Don't know if anyone else gets these symtoms but.....
At times I get that when I'm walking everything is on a slant and that I can't seem to walk straight is this an example of brain fog ....everything is muddled in my brain ... Getting it quite often like I can't function properly ... Getting quite worried x
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Jo-lee69
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not so much drunk and staggered, but like wading through treacle sometimes and others its like I need to make a conscious effort to move each leg individually and carefully place it - I worry its just overthinking it at times.
one thing I think everyone here can relate to above everything else is the difficulties in describing their experiences, brain fog or not.
its not fibro specific, the world at large has this issue, the human experience is called the experience for a reason - because we cannot describe but a fraction of what it is to live it, healthy or not.
I think that's why we (and by we, I mean anyone but me) are so good at art, music and other expressive forms of communication, cos we suck at describing feelings and experiences.
yes I can relate to that, I cannot climb stairs, my brain just doesnt tell my legs to lift themsleves off the floor and move upwards, I trip at certian points, if i try to walk up an incline I have to lean forward to tell myself to push hard to get to the top, I avoid stairs and use lifts or escalators, it tires my legs badly.. I find hydrotherapy helps to pump up the muscles, I get 6 weeks in and 6 weeks out of the pool,. to allow room for others to join but the 6 out soon tell their toll.
mine isn't debilitating to that extent, I don't trip often, if at all, but there is a definite disconnect that happens at times and instead of the natural flow of walkin, its an effort to make sure it goes properly.,
hoping it doesn't get worse but if hydrotherapy is needed I will hit you up for advice if you don't mind
Yes , like Annmurry said, it happens quite a lot to me as well. When I suddenly turn my head whilst walking in town is worse because I stumble on a flat surface, feels a bit like you’re on a ship on a stormy ocean, which seems impossible, getting pitying looks into the bargain, very infuriating when people assume you’re drunk.
If you’re worried it’s a good idea to mention this to the doctor on your next visit, just to rule anything else out .
We call it fibro-drunk.... If I'm only walking a short distance and don't use my crutches I normally hold hubby's hand to help keep me straight... Or me and my daughter hang onto each other and stagger together 🤣🤣🤣
Yes, forgot about the dreaded steps, gripping the hand rail and down each step slowly. It’s definitely unpleasant. Strangely going up is ok, not sure why.
Yes, going down steps is bad and I have to hold on the handrail. Going up is bad too for me as I often feel like Im falling backwards, so again I have to hold on. Feel like I am 80! I was going down some steps at the weekend over a bridge, I was holding as usual, then an old lady was coming up the same side holding on tight. It was like a stand off, we looked at each other like who was going to let go, obviously I let go as I am a gentleman but I nearly fell!
Yes I can relate to that. I’m not 60 yet but like you feel far older than my years... I can just see it, elderly lady creeping up the stairs, becoming a rock in the stream gripping the handrail for dear life, and you seeing the mixture of fear and determination in her eyes give way almost falling in the process. Difficult situation.
I tend to lean forwards and walk steadily up the stairs in order to avoid feeling like I’m falling backwards , whilst gripping the handrail, younger people sometimes give way and I think “hey, I’m not that old “ but at the same time I’m grateful they do.
I have recently decided that railway stations are the most difficult staircases to use, very steep and everyone in a dreadful rush.
I am just the same. It's awful and debilitating at a youngish age.
the effects of medication, fibro fog, cog impairment, I have to keep a daily diary and a calender of what I am doing the next day (sometimes this day) and a diary too otherwise I forget appts, I struggle to walk long distances- like the shops, I have my food shop delivered, my medicaton delivered.. Loss of sleep catches up with the mind and body too,, make yourself a word document of how your illness affects your daily life and incl personal hygeine, reaching cupboards, getting in/out of a bath, getting off a bus or out of a car etc. every little and big thing that make life difficult-in the future if you need to claim benefits all this is importnat information to get across and ot just a list of illnesses.
Ahh thank you so much for the info ... I'm defo gonna start doing that now .... If I can remember to start it !!!! Hate this, feel at times a failure, whilst others think it's fake .... Still let the fibro warriors among us stay strong xx
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Thanks NurseGladys123
Very useful information and practical also. Good point about bringing up reaching up for things and personal hygiene. I can struggle with these myself on occasion .
Oh yes, the wibble wobble walk - one of the many reasons why I can't wear my beloved heels much anymore. I used to be inclined to walk to the left as though being pulled by an invisible rope - it helps if you have someone to hold onto. However as with any symptoms if it is getting worse, may be best to check it out with your GP. Take care. x
I also suffered badly with migraine like headaches and my GP prescribed beta-blockers (Propranolol) for them and I found once I started taking them, although I still have the odd unsteady moment, it did improve my wibble-wobbles quite a bit. x
me too. I don't think gabapentin helps which is what I am on. not sure but my memory is getting worse, always feel lifeless and dizzy when walking anywhere/drunk feeling. feel totally spaced out and weak like a rag doll all floppy. x
Ah yes, the balance problem where the door frames close in just as you try to walk through them, where you can fall over a completely flat level floor - it's a talent I have in abundance. I now use a rollator when out and about as it keeps me on the straight and narrow. I still find it difficult at home going upstairs - I seem to either think there is an extra one or miss the one at the bottom completely.
Oh yes I can totally relate, fell into door frame last Monday and bruised my arm, I have to use either a crutch or a walking stick when out, mangers at work don't get it and keep asking me when my walking will get better. Big lol 😁 hugs 🙏 xx
Yes i have been like this over a year now but didn't know why. It was only until recently when I was diagnosed with fibro that it made sense. Most of the times I hold a family members hand while I'm out now as I fell a few times.
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