Fog?: Morning all. Can anyone explain... - Fibromyalgia Acti...

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Fog?

Marielena2 profile image
21 Replies

Morning all. Can anyone explain the "feeling" of fibro fog? I have had fibromyalgia for quite a few years,and have often had "not with it" days. But these last few weeks I feel so "spaced " out sometimes. Concentration is rubbish. Is this fibro fog guys?

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Marielena2 profile image
Marielena2
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21 Replies
Deni52 profile image
Deni52

Morning (just) Marlene, Its just as you said not with it, no concentration etc, things you get on with one day seem impossible another day, you can find yourself saying to yourself "think think what's wrong with you 😟" but just chill leave it and it will probably turn around after a while, not unlike people without fibro but maybe we are more sensitive to things happening. Lots of people here who can empathise with you offer advice and share experiences. Be kind to yourself 🙂

Paulie101 profile image
Paulie101 in reply to Deni52

I sometimes get something that I had always thought of as fibro fog. A fuzzy headed feeling of disassociation from my body or reality. Sort of like I'm dreaming or watching myself as if I was someone else. Lately though I started to get other symptoms that seem to be more akin to what other's describe. My mind goes blank when I try to formulate a sentence (very embarrassing at meetings or when hosting a seminar) and I struggle to find the correct word or use the wrong word (asked DP to defrost some meat in the washing machine last week) Also finding it harder to be organised and remember appointments

GiggleFish profile image
GiggleFish in reply to Paulie101

Snap! I reall hate the out of body experience, and I constantly have to keep an apology handy for every time I struggle to remember what the word was, let alone in what context I was using it...

RayB profile image
RayB

I would describe it like your your brain is works at a different frequency to the rest of your body,, the thinking can be very slow,, people will say things and you hear the words but to process them takes alot of concentration,, it can be the same with reading,, it's only words,, the eyes see them but it can take forever to try and get them to register in the brain. I know everyone misreads things at times but fog is quite a consistant feeling with myself now. Everyone will be sitting enjoying something on TV while it is going right over your head,, it's not because your stupid,,it's something to do with the processing of information.

You often can't get the word or things can come out and just don't make sense and you have to try and reconstruct what you were trying to say. The mind will go blank mid scentence and you stop talking not quite knowing what you were talking about. It also happens me when typing,,, I will write somethink and think it makes sense a the time,, but read over it later and realise.

Auctualy I see the same things commonly on here. I think it is easy for us to recognise it when we see it even in others

in reply to RayB

Yes, I can't add much more but today I woke up and couldn't remember where the bathroom was!!, Love and hugs Lynne xxxx

RayB profile image
RayB in reply to

Lynne,, have woke up not quite knowing where I am and it takes a few moments to come around but it's a rare one for me as I usualy have an awareness going on,, like I'm not quite sleeping. Then once in a blue moon I can sleep like a log and for a long time,, around 30 hours or more. When I wake from those sleeps I can be very confused and it takes a long time to work out even if it's night or day, a bit disoriantated.

in reply to RayB

Thank you

I'd only been asleep for half an hour as pain wakes me up!!, Take care Lynne

Jamie1965 profile image
Jamie1965

I compare it sometimes to my dyslexia on a bad day nothing makes sense no matter how I try I can’t get words out at all I stammer with it and then get myself upset cause I can’t say what I want to reading anything is hard for me but impossible when I’m in a fog one viscous circle that can sometimes go on for days it worse when I have had a full nights sleep which only happens may be once a week confused is an understatement when that happens 🤪

Nanabrodie profile image
Nanabrodie

I too suffer with fibro fog but some days worse than others some days I feel completely fine others I feel like I’m on another planet, can’t concentrate at all or hold a conversation because of not being able to find the right words. I haven’t driven for years because I don’t feel my concentration levels are good enough.

Fra22-57 profile image
Fra22-57

Sometimes I feel "gone" for a while then I will like come to and wonder how long I have been spaced out.I find it so frustrating that I cant think.I try to do crosswords each day to keep my mind going but struggle.Yes I do return and try again and get a few answers but get so annoyed with myself and feel pathetic.I struggle to get words out and babble out crazy things.its like my brain stutters to connect. It frightens me to think it is getting worse.

That how I think fog is. We all struggle with it in different forms. Crazy there is such alot of fibromyalgia sufferers

footgo profile image
footgo

Hi Marielena2

l put a lot of these “foggy feelings” down to all these toxic medications we are given to consume daily. I so often feel like we are being given all these different medications to keep us quiet, like a babies dummy.

I have had arthritis for twenty years and six major joint replacements plus another ten operations and have major problems with most medications. Too much thick fog!

I wish you all a wonderful day, hopefully our “foggy feelings” will clear soon.

Hugs to you all footgo.

Nuttyshirlz profile image
Nuttyshirlz in reply to footgo

I agree with you because I never had none of this before I popped boots lol I’ve also arthritis x

Paulie101 profile image
Paulie101 in reply to footgo

Yes it's hard to decide whether the "fog" is due to the fibro, a side effect of the cornucopia of meds, lack of quality sleep or "being of a certain age"

Nuttyshirlz profile image
Nuttyshirlz

I would say when your talking with someone and you don’t have a clue what they talking about it goes right over your head. I sometimes have to watch programs twice because it doesn’t sink in first time. Or you could be listening to music you no it’s that but you say something completely different. Or you sit on sofa what feels like an hour and you realise you sat seven hours. It’s hard to put into words x

YASMINTINA profile image
YASMINTINAFMA UK Volunteer

healthunlocked.com/fibromya..., hello there I see you have had some good explanations how Fibro sufferers sometimes on a daily basis, for me the fog will get worse if I’m over tired and my brain just wants to rest so I go with that if I can and hopefully the next day is clearer with having some resting periods but would be hard for somebody working as you do not get that choice. I’ve posted a link above if you would like to lock your posts as only our community can see, hope your weekend is restful x

Bramble71 profile image
Bramble71

Hi, OP. There have been some great descriptions here. I use a work example to explain one of the ways I'm affected. I would get on with a task, but know I was being very slow, finding I was unable to follow my previous way of working. I would check what I'd done, think it was ok, then get the piece of work back after quality checking and be told what I'd done was all wrong. I just couldn't explain it. I used to say (before my diagnosis) that I'd got someone else's head on, someone who knew nothing about my job! In the 4 years till I left, I never managed to successfully relearn or carry out my own job. It was soul destroying.

Now, I find I can't concentrate, can't finish a sentence, can't learn new things or follow instructions. I cant remember what I was talking about seconds ago, reading is hard as the words blur together. There are so many ways the fog manifests itself; I can't even remember them all now!

Marielena2 profile image
Marielena2 in reply to Bramble71

Thankyou! This is me!!!! X

sleepsearcher profile image
sleepsearcher in reply to Bramble71

That sounds just like me when working in the civil service! Head wasn't my own. Had to stop in the end.

Bramble71 profile image
Bramble71 in reply to sleepsearcher

Same here. It was a case of jump before I was pushed, so to speak.

Sarahvit profile image
Sarahvit

Yep can’t find your words when speaking. The same with writing get stuck on a word and can’t spell it for the life of you. I have ask my husband, Alexia, or the mic on the keyboard on my iPod. Sometimes forget even the punctuation of some words. As far as time of when something happened I don’t remember if it was yesterday a week ago or several months ago. A lot things I don’t even remember. Yeap this is what they tell me is fibro fog. Oh another analogy ( I had to use the mic thing) is driving down the road in a heavy fog visibility 1 inch vs driving down the road on a nice clear sunny day visibility is as far as clear sharpe vision health eyes 👀 can see. I hate you are dealing with this fibro fog but I do recommend you seeing a neurologist just to make sure something else isn’t going on. Oh one last analogy is driving down the road in a blizzard 🌨 vs the nice sunny day but your eyes are not hypersensitive to the sun. ☀️ But like I said it is worth getting checked out my a neurologist just to make sure nothing else is going on.🤗💕🦋🌻🌷💜

brightnbreezy profile image
brightnbreezy

I experience much the same with fibrofog as all the others who have replied, but I have found something that really has helped me. I have been listening to isochronic tones and binaureal beats for a few years now, but the other day I stumbled across a new name, Anthony Sommer, who writes some of the most amazing ones. One is called 'whole body/being regenerated', and there are two others for the brain. The more recently written one seems to be better according to the comments from users, but I was amazed how refreshing it felt, and how my brain seemed to clear - as if a cool breeze had wafted into it. At first some of these can make you feel a bit odd, or even (for me) a little angry, but my take on that is, that in reformulating the brain to bring it back to a better place, ones body might react in uncomfortable ways the first time or two. Another wonderful writer of these isochronic tones is a woman called Voff Uggla who does wonderful ones for pain, arthritis, ankylosing spondylitis (these last two help fibro pain for me). Might help somebody besides me. Love to everyone.

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