Burning from the inside out! - Fibromyalgia Acti...

Fibromyalgia Action UK

59,469 members66,515 posts

Burning from the inside out!

annij85 profile image
12 Replies

So tonight I’ve had a feeling that’s worse than any pain I’ve ever had, I feel like I’m cooking from the inside out. I feel like I need to sweat but my skin won’t let me... it’s horrendous I’d trade it for all the pains I’ve had so far put together:(

Written by
annij85 profile image
annij85
To view profiles and participate in discussions please or .
12 Replies

You might have flu coming on

Kingdom1914 profile image
Kingdom1914

Fibromyalgia often means your temperature is out of control and you can feel like you are burning up constantly with just breaks. You can be freezing cold after too. This is because your body regulation is faulty because of Fibro. Think it's the Hypothalamus gland but not sure. Google body sweats or like under Fibromyalgia symptons. My Doctor agrees but not found ou the treatment yet.

annij85 profile image
annij85 in reply to Kingdom1914

Thanks for your reply I wish there was something that helped

Kingdom1914 profile image
Kingdom1914 in reply to annij85

If it's due to Fibromyalgia there may be. I just haven't had chance to ask the Doctor yet as I've been having Heart tests and I'm having a Stomach Operation in 2 weeks. Should be something that helps regulates temperature.

rosewine profile image
rosewine

Unfortunately as others have said it can be our fibro faulty thermometer. I am mostly freezing but sometimes have that burning sensation. Strangely I was at book club this morning and thought I would have to excuse myself and come home as I felt the heat was unbearable. Everyone else was putting cardigans on and I was taking off every item of clothing I recently could. You can guess the rest half an hour later when I had just decided to go home in two minutes became absolutely frozen and ended up putting cardigans. And my thick coat on.Finek has alot to answer for you have my sympathy.x

annij85 profile image
annij85 in reply to rosewine

Thanks hon that was me all night going from boiling to freezing, it’s happened before but never that bad. Praying for a cure ❤️

honeybug profile image
honeybug

Hi annik85

😊🌸🌿🦋

I have FM/RP. This is compounded by IEM (inherited Erythromelalgia) I’m one of 3 worldwide with this very painful debilitating condition. I was diagnosed age 19 with Sympathetic Nerve damage. It all affects my body thermostat. My skin feels cool/cold while the inside is on fire 🔥 like I could spontaneously combust. I developed neuropathy and by evening that ramps up and my legs/feet feel like they are in boiling oil.

I’m taking Gabapentin 1200mg twice daily. It make things tolerable but doesn’t block it completely.

It all flares together with my arthritis when it’s foggy rainy humid or snowy.

I live in the northern USA 🇺🇸 where we constantly get these conditions.

You can go to a clinic site here known worldwide for excellence in diagnostics and care at

mayoclinic.org

You can look up symptoms as well as conditions/diseases.

Best wishes.

😊🌸🌿🦋🙏🤗💗😘

annij85 profile image
annij85 in reply to honeybug

Thankyou il definitely check it out 😁

honeybug profile image
honeybug

xxx

Marty52 profile image
Marty52

I know exactly what you mean. That burning up inside is THE most horrific of all the many pains related to fibro. I liken it to being imprisoned in a torture chamber. I find that this particular horror is more likely to happen during the night (must be associated with lying down.) For me, the second most unbearable type of pain is a feeling of having a urinary infection (which I never have.) These two often occur together. When this part of the 'cycle' moves on, it is always followed by severe, all body, excruciating muscle pain (the worst is around the abdominal area, so I can't stand up, even to brush my teeth etc.) This time, I've been in this never ending cycle for a whole week! When it's really bad (which is often) I'm grateful if I can just sit and watch TV without crying with the pain. Going out is not an option! My heart goes out to all who are in awful pain much more often than not. 🥀

annij85 profile image
annij85 in reply to Marty52

Aw it sounds horrendous I’m fortunate to have only experienced it this bad once so far, I really hope you find something that can relieve your symptoms. 💖

Marty52 profile image
Marty52 in reply to annij85

Thank you so much, Anni. I hope we all do! 🥀

You may also like...

burned myself out ,finally :(

with me cause its been a little while since ive had such a flare ,april to be exact . i can...

Shaking on the inside

wondering if any of you have had this feeling it's really weird it's like I am really stiff then...

Does anyone else suffer with extreme body temperatures, I go from burning up to freezing cold?

minute I can be burning up and sweating profusely, and at the same time also feel cold in other...

Shaking on the inside a Wierd feeling.

semi wake in the morning and have this strange feeling as though I am shaking in the upper half of...

My insides are shaking.

What is the feeling of shaking internally called? Where does it stem from? Also, what helps get rid...