There are times at night where I will get this strong restless feeling all over my body which even affects me emotionally. It feels like anxiety but I don't think it is. If I don't move it gets worse and I feel like I have to toss and turn and at times I have to just get up, get a hot drink, watch TV till it goes away or am too tired that I have to go to sleep. What is this thing? Is it an anxiety attack? Restless syndrome? It doesn't happen often but when it does, I feel like I wanna kill myself.

14 Replies

  • Hi Untrazeable, and welcome to our forum.

    I just had to reply to your post as this has been happening to me for about the last three months.

    It always happens in the late evening, out of the blue. I just have to stretch my whole body and move about, and it helps if I stretch my arms and upper body into odd positions. (It sounds crazy, I know). It is the odd feeling that you get inside you that makes it feel as if you can't control what is happening.

    I have never suffered from Restless Leg Syndrome, (RLS) which a lot of people with Fibro do, but I imagine it's what that is like, only just in your legs.

    I haven't had any changes in my meds, or in anything else that I'm aware of. I don't want to say anything to my GP about it either, as I'm sure she will think I've finally lost the plot.

    I'm sorry that I can't be more helpful, but maybe just knowing that you're not alone in feeling like this may help.

    In the meantime, take care, and if I find out what is causing this I'll be sure to let you know.

    GP. 😊😊

  • Running on adrenalin after doing more than was within my limits produces this feeling I try and drink lots of water in hope of diluting the cause of distress. Try mindfulness and meditation for relaxing though it only brings limited relief.

  • I'm sorry to hear you're having sleep problems as sleep is essential to feeling well the rest of the day. Here's an article that covers a lot of sleep problems despite it being angled toward older people. You can also do a search for your age group. I found the PLMS on the top of the 2nd page an interesting fit and possibility for you. Or with some research, you might find something else that's related to PLMS a better fit to explain your problem.

  • I do have restless leg sydrome and i also get this restless all over feeling and they do not feel the same to me. I have found that the best way to deal with it is to get up right away, the longer i lie in bed the worse it gets. I often do a dink of sweetened milk with cinnamon and just pither about tidying up. washing up the supper things. A quick shower helps, so long as starts knocking on the door that they need a wee.

  • Hi and welcom to our friendly site, hope you enjoy it on here, yes i, get it too it's a horrible feeling as mayrose54 says its best to get up , I make a warm drink of milk and try and walk around a. bit to stretch the muscles , I think it's the same sort of thing as restless legs, I'm taking magnesium tablets and rubbing magnesium oil in my muscles helps a lot, take care

  • Aww i feel your pain, I suffer terrible with restless leg syndrome, I use pramapexole and it works wonders, maybe ask your gp about them x

  • I have that as well. Been doing meditation with an APP and most os the times, I fell asleep with the earphones in... The meditation was a suggestion from a nurse on my surgery and it has been very helpful. The one I find good for me is called Insight Time. All the best. Love xx

  • Hi Untrazeable , Welcome to our lovely firum...glad your here.I have severe panic attacks as a matter of fact it's part of my disability and when I have one I never feel the need to get up and move (unless I don't gave my meds handy) so I don't think it's that but I'm not doctor. I woukd think you should see a gp about it because I can tell by your words it's very upsetting to you.Best wishes! ! Peck.🐤

  • Hi Untrazeable I sometimes have a strange feeling at night when am trying to sleep like you and Greenpeace 😟I find I have to move around take some meds Wait for them to work watch TV or meditation it's a terrible feeling!!!!!! Sorry it happens to you. Chris

  • Hi Untrazeable

    I sincerely hope that you are feeling as well as you possibly can be today? Welcome to the forum and it is wonderful to make your acquaintance. I have pasted you a link below to our mother site, FMA UK which hosts loads of Fibro information:

    I am so genuinely sorry to read of what you are experiencing at night, and I would discuss this with your doctor if the symptoms persist or get any worse. I have pasted you an excerpt form the *NHS Choices website on ''Restless Leg Syndrome:''

    *Restless legs syndrome, also known as Willis-Ekbom disease, is a common condition of the nervous system that causes an overwhelming, irresistible urge to move the legs. It can also cause an unpleasant crawling or creeping sensation in the feet, calves and thighs. The sensation is often worse in the evening or at night.2 Sep 2015

    I want to sincerely wish you all the best of luck and please take care of yourself my friend.

    All my hopes and dreams for you


  • Hi, good morning. It could be restless legs that you are suffering from. I only ever suffered when I was pregnant before I got diagnosed with fibromyalgia. Now I get it on and off all the time, but not only in my legs but my whole body, I find mine comes on when The house is to hot. Try keeping cool in the evenings, sleep under a thin quilt and turn the heating low. Give it a try, it may help. X

  • I sympathise. I get something like. Had it last night. It wakes me up. Feels like I'm falling out of my body through my feet. Whoosh! Ouch! My feet seem a bit small as an exit point, creating of a bottle neck for the energy to escape. The feeling of energy whooshing starts in my chest. Yes I haven't discussed this with the Doc, pretty sure he'd like to have me certified anyway. Hates taking FMS seriously. This would just confirm to him I'm bonkers! I got up for another wee because that can have an all over bodily urgency, waking me up but it's not the same. It didn't stop it happening. Someone said she thinks she gets it if she has had too much sugar or sweet stuff or caffeine? Or not enough water? I don't know. I think it's probly like Fidgets, and that seems linked with tiredness. (Vitamin B?). My partner would treat his fidgets with going to sleep. But these fidgets wake me up even though I'm exhausted. Seems yet another reason sleep is disrupted.

  • Sorry you are dealing with this, I get this too. Rubbing on magnesium oil helps me.

    Good luck××

  • Hi there, sorry to hear that. The same happens to me at times, which is almost most of the time. It's horrible I know, I sometimes take a co-codamol which can help sooth things a bit, or like yourself I have to just get up or watch tv. It's the bodys nerve signals all messed up. Sorry I can't be of more help. I hope you have a good day.

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