Does anyone suffer with nerve pain in... - Fibromyalgia Acti...

Fibromyalgia Action UK

59,421 members66,475 posts

Does anyone suffer with nerve pain in the legs?

oldsouls profile image
2 Replies

I am mature aged (71) diagnosed with FM over 20 years ago. For some years I have had nerve pain in my upper thigh but around the front of the leg. It mostly affects me after I have been walking, and not a great distance. When it reaches the most painful state I have described the pain like someone rubbing dry ice on my leg. Others have explained it as like bad sunburn. So my legs are numb and semi numb so when I pinch myself I cannot feel it.

I want to know if it is related to FB. I went to a specialist but he only tested sciatica which I knew I didn’t have. I asked about these nerves and he brushed it off saying it came from my back. I have lower disc degeneration pain as well.

As far as FM relief, my physio doesn’t like doing too much to me and works on specific muscle problems that are bad probably due to disc degeneration or the way I do my tasks. So we do dry needle therapy. I do hydrotherapy exercises twice a week. At 71 I now have multiple health problems. Dr. gave me Lyrica (pregabalin) twice a day. It is for nerve pain but it has found to be affective with anxiety which I also have at the moment. It is hard for me to differentiate multiple pain areas.

Regards Oldsoul

Written by
oldsouls profile image
oldsouls
To view profiles and participate in discussions please or .
Read more about...
2 Replies
rosewine profile image
rosewine

I too have that sunburnt feeling on my legs which seems neuropathic in nature and I realise now was one of the first signs of my fibro. They are numbish and seem cold but stinging not at the same time so difficult to describe. Pregablin has helped take the worse edge off it but unfortunately I can't tolerate a higher enough dose to lessen it even more. I have found freeze gel helps a little. I too have back problems and have been told that many of the sensations stem from the bones touching nerves. Knowing what is causing it doesn't make it any easier does it.

I found hydro was great but we we are only allowed 6 sessions. The only other places around here who have hydro pools are hotels and they make you pay the whole gym membership just to use the hydro which is prohibitive.

You have my sympathy.x

oldsouls profile image
oldsouls in reply to rosewine

HI, Good to know. If you are in Aust do you mean that the govt pays for 5-6 sessions per year? Do you go to the supervised pool time? One physio pool I went to broke up each visit into 4 unsupervised visits. The supervisor also saw me to make sure I was making most out of my visits and showed me new exercises. The only person worked the programme properly. Others see if money for jam and no responsibility.

I haven't asked with this new pool (my old one closed). I need the physio visits occasionally. That is a pity you cant get to a private pool. Mine charges $8 and no increase in 3 years despite renovations.

Yes it is hard to explain the sensation. We seem to be on the best meds. A pity your can't take higher doze. Haven't had a bad day walking for a long time.

Best wishes

You may also like...

does anyone suffer back and leg and pelvic pain?

weeks now I have had pain in my lower back, backs of tops of my legs and pelvis- does anyone have...

Does anyone suffer with painful eyeballs?

getting much sleep either as the pains are shooting up and down my body like electric shocks from...

Does anyone suffer with facial and jaw pain?

I have been getting some really awful jaw and facial pain just recently and the fibro has just been...

Does anyone have severe pain in the bones in your legs below the knee.

moan. The main problem I have at the moment is in my lower legs the bone is the problem not so...

Does anyone suffer with severe cramps in the legs

Hi, recently i have been getting bad cramps in both of my legs but its when i am on the toilet or...