New and confused.

[jebus3rd]

hi All, im not sure I belong here, it was a passing comment by my Doc, but as all other avenues have closed, im sorta hoping I can maybe find answers here.

not sure how to proceed? do I just spill my guts like this? or is there one to ones? sorry totally green, any advice most welcome

[aud01]

Hi there and welcome

It is entirely up to you what you want to divulge ..... we have lots of lovely people on here who will answer any post and questions you have to ask .. people will give you their own advice as not everything works for everyone ..... admin may answer you if you want io talk discretely ..... or any lovely member will ..,.,

We all tend to ask advice in here and most people get lots of replies .. we are mostly a friendly bunch although it sounds like we moan a lot we are merely letting off steam ....

So feel free to talk away and welcome to our lovely home ..... as it feels like this most days .. have a view through the chats and that and see if anything maybe already answers some questions. You have

Take care and big hugs. Xx

[jebus3rd in reply to aud01]

thanks for that, good to feel welcome, just hope I aint wasting anyone times.

[Ramjets]

Hi jebus3rd , please don’t feel nervous, the forum is here for anyone who needs help and advice regarding fibro and related conditions. I take it from what you have said that your GP has mentioned the possibility that you may have it but has not taken it any further? Unfortunately one of the issues with fibro is that it does share symptoms with various other conditions and as a result it can take numerous doctor/hospital appointments, tests and many months (sometimes years) until everything else has been ruled out. It is typically a Rheumatologist who will diagnose fibro, so if every other avenue has been explored, I would ask your GP for a referral.

In the meantime, welcome to the forum lovely, I hope you keep posting as you will receive lots of support from our friendly members. There is also plenty of useful information and links on our main site so you may like to take a look at this:

fmauk.org/

Also I notice you haven’t locked your post. You don't have to do this but you are likely to receive more replies if you do as many of our members are not keen on responding to unlocked ones, as they can be accessed by people outside the community. Instructions on how to do this can be found on the link below but if you get stuck, please don’t hesitate to ask for help.

healthunlocked.com/fibromya...

Take care and do keep us updated on how you get on. x

[jebus3rd in reply to Ramjets]

brilliant, thanks, I re-did my second post and locked it.

good info there thanks for that.,

im very early on, we had a wee brief discussion, and I doubt its what I have, but best to speak to the afflicted rather than the unaffected for advice I thought.

hope that's ok?

[Ramjets in reply to jebus3rd]

That's fine, the forum is not just helpful for those with a formal diagnosis but also for anyone who thinks it is a possibility. I am great believer that knowledge is power so the more you learn the more you can help yourself. I really hope that you haven't got it as there is no recognised "cure" for it at the moment. I just hope whatever ails you can be identified and sorted as soon as possible. x

[jebus3rd in reply to Ramjets]

im thinkin im in the wrong place batman, sure my pain is unpleasant, and the chest pains scary, but readin the stuff here, man im not in the same league. these people are genuinely suffering on a daily basis.

it was nice to be made feel welcome, but ill maybe lurk about a bit longer and not be posting.

sorry. and thanks again.

[Ramjets in reply to jebus3rd]

That's up to you hun, no pressure. However fibro does affect people differently and whilst some people do struggle daily and are in terrible pain, some are not so afflicted and manage to work and lead a reasonably normal life. I know I am nowhere near as bad as some of our members but I still need advice and support now and then. Plus it's nice just to come on and have a chat or a bit of a laugh. You do whatever you are comfortable with but please don't feel you are not justified in being here. Whatever you do, good luck and look after yourself. x

[jebus3rd in reply to Ramjets]

always, and same to you my new friend, I dunno what to do im im honest.

head says overreacting, heart says overreacting, and u don't wanna know what the stomach says.

tell you something though, if it is arthritis, I might count that as a win after being here.

[Ramjets in reply to jebus3rd]

If you are waiting on results then not much more you can do a the moment. I know before I was diagnosed, my patience was stretched to the limit waiting on one test result after another. That in itself can be stressful so it can help to have somewhere to go when you are feeling sorry for yourself and can have a little moan. Some might agree with you about the arthritis but I wouldn't want that either to be honest! x

[jebus3rd in reply to Ramjets]

god the waiting, honestly, its soul destroying lol.

the NHS is something this country should be immensely proud of, but man do they need a revitalization.

when I come to power, that will be top of my list - I will petition every doctor and nurse and they pick who runs the show, no more politicians in the mix

then maybe we can proceed at a non-glacial pace.

I tend not to moan too much or feel sorry for myself, and certainly wont after coming here

[desquinn Partner Volunteer FMAUK Trustee in reply to jebus3rd]

why not get a first enquiry pack sent out to you and read over the info and see if that clears up any questions?

fmauk.org/resources

[jebus3rd in reply to desquinn]

I will maybe once/if they rule out arthritis.

I don't want stuff floating about the cavernous space between my lugs giving me ideas lol, I only just learned about the fog an am now convinced I have been having it on off for months,

I shudnt make jokes sorry, humour is my go to guy.

[Ramjets in reply to jebus3rd]

Don't apologise for having sense of humour, no-one thinks fibro (or any other chronic condition for that matter) is a joke but having a sense of humour definitely helps me cope. x

[jebus3rd in reply to Ramjets]

I defo don't think it's funny but yeah a sense of humour is often a good recourse for unpleasant circumstances. Heres hoping I don't need it n

[ruthphoenix]

hugs hun and we are a freindly bunch fighting this battle of this thing that life for some reason has given us but its apprently a bu** poo illness as my doctor has told me so many times xxx

[jebus3rd in reply to ruthphoenix]

thanks for the response.

I know next to nothing except it cant accurately be diagnosed, and that I don't want it lol.

fingers crossed.

[Dizzytwo Moderator]

I very sincerely hope you don't have it too. But please remember if you do get a fibro diagnoses it will not kill you it only feels that way at times lol I've had it for 30+ years and I am still breathing. We all suffer at different levels so please don't think the worse you read about this illness means everyone suffers that badly.

Many still hold down a full time job,run a home and raise a family. For others is can really be soul destroying and the pain too much to bear. One thing i have found we still know how to laugh and try for the most part to keep an optimistic outlook. It's what keeps most of us going through the bad days. So never be sorry about having a laugh it's not all gloom and doom in our group most have a wicked sense of humour no names mentioned Ramjets LOL

Momo

[Ramjets in reply to Dizzytwo]

Who moi? lol. I am on my best behaviour Momo x

[Dizzytwo Moderator in reply to Ramjets]

Yes but it is only Monday Ramjets LOL xx

[Ramjets in reply to Dizzytwo]

So it is he he x

[jebus3rd in reply to Ramjets]

Lol good. I don't know what I would do if it took my humour from me.

If I have it.

Which I probably don't.

But I'm sure I'll fit right in here if I do.

Which I won't.

[Ramjets in reply to jebus3rd]

Fingers crossed that is true

But you're very welcome if you do. x