Fibromyalgia Action UK
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Fibromyalgia or Multiple Sclerosis

Hi there

I was diagnosed with FM last year, after many years of suffering. I have now been referred to a Neurologist as I have symptoms that have progressed such as eye vision problems, balance issues and a increased efffort to swallow. Has anyone been diagnosed with both or had their diagnosis changed from FM to MS ? I've just turned 40.

Thanks in advance x

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Hi I have had fibro for a long time things had become worse about a year ago balance especially was diagnosed with fnd last year it can mimic ms and parkinsons on the symptom front Neurologist gave me this web site neurosymptoms.org/

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Very interesting reading, thank you for sharing ♡

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Hi Ruthie, I had all these symptoms and was referred to neurologist and had a scan which came back clear (I'm 48 btw). I must admit that I went through phases of thinking I may have had a stroke, developed MS or Parkinsons. A lot of the symptoms are similar so can make you worry that you may one of these. Obviously I'm no medical expert but what I have learnt is that fibro has so many different symptoms. I'm on meication now which has alleviated most of these. Hope you don't have to wait too long to see the neurlogist and get some clarity. Good luck and take care lovely. xxx

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Hi Ramjets I'm so glad this post came up as I've been worrying for a few weeks now over ms as my symptoms are changing I've a appointment on Monday to discuss this with my gp as well as my eyes and lack of sleep with I'm finding very draining thank you for your post

Hope your well

Take care bam xx

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HI Bambamsnan I want to genuinely wish you all the best of luck with your doctors appointment my friend, and please take care of yourself x

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Thank you Ken TheAuthor I appreciate your kind words

Love bam xx ☺

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x :)

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Hi Ramjets interesting you mention the stroke that is one of the delightful symptoms I get on a regular basis can last 30 mins or all day neurologist said its a classic symptom of fnd not heard of it in fibro.

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I thought I'd had a mini-stroke because I was dizzy and wobbly and had numbness down left side of my body plus my memory was affected. I was initially told it was probably some kind of weird migraine and then I was finally diagnosed with fibro. Maybe I have both?? x

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Hi Bam, I know it's easy for me to say but try not to fret too much hun. This fibro malarkey can throw up such a range of things. Try to get yourself some decent sleep and I'm sure things will be sorted soon once you've spoken to your GP. xxx

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Hi Ruthie- allsorts come on the back of fibro, I often get some of the symptoms you describe, my rheumo doc had a gastro partner look at my swallowing issues- poor muscle control=fibro related, optician says lazy eye muscle=fibro related. balance issue-poor muscle and bone around knees and ankles- fibro related recommend long term continue with hydrotherapy to pump up better muscle power thus stopping some symptoms, wearing reacto light specs or sunshades some of the day to rest tired eyes, diet-liquidise food for now to help swallowing and digestion improve, drink water all day long to strengthen throat and oesophagus muscles-- these recommendations are working for me, I feel we fibro sufferers try to adapt to our condition and cause referred pain ignorantly.. Not enough support for us unless we stamp our feet and make a fuss when we see a consultant--I did!!!

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Thank you to everyone that has kindly replied. It's been a long journey to get to this point but now with a first diagnosis I can start to put myself in the right track to coping with how I feel. It's very interesting to hear your views with the MS and thoughts as I have my neurologist appt in April. I'll keep you posted.

Best wishes to all x

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Hi Ruthie1005 I want to sincerely wish you all the best of luck with your Neurology appointment and please keep us updated my friend x

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I hope it all works out for you and you get the appropriate treatment.

Fingers crossed.

Kay

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Hi Ruthie1005

I sincerely hope that you are feeling as well as you possibly can be today? I am so genuinely sorry to read of your concern about the possibility of having Multiple Sclerosis. I would talk to your doctor about your concerns and ask for an MRI as this is how MS is diagnosed. My wife has Primary Progressive MS, and has been in a wheelchair for quite a few years. The real difference is how MS attacks the body so quickly after an exacerbation. it does not return to it usual / prior condition and will get worse if left untreated. If you follow that pattern then I would talk to your doctor? If not, I would not worry too much as it is almost certainly a flare up of your Fibro. I want to sincerely wish you all the best of luck and please take care of yourself my friend.

All my hopes and dreams for you

Ken

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I have symptoms too that mirage ms like balanced, memory,involuntary movements and worst is jerky walking gait. One neurologist said stress from my past and rheumy said it's sticky blood in my brain.waiting to see third specialist. They do all tests and send you round in circles stressing you out more.

Try not to get stressed and hope it's just fibro problems. Thou that is enough. Sending you big hug

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I have both and I have been concerned about MS it worries me as I can't move very well some days and just want to sleep it's awful I feel my life is rubbish 😞

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Hi Doglover1962

I sincerely hope that you are feeling as well as you possibly can be today? Welcome to the forum and it is wonderful to make your acquaintance. If you are worried about the possibility of having MS, I would ask your GP to send you for an MRI (if they are an approachable doctor?). I want to sincerely wish you all the best of luck and please take care of yourself my friend.

All my hopes and dreams for you

Ken

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