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Fibromyalgia Action UK
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Pip assessment

Hi Peeps

Has anyone had an assessment in their home, if so how did it go etc please?

I already have standard pip but being reassessed due to health decline next week.

Thanks in advance xx

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Hi I have been on a few for support.you should have someone with you and can be in bed if your in too much pain.if not chair or setee and they will monitor you would try let them see your in pain a d keep adjusting yourself on chair etc.Wot happens is straight forward really would not worry too much.when they arrive they will settle and get laptop out and go over your forms and ask some questions on your forms they are not sure about or any discrepancies .may ask you to stretch etc but rarely specially if they can see or think you are in pain.it has been ok in all home visits I been on .do not get yourself done up just be in pyjamas.be polite and try get your points across if ir when they ask questions .question could be anything on your forms .but all in all found home visits GOOD

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Bless you, thank you. My daughter will be at school, but my grown up son who lives with me will be here.

Had an assessment last year at a centre, but few days ago I had a stroke, so they're coming here. I didn't request this but happy I've not got the stress of a journey.

Thank you for your reply xx

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I try relax should be fine.sorry about stroke hope you are fine and get better soon take care

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Thank you xx

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Thank you you will meet nice people and get some tips etc

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😊

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Hi Melanie you sometimes get more replys when you lock your post .if not locked goes out to whole internet.when posting you just click community only and a padlock appears with your post

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Oh right, thank you I shall know for future reference xx

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happy for you my friend but our home visit was the exact opposite , needless to say the better half failed the living side even though I do everything for her inclusive of toilet duties and dress and undress

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Hi it was not me it was other people we supported and never had a problem only 3 or 4 cases but you get terrible ones like yours terrible. .you do get terrible cases like yours.i would make a complaint against assessors it is important.and do fight this all the way and try get the right help .your other half clearly should have got enchanced rates easily for the care and it is not just the illness she gets all the care and help terrible assessors and system.even the copd for help with care and the mobility they changed the rules a while back this has hammered the disabled top rate used to be upto 50 metres for high rate mobility.it is now upto 20 metres for enchanced rate and upto 50 metres standart rate this is a disgrace this .sorry to hear .hope you can find the strength to fight this take care

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thank you for the reply Ajays we are fighting it my friend we have entered a plea by phone that they look at it again , and have been given 28 days to provide evidence so are awaiting medical records as back up , as soon as they arrive they will be sent along with our letter of complaint about the assessor

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That's good .I would if you can also confirm in writing for back up please and a strong letter etc .for appeal as this will be used at appeal.hope you do get a result at Mr some do yes .but there is a 68%failure here and lots win appeal after this .if you do confirm in writing put all your points down and reasons on all the questions on forms and count up the points yourself .have a look at pip self test first then send recorded delivery.im only thinking of appeal here but obviously hope you win mr

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hi mate will do all that , thank you , I and my wife did two self tests at separate times so we could cross view them , mine on her behalf came out at 12 for the mobility component and 23 for the daily living , and the one she did came out at 23 for mobility and 24 for daily living , these as you know are well in the frame for enhanced my friend

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Ha all theses points it makes you laugh at this nasty system it does.good luck hope goes ok .1 other thing separate the points of order separate like xsample question 1 c etc wot ever apply s let them count the points in total up .terrible system

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will do my friend and thanks yet again ,

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Hi Ajay575 sorry it has been so long since my last reply but been awaiting our tribunal , well my friend pips phoned today and turned over their stupid decision we have now been re-enstated to my wife's original benefits without going to appeal court we areover rthe moon my friend as you can probably guess , ,so thank you for your help in telling me not to give up as it looked like it worked all the best Trev ;)

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Hi that's great news great to hear glad. I have heard this a few times in the last month about turning decision before appeal hearing something must be going on.have a good break now hopefully no more stress for you both .have a good week ahead

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will do my friend the mrs earned it

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Hi Mel I’ve had both,much preferred the second one home visit. I think they are more respectful towards you when in your home good luck 👍

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Thanks Alan. I've heard alot of horrible stories 're home visit.

Had a stair lift put in, so guess they can see this is ligit too. Worried they'll take pip from me but can't see how xx

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Stair lift is self explanatory 👍I’m sure youlle be ok .going to the assessment places always goes against you I think as they tell porkies about you walking to the office ok,if you have to answer the door to them ,make sure you go super snail 🐌 pace😊

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Thanks Alan. My grown up son will be answering door etc.

This time next week it'll be over. Shall have more info for them as had a brain scan this morning and then Monday I'm to see the stroke consultant, so together with all my other illnesses 🤞

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Best wishes hope it’s all sorted out soon for you and you get a long award then you can put the worry behind you for awhile do let us know the outcome ajay and I like the pip posts lol😊

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Yes I shall do, thank you for your reply and help xx

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Melaniiej I WISH YOU LUCK SWEET BUT DO NOT ADMIT TO OR TELL THEM ANYTHING YOU DO SUCH AS HOBBIES THEY WILL USE IT AGAINST YOU AS THEY DID US ,ooops sorry caps

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Hi Melanie, try to have someone with you for support if you can. It made it easier for me as I had all my medication looked out and also supporting letters from medical professionals, i.e Gp and consultants. Also tell them about what you can't do on your worst days, not what you can do on your best days. Please don't push yourself to do anything physically, just because they ask you, if it's going to cause you pain or discomfort when they go. They will only assess that you can do it, not the pain you are in afterwards.

Hope this helps Melanie, and please let us know how you get on.

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Bless you, thanks for your reply.

I said at my last assessment that I didn't mean to be rude but I wasn't going to do the physical stuff, even more so this time cos what happened last week.

Xx

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Hello Melanie

I had my DLA to PIP assessment at home, without me asking for it to be here (I just asked for a morning appt due to anxiety & med dosages).

I had my sister with me, who would interject when my memory went, or when I couldn’t think of certain words. She also prompted me with certain things, such as showing them my legs (I have lymphoedema).

The lady who came was lovely, although she said that she only lived down the road, so I could run into her in the future 😆 When it came to the physical tests (eg stand and put arms in a certain position, etc) she said that I shouldn’t do them if they were going to excacerbate my pain.... so I didn’t do them. When my PIP award came through (low rate care, high rate mobility) it mentioned about my sister prompting me, the state of my legs & the fact that I could not do the physical movements.

I hope that helps. I am so sorry to hear of your recent stroke, but I hope that the docs are looking after you & that your recovery is a good one.

Take care x

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Hi thanks for your message. Sounds like it's a positive that they're coming here to 're assess.

My grown up son will be here with me as he lives at home and is off uni til October, so he'll help with stuff I forget.

Guess I'm basing it on being assessed last year at the centre, lady seemed like a robot xx

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Mine wasn’t a good experience. She seemed very nice but ended up telling a pack of lies in her report. I was turned down. Be very careful what you say and do. Sorry to hear about your stroke, hopefully they will see how bad you are. I had to take mine to appeal and won. Good luck xx

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nice to hear you won Tazzy we may have to do the same(appeal)as the mrs was only granted standard mobility ,and the same as you suffered the assessor lied through her teeth,they used that she can read a book , there words were avid reader lol ,she can make cards but of course they missed the words used to as she is in too much pain to do so now ,And that she can colour in ,how parthetic is that , but best about it is (if there is a best lol) they assessed her on a replaced hip and not the other illnesses ,ie Fibro , divertucolosis, cancer in a gland on her neck ,nerve endings shattered , chrones and Co p d, that was diagnosed when she was 4 hours from death ,yet others get the award for the C O P D alone , tbh mate the system stinks , bring back the proper consultants and gp's to do the job . they did it properly

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I didn’t get a single point after my assessment. I have fibro, osteoarthritis and disc bulge and narrowing in my neck. I ended up getting standard daily living, needed 4 more points for mobility. Aids get you points. Bath seat, toilet seat, perching stool, walking stick etc. If your wife doesn’t have any of these get in touch with occupational therapy. I too made cards, used to was ignored by assessor too. You have to be so careful what you say. Good luck with appeal! Don’t give up!

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will do tazzyjm and thank you for the reply ,my wife has the aids they gave her two points but happen'd to forget that I have to lower and lift her onto the loo and help her get there

,and also they kept mentioning that I had bought her aids privately , I only bought her a shower seat lol the rest (ie toilet and sink seat and walking frame were from the nhs ,

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Thanks foryour reply xx

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Thanks for your reply. Mine is for a reassessment as I already have pip. Fingers crossed that all will be ok xx

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Good luck with it. Hope it all goes well.

I had a Dla f2f at home and was grand. I was awarded it indefinitely. Have now to do the pip one.

Not looking for to it. It’ll be at home. But although I get massive help from my daughter and son I also tend to hide things. I hide the fact that I self harm. And I feel like the minding ur head tv advert we’re the guy goes off home leaving mates. And looks in the bathroom mirror and takes off a false face. This is exactly what I feel like. I pretend a lot to people to hide the true me for fear too that my mental health will get me put away.

I have secluded myself from the outside and only go out with my mum dad husband and kids. I darent go out alone unless it’s 5 mins away to doctors. Then it’s rush home again.

Sorry for hijacking ur question just a lot of ur concerns feel like mine and I too wanted to know the answers. But couldn’t have someone there who would find out the real true me.

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Hi thanks for your reply, sorry to hear about your struggles.

I'm sure when the time comes you'll be fine. It's very nerve racking xx

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just had one done for my better half they failed her the assessor lied through her teeth , ,though she has about 7 other issues and three very serious they assessed her only on a hip replacement which takes 18 months to heal , guess what they gave her 18 months standard pip ,people I know very well have only one of her illnesses (copd)and have been given enhanced ,my thoughts are the awards are worked on Targets and whichever side you fall on that's what you get , whether you are ill or not is of no consequence ,

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Thank you xx

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I had home assessment this week she was a awful wouldn't let me answer the questions as I wanted to told me most refuse to move so don't bother trying to move. then told us that all cars were now fitted with trackers and couldn't be used unless the disabled person was in the car total opposite of what mobility said to us but she was scaremongering. have to wait 6-8 weeks for response.

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Oh dear, that's not good at all. Don't understand the tracking bit, obviously she doesn't know what she's on about xx

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hi all just want to say pips phoned today and have reversed their decision we have now been re-enstated to our benefits this was greatly received and made Christmas a possibility once more ,but won't add up to the month's of suffering we went through but that said I will take it , also we never had to go to appeal which was schedual'd so they know they had made a wrong decision ,

Andwith that folk's please keep fighting your cases you never know when you will win

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