Fibro fighter: Hi, I am new here, I am... - Fibromyalgia Acti...

Fibromyalgia Action UK

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Fibro fighter

Mustangmo profile image
18 Replies

Hi, I am new here, I am 74 have had FIBRO the doctors think since I was about 11. Have just been learning all the things that you can have with fibro. Wow you could spend days learning.

I am in bed most of the time and just starting to do exercises in bed to get going again.

I am looking forward to meet g you all. Take care and peace profound

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Mustangmo profile image
Mustangmo
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18 Replies
jfk71 profile image
jfk71

Good morning and a very warm welcome 😊 x

Mustangmo profile image
Mustangmo in reply to jfk71

Good morning and thank you, where about are you that it is morning, I just got off with a text fro England and another from Israel

jfk71 profile image
jfk71 in reply to Mustangmo

Hi...i am in the UK. North East of England. It was very early morning. ..around 2am i think !! Where are you from? X

TheAuthor profile image
TheAuthor

Hi Mustangmo

I sincerely hope that you are feeling as well as you possibly can be today? Welcome to the forum and it is wonderful to make your acquaintance. I have pasted for you below a link to our mother site, FMA UK which hosts loads of useful Fibro information:

fmauk.org/

I am so genuinely sorry to read of how your illness affects you and I want to sincerely wish you all the best of luck and please take care of yourself my friend. I really love the photo of the kitten, he is simply so cute.

All my hopes and dreams for you

Ken

2mitzyarnold profile image
2mitzyarnold

I have fibro and I never have any energy and have slept in my entire life. DO you also have insomnia at night. My problem is my pain is so bad at night that I can't sleep. I have to sleep in until lunch time. The pain in so horrible everyday it seems to flare up more. What seems to help you?

Mustangmo profile image
Mustangmo in reply to 2mitzyarnold

I was like you with pain at night and I found out when pain in the night or day got bad a muscle relaxer helped. A doctor once told me when you have pain you automatically tighten your muscles and if you take a relaxer you cut half the pain, I use Lakota both muscle relaxers and the,rubs.

Mustangmo profile image
Mustangmo in reply to Mustangmo

I have CFS and can sleep 2-3 days and also up all night and feel better at night.

jfk71 profile image
jfk71

I am on crutches ss have damaged ligament in my knee. Its torture as my elbows and wrists are now in excruciating agony. Trying to alternate between crutches and no crutches but knee is agony too and gives way if i even slightly weight bear for too long....bloody fibro 😤 xx

Mustangmo profile image
Mustangmo in reply to jfk71

I am so sorry for you have you tried to walk with a quad Cain or 2 of them, I find 2 really help sometimes.

, I have sciatica also, I told the dr. I was in labor 72 hours and would be happy to have that then this pain with Fibro.

Take care, hugs and peace profound

Hi Fibro fighter and welcome to the forum where I hope you get loads of support. They reckon you've had fibro since the age of 11...that's very young...and have only just diagnosed you now at 74 if I read right....well I hope you catch up and read what you can. I was surprised how many symptoms there is to fibro...nice to make your acquaintance . xx

Mustangmo profile image
Mustangmo in reply to

I was told by the doctor who wrote the book Dibro Fox that after talking to me he said I must have had it years. He also said a lot of people have, when we are growing up and our legs and body hurt it is called growing pains, then in our early teens when we hurt et , it is called puberty , then a little older in our 40 s it is called arthritis, and start of osteoarthritis etc.

Sorry I am jerking and making mistakes

Take care and

Peace profound and hugs

in reply to Mustangmo

It is confusing I know x

Bevikins profile image
Bevikins

Hello there 😊I just joined last week and this sight is supportive and informative 😊 I take amatryptalin at 7 pm and magnesium malate before I go to sleep .. this works for me 👌

On waking co codimol and heat packs on the most painful areas and a motivational meditation off the YouTube 😊

Have you looked at Guaifenesin protocol for alternative treatment?? it works for me 😊But very expensive to import from America to the uk😖 Grr

But you can get off your local Walmart shelves haha

Worth a try you poor luv .. Jeese!! All your life suffering 😓

I got mine bout 45 ish .. so feel lucky ..

gentle hugs to you X

Mustangmo profile image
Mustangmo in reply to Bevikins

Thank you for your advice. I can use heat, if I have to use ice packs every nmuscle in area jumps and jerks. Sure as hell made the sit up and take notice.

Have a good night, I am going to try to get some sleep , it is 4:24 where i an, hugs and peace peofound

Bevikins profile image
Bevikins

O goodness , I hope my notification didn't wake you .. I forgot about the time difference 😑... Sorry my Lovley

Mustangmo profile image
Mustangmo in reply to Bevikins

Not to worry just got of with m friend in Bath. I had some very bad news On Thursday a young man who was my late husbands nurse for 4 years and was like the sone we never had committed suicide I am not able to text and may be off a couple of days, depending on if I can stop crying. I am going to a friends will text to all later. Hugs, peace profound.

Mustangmo profile image
Mustangmo in reply to Mustangmo

Fibro Clare

Bevikins profile image
Bevikins

My thoughts are with you 😊

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