Newly diagnosed to fibromyalgia and chronic fatigue syndrome!

Hi everyone! In the last two weeks I have finally found the name of the disease that has been plaging me constantly for the last 4 years! Whenever I would ask one consultant he would say no you do not have it, ask gp, you do not have it because your consultant said no! Now 4 yrs later, new consultant says yes I do have it!

It's been a long hard battle with pain, fatigue, depression, severe headaches, not able to have a life and I'm only 26 which is the hardest part to understand!

Was just wondering what people found helpful or what treatments they are on!

6 Replies

  • Hi I'm in same boat, 26 and just been diagnosed with fibromyalgia, it's frustrating that it's take so mucheck just to get an answer, I'm currently just on pain relief till I see a pain management, so can't help with that, but I hope you u get more help now you have answers Kelly

  • I'm the same. Only 24 and been diagnosed with fibromyalgia. I had 3 doctors tell me I had it until Thursday another doctor said I didn't. I have all the symptoms and am still being treated for it. But yes it is a long hard battle. We still have the rest of our lives to live without this pulling us down. I suffer with severe headaches that leave me in bed for days. No pain killers help.

    Sorry for this moan on your post but just learn to pace yourself. Sounds easier said then done but it will help. Different combinations of tablets work for different people so it's between you and your doctor to find the combo for you. Hope it doesn't take to long and your pain is eased soon.

  • Hi Katie1111111

    I sincerely hope that you are feeling well today? Welcome to the forum and I genuinely hope that you find it useful, informative and loads of fun!

    I have pasted you a link to our mother site, FibroAction which has loads of useful Fibro information on the site:

    I personally have lots of medications but I also suffer with several other medical conditions. It may take you a bit of time to find which combination of medications works best for you? I want to wish you all the best of luck with this. Two of the most common treatments are an antidepressant along with an an out and out pain killer.

    All my hopes and dreams for you

    Ken x

  • Hope you find your solution s soon, but placing really important as it stress reduction and eating healthily. Try not to to take too many painkillers as the more you take the more you will need.

  • Hi Katie. I have ME not fibro but cfs is part of ME I have been very ill but it seem to have evened out now. I have been to see my dr several times and he told me it was anxiety. He gave me anti-depressant and sent me away but while I in his office he kept staring at his computer screen I could see the cogs going round in his brain and I was dying to tell him it was ME. I am going back next week (seeing a different dr) not sure if there is any point though she will probably agree with him.

  • Ive been exactly the same, 4 yeas of people not listening to me and having xrays that show nothing, blood tests that show no inflammation i was sick to death of people saying 'your fine its growing pains, its stress etc' when nobosy understood the pain i was and still am in. im in the later stage of getting fully diagnosed just had some more last blood tests done then thats the last thing my consultant will do before they say its definitely fibro. I am only 20 so i understand your frustration in being young with a long term illness. I was told when im diagnose i will be put straight onto Amitriptyline in a low dose due to the severe pin im in. if you are in such bad pain this shuld be something to look into, doctors can prescribe it in a low dose instead of a high dose where its used as an antidepressant. Also there are social meetings and groups people like us can go to where we can talk apparently this is supposed to relieve the pressure off the brain and nervous system and can help relieve pain.

    i hope you get well soon x

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