Newbie rant

[Jurph]

Hi! I hope you all don't mind if I have a little rant and "get it all off my chest"?! I have a supportive family but they only understand so much and probably get tired of hearing it all.

I have suffered for about 10 years. Each GP or referral treated the single problem I had. First it was tiredness, then Anxiety and depression, then IBS, then the 'injured' wrist, ankle and back. Then it was the half a dozen 'pulled muscles' (including the trip to A & E with chest pain!).

I changed GPs and he suspected Joint Hypermobility Syndrome (I definitely have HM joints) and he referred me to the rheumatologist. This rheumatologist couldn't give me an answer and referred me to a surgeon for an arthroscopy on my wrist and suggested a shoe insert for my heel. As these are the 2 most painful, they signed me off and sent me back to my GP.

I had to go back to my GP as I was still suffering. He wasn't happy with rheumatology's findings (and lack of testing) and referred me to a small cottage hospital's rheumatology team.

My appointment was on Tuesday. It took him 20 minutes to read my notes, examine me and diagnose Fibromyalgia! I'm a little shocked as it hasn't come up in the 10 years I've been seeing professionals. However, I'm also a little relieved to finally have an answer!

Phew. Thanks for reading!

[Hidden]

Welcome☺this is the best place for a rant,a chat an we even giggle at times.its ridiculous its taken So long to diagnose fibro! Its seems too me people get diagnosed quite quick,or it can take forever,and now you know what it is a lot of doctors will be none the wiser an some don't believe it exists!!.it can be quite complex an even people who have had it for years still get surprised with some of the symptoms. But I get you its a relief getting a diagnosis,use this site there's so many great people on here an there's so much support,I think you have too have fibro too really know what it feels like.an you can learn so much being on here.hope to see you around ☺

[Jurph in reply to Hidden]

Thank you! You're right, just speaking to others with fibro is wonderful. Just to be able to say "I'm not too young, it is a real thing and it really does hurt"!

[Hidden in reply to Jurph]

Yes its been a god send finding this place for me.what have they saide they can do for you?

[Jurph in reply to Hidden]

Nothing yet. The rheum was miles away so he's sending his recommendations to my GP. I can then work with my GP with various meds and therapies.

I'm gutted to find my GP is retiring soon. Just when you find a good one...

[Hidden in reply to Hidden]

It's very frustrating to me. One minute I have Fibro and on the next visit not so, or she is not sure.. Grrrr. I wish there was a test somewhere that could say yes or no. or at least maybe or it's all in her head. Sheesh!

[Molly_1919]

Welcome to our mad little band 😊

[Hidden in reply to Molly_1919]

And bandetts Da doo lang da do Lang Lang Da do Lang Lang 😁

[rosewine]

Welcome. Unfortunately, it can be a long road to diagnosis. Sorry about GP retiring I had a wonderful one for 35 years, had just managed to "retrain" the next one when we had to move house. Hopefully the next one will be as good. It is actually a relief to get a diagnosis.x

[Hidden]

There is little so encouraging in our fibro lives like finally putting a name to the face of the beast. And when the name fits, we finally start to learn how to cope, and in some cases, recover. Congratulations on finally finding the right answer for you, and here's to getting it to the less painful stage..

[Pbyllis]

Hi same with me back and forward to g ps and hospital for ten years.