Could any please give me advice on ho... - Fibromyalgia Acti...

Fibromyalgia Action UK

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Could any please give me advice on how to releave restless legs and what medication helps .Thank you .

lynr profile image
lynr
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lynr profile image
lynr
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15 Replies
motzie profile image
motzie

Hi Lynr, i used to get restless leg... had it for approx 25yrs...my doctor gave me a drug called ropinerole and it has helped me, mention it your dr hope this helps, & take care.

chorley profile image
chorley

Hi Lyn, i suffer with RLS ( restless leg syndrome ) as do many other fibro sufferes, i went to my GP and he has put me on pregabalin these are starting to work for me but we are still working on getting the dosage right for me, i beleive there are other meds that can be used to help with RLS, as i am sure a few others on here will tell you. i suggest going to see your gp and ask what he/she would advise for you.

Hope this helps

Keep your chin up

CHORLEY :)

fibrojude profile image
fibrojude

My chemist told me to try magnesium early days yet for results still a nightmare every night , im stretching and stretching and feel like i have support tights on and heavy weights , let you know soon if it helps :-)

Kestrel profile image
Kestrel

Hi there

I have had RLS for 12 years. My doctor gave me chlorphenamine (anti-histamine) as my RLS would often start with all over itching. She also advised me to keep my bedroom cold. The combination works well most nights. Hope this helps you too xx

Betty67 profile image
Betty67

I also heard about the Mangesium link, or lack of. I also take potassium calcium and vitamin D.

I follow my dog's lead (sorry for the pun) and I stretch my legs out often when I am sitting. More about the dog, she is a very wise old lady and when she get up she stretches all her legs followed by her back and then head.

renrobin profile image
renrobin

Vitamin deficiency, especially a deficiency in Vitamin D3 can cause this to happen.

I'm trying a multivitamin with just about everything in plus a vitamin D3 supplement. I can't count the amount of drugs I'm on and nothing seems to help so I'm gradually eliminating all the hard drugs and going down the natural route - and yes, stretching and excercise really do help...

I had it for many years and nothing worked and my GP here sent me to the sleep clinic at Papworth Hospital and after a few trials and errors, found that Ropinirole worked for me. After a year or so it didn't work as well so she put me on Gabapentin. I think I'm right in saying these drugs are for really bad cases. If you google RLS you will find a lot to read about it.

As renrobin says, lack of certain vitamins can cause it. I also heard a nice hot bath helps.

Hope that helps........

Sue

lynr profile image
lynr

Thank you all for your information, will be speaking to my Doctor and i am going to do the streching too, anything is worth a try x

Butterfly54 profile image
Butterfly54 in reply tolynr

Hi Lynr,I too sufferd from restless legs for years and my g.p put me on pramipexole>Instant relief,still can`t sleep properly but hey ho just another part of fibro,butterfly54 xx

Glenys profile image
Glenys

Magnesium works for me - I have been using it for a few years now, and I can tell when I am low on it because I get my symptoms of RLS back if I miss a dose or two. Use Magnesium CITRATE rather than Oxide, as the latter gives you the runs (in fact Mg Oxide is used for constipation) the Citrate absorbs better and is a good price and quality at Holland and Barratt. The Oxide and Citrate labels are similar, so beware :-) I have read that Mg is good for other things too with FMS.

foxycoxy profile image
foxycoxy

Hi

I take Amytripteline to help me sleep and also for my RLS, in fact it got really bad and my GP upped my dose to three a night and this has helped a lot.

We all have different meds for this, I think it's just a case of seeing what works best for you.

Good luck huni xxx

Jeannie profile image
Jeannie

Pregapentin and Quinine Sulphate. Amipritimine are what I take. But usually if bad resort to Zopiclone sleeping tablet

Good luck gentle hugs xxx

sandytez profile image
sandytez

hi i have had restless legs since i was 14 year old [ now 70] it keeps me awake hour upon hour , i dont drink but if i have just one glass of alcohol dosnt matter which alcohol , i do like sherry as this is good for you , but no i cant even have a glass of sherry , yes i am stupid i do like a social drink some time not often but boy do i suffer for it , also be careful of cafine late at night , i was told to eat bananas, i also get it in my arms , i just sit with my arms up in the air , and as for my legs i read if you stand on your tiptoes then gently lower down to floor 10 times it streches your calf . i find this can help a little , anyone out there if you find a cure let me know , in all these years there has never been a cure found , all these charity shops for different things [ i am not knocking them good cause ] but not one for restless legs syndrome] or fybromyalgia both are reconised as ill ness

lynr profile image
lynr

Hi Sandytez , thank you for your reply , It's "funny " what you say about holding your arms up in the air togive you relief sometiimes I wake up , or think I am asleep ( if that makes sense) and one of my arms are held up in the air , maybe my sub concious is telling me to do this .

I agree with you about charity shops , but I think FIBROMYAGLIA IS AN INVISABLE ILLNESS , unless you have it people have no un derstanding about the impact it has on your life . I truly believe when I had cancer it didn't have the same impact on my life as this .....that's not me being negative .... I had so much support then....now I feel people just think I am lazy and surely can't have so many pains in so many places.

Sorry this has turned into a sort of a rant sorry Sandytez

jessica9 profile image
jessica9

I have had RLS for17 yrs and quinine stops it every time. No awful side effects either. .

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