A CHARITY ORGANISATION FOR PEOPLE WITH FIBROMYALGIA AND OTHER CHRONIC ILLNESSES.

[Milton92]

Hi Everyone hope you are feeling as well as can be. I would like everyone to know that I have been informed about a Charity Organisation called SALUS FATIGUE FOUNDATION which is at 26A LICHFIELD ROAD SUTTON COLDFIELD WEST MIDLANDS B74 2NJ . however there is a group which has just started in Kingsheath at the ALL SAINTS CHURCH VICARAGE ROAD IN KINGSHEATH off the KINGSHEATH HIGH STREET BIRMINGHAM. The contact telephone number is 07809246674 and the email address is [e-mail]. I hope Everyone finds the group useful it supports people with Fibromyalgia , Chronic Fatigue and MS. Take care Everyone Lillian

[-caz]

Any in scotland ? Plz

[Milton92 in reply to -caz]

I would try contacting Disability UK on 02072508181 or Turn2US on 08088022000 they might be able to find out for you. Good Luck and take care 😁

[Mdaisy in reply to -caz]

Hi -Caz

You may like to contact FMAUK for information about any local support groups too, all the information can be found in this link below;

healthunlocked.com/fibromya...

Hope you find a local support group

Emma

[-caz]

Thanks

[rosewine]

Unfortunately, Salus appears to only operate within the Birmingham area but sounds as though it is a good organisation to contact if you are in their catchment area.x

[Milton92 in reply to rosewine]

Sorry the Head Office at Fibromyalgia UK will have information about Local groups in the UK. I was informed by an Health Trainer who used to help me with my nutrition so I would ask someone like that if you get support from them. I was referred by my GP after moaning to him but now Funding gone so no more HELP that is how it is it is what it is Dog it Dog World unfortunately. Good Luck but if I see or if I hear of anything I will definately let you know. 😁

[rosewine in reply to Milton92]

It is horrible how the availability of some services have been cut. I attended a Pain management clinic for about 6 years, initially weekly, then cut to 3 monthly, then 4 monthly for advice and electro acupuncture. Last April I was informed it would be my last treatment as the pain specialist was retiring so as they had no one to replace him all his Outreach clinics would cease. Since then I have been using my PIP to get private acupuncture.x

[Milton92 in reply to rosewine]

That's disgusting because your PIP should be for your own use and then he should provide PAIN MANAGEMENT such as Acupuntute, Hydrotherapy to ease our pain for the conditions have🤔

[rosewine in reply to Milton92]

I had hydro for just 6 sessions which is all that is allowed in our area. The physio was wonderful and there was another lady in our group also with fibro. He said we made the most progress of anyone in his groups that week. He reckoned that if he could have had us in his class on a regular basis for 18 months he could have really made a difference. The irony is he was prepared to do more classes but the NHS wouldn't fund and most of the time the hydro pool was only used for half the week.x