I know you've all asked this a Dozon times - how come an illness experienced by thousands, drawing thousands of pounds in funding for research and seeing so many people claiming - or trying to claim disability benefits is still not recognised, diagnosed or accepted as a disability????
How come with Fibro Action, Fibro Awareness and many other forums and charities, research, papers and American research results, we still can't find a doctor/specialist or clinic to help us deal with this b****y illness.
I'm totally fed up with being told to'loose wieght and exercise' even though every pill they give me 'may cause wieght gain' and i've had to give up full time career for part time work and I'm still struggling.
I am now writing to the NHS to get some answers. I've recently moved to Scotland, partly because without me working full time retirement was seeming further and further away. I am now having to go through the whole process again, starting with - guess what - a sleep study - in case I have 'sleep apnea'
So, my question now is, why do we put up with this??? Well not any more, so, anyone who has had any dealings with the NHS or goverment about the recognition or categorisation of this illness, please let me know about anyone or dept who has been helpfull in this area.
I will keep you all posted on any progress I make.
Keep fighting, if it any help to anyone, I've found 20min cat naps and 1 day 'crash days' (one day of doing very little, laying in, warm bath soaks, spa days, foot spas, walks on the beach and the food you really enjoy) really help me get through, most of the time. 🤗🤗