No Fun~Fybro: Hello all, My diagnosis... - Fibromyalgia Acti...

Fibromyalgia Action UK

59,982 members67,147 posts

No Fun~Fybro

Jules-Grove profile image
6 Replies

Hello all,

My diagnosis came a year ago with Fybro (never heard of it), however, my life and that of my loved ones for the past the years have been uncertain from one day to the next and cannot plan.

I have joined here to gain as many tips and advise I can for help from you all so I can start to rebuild my life..... Please help

Written by
Jules-Grove profile image
Jules-Grove
To view profiles and participate in discussions please or .
6 Replies
Jules-Grove profile image
Jules-Grove

#three years

Mdaisy profile image
Mdaisy

Welcome to the FMAUK Community ! :)

I am sure you'll find this community a helpful and supportive place to be ! :) There's lots of posts to read and many lovely members to talk to as you learn to live with Fibro 24/7.

Please can I provide you with the FMAUK website which has a wealth of information about Fibromyalgia which may be of help to you

fmauk.org

As a newbie, please can I mention that members prefer to answer posts that are locked to this community only. If you wish to do this, here's a link that explains how to do it;

healthunlocked.com/fibromya...

I also noticed you may find 'How to edit your post link?' helpful too, see below

support.healthunlocked.com/...

I'm sure I'll bump into you around the community

All the best

Emma :)

in reply toMdaisy

Emma was it you who told us about The Right Stuff yesterday?? did you watch what was said? I had a poorly cat and misse dit I should have recorded-doh! fibro fog in the mornings.

Mdaisy profile image
Mdaisy in reply to

Yes I updated the post seems to have been postponed due to Valentine's Day. Will look at there social media later to see if they are discussing it this week and let you guys know! :)

Welcome hun- I too cannot organise my life and i retired with fibro 18 months ago, so many things I planned have flown out of the window as like you;I cant organise my daily life, I have hospital appt,s and i go because they are the people who will see your suffering, outside the hospital I find people dont want to listen, they cant see anything so they doubt your illness. Could you find yourself a hydro pool nearby-ask gp for referal, that started me off mixing with people again, the right sort of people who suffer like we do and understand, we often go for a coffee after the pool session and sometimes dare to go the pub...

Dizzytwo profile image
Dizzytwo

Hi there, I would just like to jump on and wish you a very happy and warm welcome to our great group :) Our members are the best and always ready to offer support. If there is anything you need help with please just ask any of our lovely admin. I hope you have a pleasant evening xx

Momo

Not what you're looking for?

You may also like...

fybro diagnosis

I have advanced osteoarthritis on hands elbows and wrists that has been confirmed however I have...
Lorilal profile image

fybro fog...........

i have fbyro, osteo arthritis and ankylosing spondylitis, my memory is very bad and minutes after i...
Bigmamma43 profile image

My Fybro

Good evening everyone, I really need to rant at the moment, so i will start from the beginning.......
maxii123 profile image

Fybro & CBD - homemade cream

I have been diagnosed with FM 3 years ago, just before the first COVID-19 lockdown . As almost...
Polly-S profile image

Recognising fybro pain

Please tell me I'm not the only one struggling to come to terms with fybro. I am worried that the...
tigsyfefe profile image

Moderation team

See all
Hazel_Angelstar profile image
Hazel_AngelstarAdministrator
Lynda_FMA_UK profile image
Lynda_FMA_UKModerator
Sarah_fmauk profile image
Sarah_fmaukModerator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.