Falls

[Daisy55]

Now and again I fall , it did used to happen , then improved . I know it’s fibromyalgia, you just go and cannot stop yourself . So being very careful again now . Always my right side that just gives way , and that’s my most painful side . So some rest is needed .

[honeybug]

xxx

[Kat13]

I have fallen three or four times as well. One time, I kept falling repeatedly to the right onto my bed. It was such a strange and bewildering experience. I also have Cerebral Vasculitis and had no idea what might have caused the falling. It’s been a while so hopefully I have moved on from that particular manifestation. Always good to careful.

[bonny12346]

Hi Daisy 55

I noticed I was falling a lot and being numb with chronic back pains. My period was really really heavy and lasting up to 60 days .Eveninto my 50’s from 16.

I don’t know if the surgery had a teaching day

but they haven’t said how many people with fibromyalgia and cfs/ me. Obviously there were other ailments going on but i’d been filed away.At last being in pain since I was 17. I had a diagnosis.

I had found something on tinterner that enabled me to do a poop scoop but to try and feel like I could do something . I could have a tic and either fall over or throw things away or at me. Oh what joy! That’s why I had to sell my car , stop cooking not just because of tics but I can’t feel my fingers enough to carry on. Etc .Friends not that I had any and my favourite hobbies are left alone .etc

Sound familiar to anyone?

Best bit been accused of being drunk because I slur my words and people can’t understand me

They Summoned a Dr on two occasions and they both told me not to listen to them but it is difficult when they said we are sick and tired about my daughter and her PhD. The irony part of her her earlier degrees was she spoke to disadvantaged children that if she could do it and be able to keep.up anyone could.

Your community O.T. Should be able to help you with crutches but because I ‘m a Big Woman.

I’d like to thank my thyroid and doctors for

taking 3 yrs and I had to become morbidly obese before they could help me and diagnosed underatctive thyroid size 12 now 24.

I have no appetite my carer makes me the same breakfast everyday. It is usually my evening meal.

And no idea what the government is going to make us obese people do? Loose weight or cut benefits? My rent has already gone up twice since the children left but I ‘m too ill to move

and because I have been here for I think 15/16years I don’t know anywhere else Oh

and agoraphobic.

I know the medical profession say this is a non

Progressive illness. I personally would have to

disagree,

[Hidden]

Sorry you are falling daisy55 I fell on xmas day which I wrote a post about it, feel free to read & laugh it’s ok becAuse although I didn’t laugh at the time I can now because I would certainly cry!

Take care xx

[Hidden]

Have you had your B12 checked ? I was experiencing dizziness and often lost my balance, found I had B12 deficiency and matters improved after Injections .

[Callo56 in reply to Hidden]

I'm B12 deficient (PA) and have Fibromyalgia. I've had several falls, some in public (very embarrassing) and some at home. I frequently have trouble keeping my balance which seems to get worse as the date of my B12 injection draws near.

[Marz in reply to Callo56]

You may need more regular injections - have you looked at the Pernicious Anaemia Society (PAS ) Forum here on HU. Lots of excellent advice. Knowledge of B12/PA can be lacking at GP level. Are you also taking a good B Complex to keep all the B vitamins in balance. Especially B9 or Folic Acid /Folate which works with B12 in the body. I am fortunate to live in Crete and can buy B12 in the Pharmacies - 3 phials and 3 syringes for around 5 euro. B12 is a great pain reliever too for nerve pain ...

You should be on more regular injections as falling would be classed as neurological - this is laid down in the Guidelines that will be sitting on your GP's desk 😊

As you know PA is auto-immune and often goes hand in hand with other AI conditions - especially Hashimotos. Have you had the correct thyroid testing ? - TSH - FT4 - FT3 & Anti TPO & Tg - sadly not all these tests are carried out in the NHS and so people remain undiagnosed and suffering. Always good to rule things out ...

I have Crohns - Hashimotos - & a B12 issue due to surgery ... all these conditions have contributed to the painful muscles ...

EDIT: Apologies - I see you are already a member on the PAS Forum. I should have checked first. So every 8 week may need to be monthly - good luck 😊

[Callo56 in reply to Marz]

Thank you Marz for your reply. My Thyroid is fine. My GP is young and admits I probably know more than him about PA so I'm 'educating' him, luckily he's willing to learn!

[Marz in reply to Callo56]

Pleased to hear your thyroid is fine I have been on the Thyroid UK forum for over seven years and when Doctors say test results are 'fine ' - they usually mean the results are in range. It is where the results are in the range that is important. TSH needs to be below 2.5 - FT4 and FT3 in the upper part of the range for most people and negative for BOTH anti-bodies TPO & Tg.

It is rare for the NHS to test the FT3 - the most important hormone - and the brain has more receptors for T3 than any other part of the body - then the gut - followed by the heart ! So if the FT3 is low in range there isn't enough to go around and things begin to go wrong ! Like you I am educating Docs here about Thyroid and B12. There is an interesting research paper about the link with PA and Hashimotos.

Just testing the TSH ( a Pituitary Hormone ) - does not tell you the complete story ! It's about all the NHS can manage !

[Hidden]

Are you on 12 weekly injections? I tested negative for PA and s.i. I know I start to feel the effects of it running low after 8 weeks.

Falling is a worry. There are clinics your GP can refer you to, might that be worth a try ?

[S21lyb]

Sending you loads of positivity and love sweetheart. Unfortunately I feel in August and have gained life changing injuries to both arms. All we have is inner strength and determination. Please don't get me wrong I have down days and seriously painful days but each day builds new memories. Happy new year sweethearts xx

[Midori]

I understand that; Once my balance goes, I'm down. No good trying to fight it.

[Dinkie]

Hi Daisy - I too fall and now when I am out take a rollator - that way it supports me and stops me falling and it has a seat so that I can sit down when I need to. In fact I have two - one is a little 3 wheeler for the shops and I have one 4 wheeler with heavy duty suspension which I take out cross-country to exercise dogs. I sit on the seat and throw the ball for them! It has given me so much more freedom. I got mine from Careco - may be worth a look.