New here.

[LesJames]

Hello,

I have been on other forums because it was thought I had RA, APS. After all the tests and 10 years of struggling I have now been told I have Fibromyalgia. I still have Hughes syndrome, Sjogren's and Temporal arteritis. So now I am to come off Methotrexate, I am already down to 10mg of Prednisolone, I can't go any lower because of Adrenal insufficiency. And a mass of pain killers. I still have trouble sleeping and am in pain all over and in all joint, my feet are really painful and this happens whether I walk or not. I still feel as if there is something else but I am tired of fighting and my bloods coming back normal. I have often thought that if I am taking immune suppressants then my levels will reflect this, but hey I am just a humble patient what do I know.

thanks for listening!

[Ramjets]

Jeez Les you have been through the wars hun haven't you. I'm afraid your story is very familiar. You will find most of us have been through years of pain and numerous tests before finally being diagnosed with fibro so we can empathise with you. Hey and never underestimate yourself, yes we are patients but who knows our bodies better than ourselves? Never stop questioning, it's how we get things done. So welcome to the forum lovely, you have definitely come the right place to get lots of help and support or just a friendly ear if you need to get things off your chest. I look forward to seeing you around. x

P.S. Just a little tip - you are likely to get more replies if you lock your post as a lot of members aren't keen on responding to unlocked ones.

[Miss68]

You really are suffering aren't you. My feet also hurt due to fibro. It hurts when you get out of bed and try to walk from morning until evening doesn't it. Nothing seems to help either! Look after yourself Hun and your welcome to talk anytime x

[Dizzytwo Moderator]

Hi there LesJames a very warm welcome to our group. I see our lovely Ramjets has pointed out you may get more replies if you locked your post to keep it private and stop it going on to the world wide web. This link will help you to lock this and futer posts if you wish to do that. healthunlocked.com/fibromya...

If you need any further help please don't hesitate to ask

You may like to take a look at our mother site it has a wealth of helpful information

fmauk.org

Please feel welcomed and i hope you have a very pleasant day xx

Mo