Petition

[Paige1999]

Hi everyone, just reading when and how people have been diagnosed. I really feel that it's about time a petition is started to get fibr o recognised by the medical profession. I wouldn't have a clue how to start this but there must be someone who would be able to get this done. Reading all the comments of being diagnosed and given a leaflet and then sent on your way. It's about time that all of us that suffer be properly dealt with and have some sort of recognition that it is a real disease and not all input heads. Hope this could be started as it needs sorting so that we don't have to keep fighting just to get the proper help we all need.

[SusieJo1948]

Your exactly right we deserve recognition. Let me know what happens with the petition. How to sign the petition. I'm in the USA and it's like that here too some still think it's not real. But I beg to differ it's very real. 500 million in the USA and 2 hundred and seven million in the. UK how is that they all think it's all in our minds it's not real. Yet how can it not be real. Love susie jo1948

[Carlt in reply to SusieJo1948]

I'm not sure where you get your figures from but the population of the US is 325 million and UK 65 million.

Personally I don't care if it is physiological or psychological but it still hurts and my doctor still has a duty to help.

Personally I don't think it is in my mind but that thought originated in the same mind so who knows?

I am more than happy to explore the possibility of a psychological cause for the pains.

Dismissing "all in the mind" as not real is treating mental health issues with no more respect than some would regard fibromyalgia.

[Mdaisy]

Hi Paige1999

In the UK they are currently approximately 3 million people living with fibromyalgia in the UK alone, between 2.9 and 4.7% of the population worldwide. I believe that a recent petition on change.org to Make Fibromyalgia a Disability got the required 100K and I believe that response was that it is considered as a disabling condition but isn't necessarily for all people living with Fibro.

I agree medics should have more understanding and this comes down to education and also looking at implementing NICE guidelines for Fibro. I think I would start there it I were thinking of starting a petition as ME have NICE guidelines although they are being disputed at the moment due to GET/CBT recommendations.

Do check out our Petitions topic as I have a Fibro one about funding for research that you may be interested in signing and sharing

Emma