I'm new

[Melba21]

Hi.

After 15 months of increasing pain and in multiple sites, referrals to MSK and neuro, GP is fairly certain I have fibromyalgia.

I also have carpel tunnel which just adds salt to the wound.

I work in the NHS, but currently non clinical due to pain.

Guess I just want to say hello, and find others who know what it's like.

[Shana75]

Hi Melba, i just joined today, everyone seems nice on here 🙂 how long have you had Fibro?

[Melba21 in reply to Shana75]

About 15 months or so but only diagnosed in Thursday. How about you?

[Hidden in reply to Melba21]

Hi

Welcome to our friendly site, everyone on here are friendly, helpful and caring. With love and hugs Lynne xxxx

[Shana75 in reply to Melba21]

well i've not had the official diagnosis yet, im currently being assessed, my daughter has been diagnosed with fibro. i think its something ive had for years, ive been treated for sciatica, bursitis, trapped nerve, all sorts and the treatments ive been given havent helped so i think the cause to all my years of pain down to fibro, ive had other issues that suggest its fibro.

Did you feel to a certain degree relief when you got the diagnosis? relief that there was a reason you are feeling the way you are? If ever you need to talk about it there are of people on here to talk to including me 🙂

[dannyxox]

Hi Melba welcome to the group xxx

[Annmarie09]

Hi have you seen a rheumatologist that help set you on the right road firstly. Just take every day at a time it’ll take awhile to accept this condition and understand it. Hope you get some help god bless xx

[Mehzabine]

Hi melba,

Im mehz and new to the group.

I diagnosed with fibro 2 yrs ago.

I'm under treatment but recently I noticed that im forgetting things a lot.I talk to pain management about it but they say its normal to feel like this.Have u had these forgetting symptom too.

[dippystuff]

Hi Melba21,

I am also new to this site and have just recently been diagnosed with fibromyalgia.

I also work for the NHS and have been on non clinical since Nov 18, but this is getting harder every day. Occupational Health decided that I should continue doing long days (12 1/2 hrs) but non clinical and that I could not do night shifts and I had to have a rest day between shifts too. This was decided as I was still awaiting my Neurology appointment and had no diagnosis as yet.

This started out OK, but I have been getting a lot of unnecessary comments from other staff such as 'I wish I was being paid a band 5 for just sitting at a desk !' also all my colleagues seem preoccupied with whether or not I am kept busy every single minute (i.e they seem to think I MUST be kept VERY busy every minute and go to lengths to ensure I am piled high with work to do) I have been struggling with doing the long shifts even doing non clinical as I'm struggling to walk and am a lot of pain if I am sitting too long on the computer also. I have used up my 'time owing' leaving 2 hours early twice last week and had to go home sick on my 3rd shift two hours before the finish due to extreme pain ( I was crying with the pain when I went to tell the senior on duty I was going home sick). I had to take 2 dihydrocodeine at home for the pain as my usual paracetamol and amitriptyline were not even touching the pain.

I have another Occupational Health appointment in March and I am at a complete loss as to what to ask for in terms of reasonable adjustments ( I have been seen by GP for symptoms for over 1yr and have been told by RCN that my condition has to be treated as a disability as it has been ongoing for over a year). I know I am not fit to do a normal shift doing clinical work as I am struggling to walk and suffer from 'fibro fog' where I forget what I'm doing, peoples names, even how to use the computer to do things I've done a million times before. However I am also struggling to do non-clinical for the shift. I am awaiting an appointment for physio but other than that I've been told by the consultant that they don't need to see me again and my condition should be managed by my GP.

Any suggestions on what could be a reasonable adaptation to help ?

[Hidden]

Get your self diagnosed if you got fibromyalgia in it’s worse form you can’t work