Comming to grips with Fibromyalgia

[alwaysforgiven]

This is a disease that is so exasperating and sometimes overwhelming. First, the symptoms are so diverse that I am have stopped asking Doctors unless it is a constant symptom. I have so many pains that come and go that I try to ignore them as much as possible. The disease not only causes pain but also messes with my thinking.

Because this disease is so misunderstood there are so many well-meaning people who try to give advice. The advice they give tends to make me question myself, my doctor and my choices. I am told the medicines my doctor has prescribed will cause me to have early Alzheimers, or that the doctor has me on way too much medicine. People are telling me essential oils will cure me. Just eat a gluten free diet and all your symptoms will go away. So I try them and always come back to the same thing. The only thing that helps me keep going is the treatment my doctor has set up.

Keep going, trust yourself and your doctor and don't give up. God is good!

[Beachcomber53]

Thank you for putting into words how I’m sure we all feel about this wretched disability.

The weirdest thing about it for me is, that on good days, everybody on here overdoes it - as if the brain cannot accept that fibromyalgia is ongoing and just clicks into “I’m better” mode. Every time I feel a bit better I get caught out when I overdo it...... why can’t I just learn to accept that this is it? Acceptance is going to be the hardest lesson for me to learn l!