorFMA UK Staff

Hi and a warm welcome to our community. Here you will find information, friendship, support and laughter too. They're is more information on our main site at fmauk.org, where you can also order a patient information pack.

You've had some good suggestions already but sounds like you are already trying many of them. Hope it eases off soon xxx

Hi

Welcome to this wonderful forum. Everyone's great and very supportive. Have got a wheelchair dothat your husband could then get you outside in the fresh air. Get a home visit from your Gp and tell him exactly how you are feeling. Love and hugs to you both Lynne xxxx

Thanks for you're lovely reply - I may need a wheelchair before long but my hubby won't be able to push me with his heart condition - from being a farmer then landscape gardener very physical work to having to adjust to what he can and cant do - but adjustments.

We have a lovely GP who I see regularly but with many Fibromyalgia patients we know more about it than GP's and a lot of Dr's in hospital! However she is supportive and listens to problems and helps where she can.

I only found Health unlocked yesterday and have had no end of support and advice which is very welcome.

Kind regards n hugs

Nan

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