Fibromyalgia Action UK

Feeling very low

Have been diagnosed just over a year with fibromyalgia after over 15 years of pain and in November told I have osteoporosis arthritis in both knees am so depressed as I also have to care for my 23 year old son who is severley disabled both mentally and physically from a brain tumour when he was 4 years old have no aids at home just need a cheer up am waiting for ot assessment and have just got a mental health social worker as he was under wrong team for 23 years God what has this country come to am waiting for physio appointment for myself and I take amitrypiline and Co codermol on my bad days as I won't take them every day is there anything out there to help us ease the pain that's not so addictive PLEASE

8 Replies

Sorry your having to go through this. I'm sure the admin team will be along to give you a warm welcome and more info soon. But just wanted to say that I have been led to believe by my doc that amitriptylene isn't addictive and works better taken regularly. If this is untrue someone feel free to correct me! But you might actually be better off taking that daily as prescribed to help you sleep and ease your pain. Many people here including me find it very helpful. The co-codamol I understand you not taking daily I only take when I need to also. Good luck and I hope you find the forum helpful :)


Thankyou for your kind words I meant the coco dermal not the amitrypiline is addictive if taken too much best wishes

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Welcome savanarian2008 to our friendly group.

So sorry that you are suffering and having to care for your son. It must be really difficult for you.

I agree with tmc182 I don't think Amitriptyline is addictive. I have taken it for years as it helps me sleep.

You do seem to be being messed around at little.

Can you speak to someone regarding getting help with your son?

I hope you find some relief soon hun.

Come and chat or have a rant and rave when you need to we are always here.

Take care

Angie xx

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Hi I have just started taking Hydroxy chloroquine it works for me a few side affects but pain not as bad. ☇1.

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Hi and welcome. We are all very different and have different experiences with what works for ourselves or not. If you have osteoporosis then they should put you on calcium meds. It did actually increase my bone density in my spine which shocked me.

In the old days when I worked I did a big thing about drugs and dependency, and using an American study done on army vets, the consensus seems to be that you are less likely to become addicted than people realise. It seems that it is mainly when you have the addictive gene that it is a bigger problem.

The main thing is what you are hoping to achieve, does taking the medication have more benefit than not, taking into account that it is unlikely to be made totally pain free.

What is massively important is that you get some type of aid to help with your son, otherwise you, unfortunately, are causing yourself harm. It is unfortunate that there is such a demand on community services for whichever professional you need to see, but at least we do get that access eventually, I despair of what will be left for our children as demand far outstrips what is available now and that can only get worse as we all age.

I hope you do manage to get it all sorted

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Hi savanarian2008

I sincerely hope that you are feeling as well as you possibly can be today? Welcome to the forum and it is wonderful to make your acquaintance. I have pasted you a link below to our mother site, FMA UK which hosts loads of useful Fibro information:

I have also pasted you an excerpt below from *NHS Choices relating to Amitriptyline which I truly hope will help put your mind at rest about this drug:

NHS - Drug information Amitriptyline:

*There's no evidence that amitriptyline is addictive or causes dependency, especially at low doses. You should avoid alcohol as amitriptyline increases the effects of alcohol and may make you drowsy.

I am so genuinely sorry to read that you are suffering and struggling so much and I want to sincerely wish you all the best of luck and please take care of yourself my friend.

All my hopes and dreams for you.


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Thankyou for all the wonderful replies xx


I have fibromyalgia and osteo arthritis what Medstead work best


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