My name is Janet and I have just been... - Fibromyalgia Acti...

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My name is Janet and I have just been diagnosed with fibromyalgia

1005Sophie profile image
7 Replies

I just need to know about other people's experience with this x

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1005Sophie profile image
1005Sophie
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7 Replies
angiesmith50 profile image
angiesmith50

Morning 1005Sophie welcome to the gang. So sorry you have fibro. We all tend to have the same main syptoms of fatique, widespread pain and fibro fog. Most of us have other underlying illness too. A lot of other symptoms vary from people to people. Me personally I suffer with fatique a lot but I am lucky where I tend to sleep alot although I don't feel refreshed. Another thing is brain fog where my brain struggles to understand information and I struggle to form my words to have a conversation. Also I'm very clumsy and drop things. My memory is not that great either.

I know it must all sound so overwhelming at the moment. How long have you been having symptoms? My advice would be to read up on it as much as you can. Give yourself time to come to terms with it all because until you do life will be more difficult. There are medications that can ease the pain also I find that B12 vitamin and magnesium oil spray help with brain fog. Ask as many questions as you need to angel or just come and have a chat. Please take care and good luck xxx

Good morning Janet and welcome to the forum, its a bit early yet for a lot of members.

To answer your question `does the pain ever go away` for most of us no it doesnt. BUT with treatment and experience we can learn how to keep the pain level down

Ask your GP to refer to to a pain clinic.

The link for our mother site is fmauk.org There you will find loads of info about fibro

I will leave you to others for now but will pop back later. Sue :)

Janet28 profile image
Janet28

Hi 1005Sophie and welcome to our wonderful forum ☺ I'm sure you will come to find the forum invaluable in chatting to others who are going through the same experience as you, talking to others at different stages of their lives with Fibro and learning from their experiences.

It does help with the whole process and I wish I had found the site years ago. I have had Fibro for nearly 30 yrs and I'm still learning about it, like we all are.

I'm sorry you have been diagnosed with fibromyalgia, how long have you had it ?.

Please do go look at the mother site where you will find all the information you need and lots of useful links on Fibro and I look forward to chatting to you on the forum.

fmauk.org

Peace, luv n light

Jan ☺

PS. I advise you to lock your post to keep info safe from internet. Pls. follow this link to simple instructions .You will get more replies on a locked post too.

healthunlocked.com/fibromya...

Trikki profile image
Trikki

Welcome to our fibro family.....I am sorry you have fibro and I am sure you will glean a lot of information, support and the odd giggle or two. Fatigue, pain and fibro fog are the main problems with other stuff thrown in for good measure! Hope to hear more from you...xx

BlueMermaid3 profile image
BlueMermaid3

Hi Sophie

I just wanted to wish you a warm welcome to the forum ☺

I can see that our lovely Jan has given you the link to our mother site. It really is worth a look fmauk.org

I was diagnosed with Fibro and ME in 1980 and have lived with it for 36 years and worked for 34 years.

It was manageable with pain meds up until a severe trauma a few years back.

Since then I've not been able to work and I now have severe pain 24/7 and my ME is awful.

As our lovely Sue has said for most people it can be managed.

The main thing is to have a decent GP who will refer you if you need other intervention like Pain Management etc.

Once again a very warm welcome. I hope you enjoy being part of our wonderful online family.

Wishing you less pain and more peace

Lu x

Administrator

bluebell99 profile image
bluebell99

Hello and a warm welcome to our friendly fibro forum.

If you look to the right of your post you will see Related Posts where some new members have written of their experiences.

I can see you have been given a lot of useful advice, so I send my good wishes and hope to see you around the forum.

Kay

miltonmadden profile image
miltonmadden

Hi Janet I was diagnosed with Fibromyalgia 2013 and I have also got SLE Lupus and it is very exhaushting suffering with both medical conditons but I have to get on with it because I have not got no choice but it is not easy but I suppose you learn to live with any Long-term Chronic Medical condition you have to suffer with. Sorry to hear that about you but you are not alone in this at least you have this site and hopefully you have a Rheumatologist if you haven't get one as soon as possible they are more helpful than the Doctors GP and you need all the support that you can get take care and try and stay strong. :)

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