Fibromyalgia Action UK
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HELLO NEW FRIENDS,IM MOUSEY,

HELLO EVERYONE,MY NAME IS MOUSEY,AND I'M NEW HERE,IT MAY TAKE ME A WHILE TO GET THE HANG OF THINGS,AND LEARN HOW TO POST THINGS,

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Well u done ok mousey! U have posted 😜

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THANK YOU LULUBUBS,I AM LOSING MY EYESIGHT AND SO THATS WHY I TYPE IN ALL CAPITAL LETTERS, IT'S NICE TO MEET A NEW FRIEND.

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HEY MOUSEY

SHALL I WRITE IN THEM TO THAT WAY YOU CAN SEE MY POST TO...

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THANK YOU THAT WOULD BE AWESOME ,I REALLY APPRECIATE THAT

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Hi MOUSEYG40 and welcome.

Congratulations, you made your 1st post.

Sorry to hear that you are losing your eyesight.

If you need a wee chat there are plenty of lovely friendly people here to chat to.

Wishing you all the very best,

Mags 😁

PS.. SORRY, NEXT TIME I WILL ALSO WRITE IN CAPITALS. Xx

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THANK YOU SO VERY MICH,WHAT IS A WEE CHAT,

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SORRY, THAT'S JUST THE WAY I TALK WHERE IM FROM.

MEANING, IF YOU EVER WANT TO TALK XX

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OH COOL ILL CATCH ON, YOU TALK JUST FINE,😁

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Hi Mousey

welcome to our happy little band. Nobody particularly wants to be in our Club but we make the best of a bad deal. You will always find someone here ready and willing to offer advice, listen and understand when you need to rant and also have a laugh about the silly things that happen to fibro folk. No question too silly because someone somewhere will probably have thought the same thing or asked the question in the past. We all support each other as best we can. The site is generally a little quieter at the weekends but no doubt as we are now two minutes into Monday more folk will be along soon to give you a warm welcome.

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MAN Y'ALL ARE SO VERY NICE,AND YOUR RIGHT ITS NOT FUN BEING SICK,BUT ITS VERY GOOD TO KNOW YOUR NOT ALONE,THANK YOU MY NEW FRIENDS, SORRY I TYPE SO SLOW.

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Don't worry about how slow you type.. we are all here and have lots of time for you and each other.

And yes, it's not fun being sick but it's great that there are people in the same boat and we all understand what we each are going through. 😁

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I HAVE WHAT THEY CALL PROGRESSIVE MULTIPLE SCHERLOUIS,AND WITH THAT COMES THE FIBRO-THATS WHY IM LOSING MY SIGHT,I CAN ONLY SEE OUT OF MY RIGHT EYE, NOW,IM SO SORRY YOU ALL ARE IN PAIN,AND SICK.

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WE ALL A GOOD BUNCH ON HERE MOUSEY.

MOST OF US HAVE A GENERAL AMOUNT OF THINGS WRONG WITH US NOT JUST ONE. I THINK I AM IN ABOUT 3 GROUPS ON HERE LOL. WE ALL HELP EACH OTHER AND GIVE ADVICE OR ARE HERE JUST FOR A LAUGH OR CHAT. WE ALL UNDERSTAND EACH OTHER THATS WHY..

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SORRY I FORGOT TO WRITE IN CAPITALS ON MY LAST POST. 😬

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THATS OK YOU HAVE NOTHING TO BE SORRY ABOUT,

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I WAS SO AFRAID TO JOIN THIS, BUT I SAW SOME POSTS FROM SOME OF Y'ALL,AND I WAS AMAZED AT THE COMPASSION,EVERYONE HAS FOR EACH OTHER.MY HUSBAND KNOWS I HURT AND I M SICK,BUT PEOPLE DON'T REALLY UNDERSTAND HOW THE PHYSICAL PAIN BECOMES MENTALLY EXHAUSETING .

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WE ARE VERY HAPPY TO HAVE YOU HERE MY FRIEND. THE MORE, THE MERRIER.

AS THE SAYING GOES, " YOU LOOK GOOD, HOW COULD YOU BE SICK?"

SOME PEOPLE JUST DON'T GET IT UNLESS THEY WALK IN YOUR SHOES.

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I'VE HAD PEOPLE LOOK AT ME AND SAY, YOU DON'T LOOK SICK,I DO MY BEST TO SMILE AND CARRY ON WITH EVERYONE,I TRY NOT TO LET EVERYONE SEE JUST HOW BAD I REALLY FEEL.

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I'VE HAD THE SAME COMMENTS - MY RESPONSE

AND YOU DON'T LOOK STUPID SO I GUESS WE ARE BOTH WRONG

I HAVE A STICKER IN THE BACK OF MY CAR WHICH SAYS "NOT ALL DISABILITIES ARE VISIBLE" HAVE TO SAY THE COMMENTS ARE MUCH REDUCED NOW WHEN I PARK IN A DISABLED PARKING SPACE

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I WOULD NEVER WISH ANY KIND OF SICKNESS ON ANYONE,BUT I KNOW IF SOME PEOPLE HAD TOO WALK IN OUR SHOES,THEY COULDN'T DO IT

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THAT IS VERY TRUE... I'M SO GLAD THAT THERE IS MORE AWARENESS ABOUT FIBROMYALGIA NOW THAT WHAT THERE WAS JUST A FEW SHORT YEARS AGO.

A LOT OF PEOPLE HAVE NOW COME TO UNDERSTAND THE CONDITION BUT THERE ARE STILL THOSE WHO DON'T THINK IT IS A GENUINE CONDITION STILL- AND THAT'S SAD AND FRUSTRATING.

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YES ITS VERY SAD, PEOPLE CAN BE SO HURTFUL WITH THEIR OPIONS,OF FIBRO--MS--PTSD--ITS A SHAME.

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I WENT TO THE DOCTOR THE OTHER DAY-&-MY DOCTOR WASN'T THERE,SO I WAS TELLING THIS NEW ONE THAT IVE BEEN EXTREAMLEY DEPRESSES,AND WHEN I TOLD HER I JUST LOST MY GRANNY,AND HOW DIFFICULT THIS IS SHE SAID IM NOT GOING TO GIVE YOU ANYTHING FOR YOUR NERVES OR DEPRESSION, YOU NEED TO GRIEVE, JUST LET IT GO,SHE WAS OLD LET IT GO,

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HI THERE. WELCOME. YOU HAVE CHOSEN A GOOD GROUP TO JOIN. WE ARE A MIXED BUNCH SO YOU WILL HAVE LOTS OF INFORMATION TO CHOOSE FROM. HAVE A GOOD DAY AND TAKE CARE XXXX

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Hi mousey I'm new too so pleased to meet you,hope we both find comfort and support on hear.Everyone seems very friendly which is lovely .

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Hi Lill, welcome to you too. Hope you find the help and support you need here. Good luck. 🍀 Jen. 💕

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I'VE NEVER JOINED ANYTHING LIKE THIS BEFORE,IT VERY LOVELY HOW EVERYONE IS SO L KIND.

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HELLO AND WELCOME TO THIS VERY FRIENDLY AND INFORMATIVE GROUP.

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HELLO NICE TO MEET YOU,THANK YOU FOR BEING KIND, AND WELCOMEING ME

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Hello.

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HELLO NICE TO MEET YOU KITTEN,I LOOK FORWARD TO BEING FRIENDS WITH EVERYONE.HOPE YOU ARE HAVING A WONDERFUL MORNNEN.

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How's your day going? I have a flair at the moment.

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Hi Mousey, welcome. I'm sure you'll soon get the hang of it and they're a great bunch on here who will try to help as much as they can.

Hope you find the help you need here, as I'm sure you will. Welcome to our little family. 😊 Jen. 💕

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THANK YOU FOR WELCOMEING ME TO THE FAMILY 😃I WRITE IN CAPPS CAUSE IM LOSING MY EYESIGHT,I CAN ONLY SEE OUT OF MY RIGHT EYE, AND I USE MY CELL TO COME ON HERE.ITS NICE TO MEET YOU.

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YOU'RE WELCOME AND FROM NOW ON I WILL WRITE IN CAPITALS TO YOU SO YOU CAN SEE MY POSTS BETTER. HAVE A GOOD, PAIN FREE DAY, IF POSSIBLE, WILL TALK AGAIN NO DOUBT. 😊

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Welcome to the FMAUK Community MOUSEYG40 ! :)

I am sure you'll find this community a helpful and supportive place to be ! :) There's lots of posts to read and many lovely members to talk to as you learn to live with Fibro 24/7.

Please can I provide you with the FMAUK website which has a wealth of information about Fibromyalgia which may be of help to you

fmauk.org

As a newbie, please can I mention that members prefer to answer posts that are locked to this community only. If you wish to do this, here's a link that explains how to do it;

healthunlocked.com/fibromya...

Sorry to hear you have problems with your eyesight, please do look at your computers accessibility options which will help you to read the posts.

If you have any trouble locking your first post do let me know and I'll look this one for you. Any future posts if you wish to choose 'community only' you need to click the 0 for this option before posting.

Enjoy chatting to everyone! :)

All the best

Emma :)

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Hi,

I appreciate that you are finding it easier to read and type in capitals. However on the internet this is seen as shouting. However, beyond this there is the fact that all capitals will make it more difficult for others to read. All Capitals remove the font characteristics that allow people with dyslexia and other visual challenges to be able to dscern different words from each other. As part of our publications guides advice we would not use all capitals with any frequency.

I am sure there are people that will not read your posts due to being in all capitals so your readership will be automatically reduced. There are a number of technological assistantacy methods that may help you work with websites such as windows magnifier or narrator. I would suggest that it may be worth looking into this for your own benefit.

I personally find it much more difficult to read posts in all capitals than normal capitalisation and as such I will not read your posts unfortunately.

some reference information:

dyslexia.ie/information/com...

"For people with dyslexia, the ability to read and understand text can be affected by the way in which text has been written and produced.

If you are producing information to be read by others, it is important to remember that up to 10% of your readers may have dyslexia.

Dyslexia friendly text will have improved readability and better visual impact for all readers, but especially those with dyslexia.

The following are some simple recommendations to help ensure that your text is dyslexia friendly: ... Use lower case letters. Avoid unnecessary use of capitals. Using all capital letters can make it harder to read, and it can also appear that you are shouting at the reader."

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Oh no I promise I wouldn't yell at anyone, I am so sorry if I made it harder for anyone to read my posts,and I would never want to hurt anyone's feelings in anyway.thank you so very much for explaining this stuff to me. I am new to the internet,so I really appreciate your advice to me friend,.my oldest son is dyslexic so I understand.hope you have a great day.

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Thanks for your understanding. Can possibly lookout some links that may help if I know what sort of device you use to access here

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I'm using my cell phone it's a motoze4,androi d had to ask my husband what my device is. I am not technically .thank you as well,I appreciate your help.😉.

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this may be of help:

"Built-In Accessibility Features in Android

Mobile devices powered by Google’s Android operating system come with some AT features similar to those in iOS. These can be activated in the Android device’s accessibility settings and apps.

For reading issues: TalkBack is a screen reading feature of Android that uses TTS technology to read aloud text from websites, email and more. The tool’s voice can be changed, and the reading speed can be adjusted.

For writing issues: Like iOS, Android has built-in dictation. By pressing the microphone button in the onscreen Google keyboard, kids can type with their voices into any app. The keyboard also has built-in word prediction, which is active by default. It suggests words that kids might be trying to write as they type.

For motor skills issues: Assistant Menu is a feature that displays an onscreen menu of actions that require motor skills (like adjusting the device’s volume or taking a screenshot). It then offers easier onscreen gestures (usually just a tap or small finger swipe) to complete those actions.

For attention issues: If your child is easily distracted by an app’s bells and whistles, the accessibility feature called Interaction could help. This tool lets you disable certain app features so your child won’t be tempted to use them.

For organization issues: Like iOS, Android devices also have a built-in calendar tool. This tool can help kids remember important dates and tasks."

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Hi MOUSEY, THE MORE THE MERRIER! HOW LONG HAVE YOU BEEN A FIBRO SUFFERER? YOU"LL GET THE ANSWER TO MANY OF YOUR QUESTIONS HERE. YOU MAY FIND THAT OUR SENSE OF HUMOUR IS A LITTLE WAY OUT........FIBRO-FOG DOES THAT TO US !

C'MON BACK, RUBBER DUCK. J XX

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