Fibromyalgia Action UK
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High Heart Rate

I’m 22 and I’ve been diagnosed with Fibromyalgia for 5 years. Over the last year I have had a really high heart rate usually sitting around 100-160 bpm. Currently being investigated by a cardiologist but I was just wondering if anyone else has had similar issues and is it related to Fibromyalgia?

Any help or suggestions would be greatly appreciated!

16 Replies
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Have you had your thyroid function tested ?

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All my test results come back normal. Only thing was slight inflammation but nothing else. Having a heart rate monitor fitted next week just wondered if there was anything that was known to be linked to fibromyalgia.

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I advise you get copies of your results to see for yourself where within the ranges you come, "normal" means very little, as long as results fall within a given range they are deemed "normal" which can be so very wrong.

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Is that for your resting heart rate or when active?

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Yeah it is. I’ve noticed it goes up by 30-40 bpm when I stand from sitting which I’ve seen mentioned in a lot of POTS information.

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It does seem very much like that maybe the cause. Hope you get some answer soon xx

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could be Postural Tachycardia Syndrome, Google PoTS UK, thats a site dedicated to the condition.

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Thanks for the reply. I have been looking into Pots today and I seem to tick a lot of the boxes. Will hopefully be able to investigate this with cardiologist soon!

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Hi hun from another fed up red head (these days with a few grey bits too) I have recently started to show high blood pressure and rapid pulse I have to take it daily (gp asked me to) and record it, its quite frightening when you know its too high, I have been told that pain makes b.p. pulse and HR go mad. Today I will see a spinal doc for cocxydenia which has been driving me mad for 3 years, I know i did the damage were I used to live bumping up n down stairs on my bum because I couldnt climb the stairs, Im now in a disabled flat but the pain has moved along to lower back muscles, down left thigh I know this is called referred pain, I,m finding although I have tramadol & paracets for my fibro its only killing the pain for 2 hours in cocxy area so I hope I get some answers today believe me Nurse Gladys is not taking NO for an answer today..,. Let you know later or maybe tomoz.

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It is scary I try and not check it too often incase I am raising it by stressing out, cardiologist said that it is consistently impressively high so will look into it. Just so frustrating when you have so many overlapping issues to keep on top of. Feel like I’m putting fires out all over the place! Hope your symptoms get better soon and you get the help you need, can be so frustrating having to constantly defend yourself to doctors.

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I have this. I also have M.E and my Rheumy said mine was a side effect of the sympathetic nervous responses to M.E.

But you must get it checked out. I had a 24hr heart monitor which showed nothing plus blood tests to rule Thyroid probs out. Then as everything was normal My G.P gave me Propanolol to help the symptoms which it does.It helps stop the night time thumping in my head!

As M.E and Fibro are so closely linked then it could just be Fibro but as I said get it checked out.

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I had the same thing I went for an ecg but it came back normal I tried to explain that it isn’t all the time but comes and goes. I was told by my doctor it was all in my head. I still get it but it’s not as bad once I found out the muscles in my chest were inflamed making the issue worse. Had to see another doctor who also didn’t really believe me and thought I brought it on through breathing too fast, well she was wrong.

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I feel your pain. I’ve had numerous doctors tell me it’s in my head or that it’s just anxiety even though it most definitely isn’t, I’m generally a very laid back person. Very frustrating not being take seriously! Thanks for your reply. X

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I also have a resting heartbeat of above 100 so I am following this to see what other people say. Jacky xx

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Sounds like PoTS, please google and see if you recognise yourself in the symptoms. take care x

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I’ve looked this up and seems to tick all the boxes thank you. It doesn’t bother me at the moment I’m just concerned about long term effects of my heart beating at such a high speed. Thanks again! X

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