Fibromyalgia Action UK


Evening all this is my first time on not very good at writing things so here goes I was diagnosed with fybro in 2014 as well as osteoarthritis , and depression ,copd went through hell trying to get. ESA. Went to tribunal scored 21points then in august last year was called in for the dreaded assessment only to score zero not one point even though I took everything from the specialist at Derby royal and my doctor stating that I could be a danger to myself and others if I was too work under regulation 29 i have a appeal going through at the moment with the help of of​ the citizens advice bureau feeling very low at the moment do the DWP know what they're doing to people's lives .you work all your life just to be treated like this wonder how long will have to wait this time wishing you all a peaceful night ( then again not much chance of that )

4 Replies

Hi Brian1962

Hello and welcome to our friendly fibro forum where you can find help, support, advice and understanding.

Have you seen our Mother Site ? Here you will find a wealth of information about fibro including links and guides.

I am sorry you are struggling with the DWP. You are not alone with this, I do wonder myself if they have the right notes for the right person, it seems so odd.

Please do come here and say what you feel, this is a safe site with a lot of support from our members, many who are going through the same thing as you.

I hope to see you around the forum.

Wishing you a painfree and peaceful night.



Hi Brian1962 welcome. Sorry you have fibro.

A lot of us here have gone through the ridiculous ordeal of pip and ESA.

I myself have been awarded pip but I am waiting for f2f for esa, which I'm dreading.

You will find us a friendly bunch and supportive.

Take care

Angie x


I agree the whole system stinks!! I am fortunate in not having to go through all that as my benefits where sorted many years ago but I do feel for those of you who are struggling with an inefficient and basically incompetent system..Good luck x


I was lucky to not having had the same problem as everyone else seems to have had and was granted everything with only a face to face meeting, although I have other stuff which I tend to base it on rather than the fibro. Fingers crossed they get it sorted out for you


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