Pain Toolkit booklet in pdf form - Fibromyalgia Acti...

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Pain Toolkit booklet in pdf form

Sheila-Squirrel profile image
9 Replies

nhs.uk/Livewell/Pain/Pages/...

This is a link to a pain management page. It has a link in it to the pain toolkit booklet. I was introduced to it by my physio and have found it very useful. Hope you are all having a reduced pain day where you can function like a normal person x

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Sheila-Squirrel profile image
Sheila-Squirrel
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Madmeg11 profile image
Madmeg11

Thank you Sheila-squirrel !

bluebell99 profile image
bluebell99

Thank you for posting Sheila-Squirrel . My pain clinic gave me a leaflet and a cd and it can be useful. Worth looking at, at any rate.!

TheAuthor profile image
TheAuthor

Hi Sheila-Squirrel

Thank you for such a kind and thoughtful post my friend, it is genuinely appreciated. I sincerely hope that you have had a wonderful day. I want to genuinely wish you all the best of luck and please take care of yourself my friend.

All my hopes and dreams for you

Ken x :)

Sheila-Squirrel profile image
Sheila-Squirrel in reply to TheAuthor

You're welcome. Anything to help with coping with chronic pain is useful. I waited for over a year to get a pain team assessment. By that time my left arm was stuck by my side and I only had 10 degrees of movement. My pain was at the top of the Magill scale and I was only able to cope because a friend in Holland introduced me to Pacing. Something that's covered throughout the Pain Toolkit booklet. I've had a tough day. My house has a back door that doesn't fit so my kitchen is around 12 degrees. I can't stand in there long as the cold and damp makes my condition worse. I've been living on microwave porridge, tea which I make in my lounge and biscuits. I've reported it to my landlord many times. Next stop is environmental health and my local council.

TheAuthor profile image
TheAuthor in reply to Sheila-Squirrel

Hi Sheila-Squirrel I really am so genuinely sorry to read that my friend and I want to sincerely wish you all the best of luck with getting this sorted and please take care of yourself.

All my hopes and dreams for you

Ken

Sheila-Squirrel profile image
Sheila-Squirrel in reply to TheAuthor

Thank you x

TheAuthor profile image
TheAuthor in reply to Sheila-Squirrel

x :)

Janeybrass profile image
Janeybrass

I was given the pain toolkit booklet at my first pain management appointment just over a week ago. I downloaded the app (£4.99) . There are some short questions and it guides you as to which tools may help.

I'm tackling pacing at the moment.

How are others getting on with this approach?

I have already found that doing stretching exercises similar to Pilates has helped me pain. I started 6 months ago with literally 5 mins worth now I can do 20 mins. I'm lucky I have a physio to guide me.

It's hard to get going when everything hurts but it does help me .

Sheila-Squirrel profile image
Sheila-Squirrel

I use pacing every day. It's hard to remember to break things down into smaller tasks at first. It does becomes a way of life though. You sort of have to say RIP to the life you knew to be able to move on. Its a bit like learning to ride a bike. You have stabilisers, you take them off, you fall off and finally you can balance. I too do stretching exercises. It sounds like you have a positive attitude towards dealing with your condition. That's your greatest tool in staying active and having a quality life rather than just surviving. Many bright blessings for a comfortable day x

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