I appreciate there are endless numbers of posts about (lack of) sleep here, but I wonder if I could ask for some thoughts from the superexperienced people here about my individual situation?
Briefly, I was diagnosed with Undifferentiated Connective Tissue Disease/?Sjogrens and Interstitial Lung Disease about 18 months ago. I take hydroxychloroquine and prednisolone (now down to 4mg daily) for this, plus bisoprolol and lansoprazole daily.
Although my lung and joint problems have greatly improved, I am left with chronic fatigue and daily episodes of flushing, nausea and sweating that seem to defy explanation. My sleep quality is very poor and my rheumatologist now considers that my primary diagnosis may be Fibromyalgia.
He started me on amitriptyline, which slightly improved my sleep at 20mg. However, I remain exhausted and subject to debilitating flushes etc. When I last saw him, he suggested taking gabapentine - although I have no significant pain. The following week I saw my neurologist who said he would rather I stopped the amitriptyline and take an SSRI instead.
So far, all I have done is reduce the amitriptyline to 10mg. In the last week, my sleep has deteriorated to the point where it is essentially just a string of sleep paralysis episodes strung together with periods of wakefulness where I try to calm myself and get to sleep. I have no refreshing sleep whatsoever.
Any ideas about what I should do would be great - should I take my Rheumy's advice or my neuologist's advice or neither?