Fibro Petition : A lady messaged me on... - Fibromyalgia Acti...

Fibromyalgia Action UK
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Fibro Petition

Mdaisy
MdaisyAdministrator
41 Replies

A lady messaged me on Facebook via our local group and asked if i could share this petition.

This is what she wrote:

"Sorry, but I have to keep posting this to make sure everyone sees it and to know that I tried my very best to gain the minimum signatures required.

Do you want to wake up feeling normal, with no pain, no fibro-fog in fact no fibromyalgia symptoms?

I'm doing my best to let everyone know about Hyperbaric Oxygen Therapy as this treatment is amazing for fibromyalgia sufferers.

I have been having the treatment for 7 months now and can honestly say it has changed my life. Unfortunately HBOT is not a cure as you need to continue having the treatment to keep having the results... but it really works!

Unfortunately this treatment is currently not available on the UK NHS but I'm trying to change that by gaining signatures on a petition to the Government.

This treatment works and has no nasty side effects and therefor should be available free for fibromyalgia sufferers.

If you're from the UK please sign and share the petition and encourage others to sign. If you're not from the UK please still research this treatment in your area. There is a lot of information available on the internet including a trial in Israel which proved the treatment to be 100% successful.

If you don't want or need the treatment please help those of us that do. Thank you x"

petition.parliament.uk/peti...

41 Replies
oldestnewest
Hidden
Hidden

Could I get this done priviatly I wonder

3 likes
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Mdaisy
MdaisyAdministrator
in reply to Hidden

Hello Erny,

Many people on here have suggested that some MS Therapy Centres have the facilities and might be able to be accessed by Fibromyalgia patient.

Hazel_Angelstar know more and I will let her help you further

Best Wishes

Emma :)

2 likes
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Hidden
Hidden
in reply to Mdaisy

Ok Thank you I will make an Enquiry Andre x

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Newtali
Newtali
in reply to Hidden

Yes you can get it privately. Our local MS Centre has one and it costs £30 per session but you need to have it several tImes a week to match what they did in the research. It will depend if you have one locally. It would be great if hospitals could have one..... They help with loads of conditions, not just FM and MS.

2 likes
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Mdaisy
MdaisyAdministrator
in reply to Newtali

Great to know, Thank You Newtali

Reply
Shazzzy
Shazzzy
in reply to Mdaisy

I have previously contacted our local ms centre with this request. Unfortunately you cannot have this treatment if, like me, you have asthma, but if your doctor agrees your OK to have this treatment they will let fibro peeps use their facilities.

1 like
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Hidden
Hidden
in reply to Shazzzy

Thank you

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Hidden
Hidden
in reply to Newtali

Thank you

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ukmsmi4

Signed.

Margaret.xx

2 likes
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glochessum

Signed

2 likes
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Dusky

signed , well done for doing this petition

3 likes
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Tel59

Hi mdaisy..😊..ive signed & put it on facebook..😊..thank u for showing us this post..lets hope we get a great response..😊..take care..Terri

3 likes
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RainbowElf

I saw this quite a while back, the treatment not the petition, and had totally forgotten about it.

I will sign and let others know about it.

3 likes
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rosewine

I've signed this the poor girl needs masses more signatures to make a real impact so if everyone on the site signed she would be up there.x

3 likes
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Tinamartin15

Signed X X

2 likes
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Hidden
Hidden

Nearly half way there with the numbers. I don't have Twitter, could someone tweet about this maybe?

2 likes
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JanetM
JanetM
in reply to Hidden

Done xx

2 likes
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Willow51

Signed x

2 likes
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Midori

There are few hospitals with Hyperbaric capability, and they are mainly in Coastal areas as Hyperbaric Chambers are mainly used for divers with the 'Bends'. I was lucky enough to train at a hospital which had one, many years ago, but the treatment is horrendously expensive, and I doubt in the current economic climate, and with the NHS in deficit all over the country that it will be available for Fibro sufferers in the forseeable future. If Fibro was life threatening it might be a different situation.

3 likes
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Elle-26

Amazing .... Israel is highly regarded when it comes to new treatments. I dont think our Governement does enough to associate themselves with Israeli Medical Research. I noted a few years back they have a Medical Research Centre for Lupus and have done trials ... Thanks for sharing (Ive signed) With having Fibro too, its a nightmare -x-

4 likes
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Shadows-walker

Well said x

1 like
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Phinou

Signed

2 likes
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JanetM

Signed and shared on Twitter and Facebook. Hoping that we can get enough signatures. I am seeing my GP in a few weeks so will chat to him about it too.

3 likes
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Mdaisy
MdaisyAdministrator
in reply to JanetM

Hello JanetM

Many people on here have suggested that some MS Therapy Centres have the facilities and might be able to be accessed by Fibromyalgia patient.

Hazel_Angelstar know more and I will let her help you further

Best Wishes

Emma :)

3 likes
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Hidden
Hidden

I done it and got all information Thank you But it seems Iv up sett some one Sorry don't know who Or why X

2 likes
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Mdaisy
MdaisyAdministrator
in reply to Hidden

I am sure you haven't upset anyone Erny, if you need to speak to an Admin about your concerns please do :)

1 like
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I_z_232_3

Signed. Izzy

2 likes
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Greenpeace

Signed. 😊😊

2 likes
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Newtali

Have signed it and shared it on FB and to my local support group. Here's hoping!

2 likes
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maggi999

Signed, fingers cross we get a good response x

2 likes
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skit

I raised this subject sometime back. I asked my Rheumi no not on NHS. However MS centre a few miles from me does accept FMS people. Best idea I 've had is with support group find a stream of funding that may fund research and get a few of your group with funding to a chamber. Some NHS give FMS Hydrotherapy some not it is not a level playing field!

3 likes
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Glosgran
Glosgran
in reply to skit

There's an MS Centre a few miles from me that offers the use to people with other conditions such as FM or sports' injuries etc. All users need to download forms and get a consent form signed by GP before using. It's a registered charity and they charge £25 per annum to join and then £15 per session (I think it's 1 or 1.5 hrs). I haven't tried it yet but have been considering giving it a go. Just one more thing to spend money on trying to get relief from this weird condition.

1 like
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Mdaisy
MdaisyAdministrator
in reply to Glosgran

This is great to know for people living in this area - Thank You so much Glosgran for posting this information

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ryanbone10

Signed and sealed with a hug :) xx

2 likes
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Shadows-walker

Done ! Xx

2 likes
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TheAuthor

Signed, sealed & delivered! Over 5,000 signatures collected so far x :)

1 like
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luppilu

Signed and passed on to FB etc

Lolly x

1 like
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NurseGladys123

Hello from Nurse Gladys Emanuel (open all hours) are you able to tell us in more detail what hyperbaric oxygen is?

1 like
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Mdaisy
MdaisyAdministrator
in reply to NurseGladys123

Hello NurseGladys123

Great question - This information is from a Macmillan cite but it explains it quite well. If I find any information in relation to Fibromyalgia, I'll post it later

macmillan.org.uk/informatio...

Hope this helps

Emma :)

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Lins345

Can someone explain what the oxygen therapy is please? x

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Hidden
Hidden

Done it.

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