Hi to all
I guess on a forum here, we’re all suffering more than being full of the joys of spring.
I will get straight to me point or question. 20 years ago I had an accident were I needed spine stabilisation, the dreaded stabilisation. At L3 L4/5. After a month a pedestal screw fell out and had to be replaced by a larger screw in thickness and length. That’s when the problem started as the screw went too far and encroached in to my nerve route canal.
From then on I’ve suffered pain constantly, but carried on working, driving and flying as I was a Businessman averaging 70,000 miles a year. Pain clinics and all tablets available, no good, Fentynal patches ok but addictive. So carried on taking just Solpadol tablets of which could only be 8 a day. Back got worse as years went on and 2011 a car basically rammed me for a better word, this is where the trouble started, as I knew something went wrong I had an mri and sure enough, the bigger screw went in to my spinal cord. Since then I’ve never worked, as can’t stand, use arm and hands properly, and body felt I was in a fire head to to toe 24/7.
Went through different trials and nothing until I was a on of 4 in Lincolnshire to be trialled with the Nevro high frequency nerve stimulator. It worked, if there was a God I nearly believed. 90% pain was gone with this embedded inside my body, and some pain but nothing as when accident happened. 2013, yep!! Hit by another car and seat belt tightened and broke the implant and within seconds my life was back to hell and has been ever since. It laid dormant in body for 2 years before St Thomas’s/Guys agreed to remove and see if anything could be done. I asked for new implant, but my CCG for Lincolnshire said no at £25,000 each. I have been on Morphine since 2013, then bedbound for 2 years, I am now on Ketamine as well, and side effects has done the nasty on me and I’m to lose my bladder., so no pain meds at all now, and my legs are the worst and horrid pain, so I’m sorry to bore you, but after 2 years of battling for a cure for my legs especially, as metalwork in back can not be removed, question is,
HAS ANYONE OR KNOW OF ANYONE asked for thier Legs removed and NHS agreed ?????
I want my legs removed now basically, I’m a useless piece of meat and feel like I should be dead. People say I’m mad for legs removed, but they never give me an option for treatment, so I want them removed. I would just like to know if anyone has at least asked the question to NHS and their response????